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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    In the beginning--and especially if there's a lot of healing to do--it's best to avoid processed foods. Natural foods are the way to go so that you can be sure that you aren't getting any contamination. The American way of life, unfortunately, has been based on processed food for such a long time, people sometimes have a difficult time adjusting to this...
  2. rosetapper23
    Don't worry--none of us here on the Forum would think that you're whining. Believe me, we've all felt like you sometime in our lives. Many of us went for years with horrible symptoms that doctors told us were all in our heads. I hope that whatever the test results are, you will still go gluten free. My muscles, tendons, and joints were a mess until I...
  3. rosetapper23
    I would venture to guess that your child's doctor is not knowledgeable enough to determine whether or not your son's biopsy shows signs of villi destruction or not. Even trained pathologists can find reading biopsies difficult. Also, sometimes the scope can't reach the area that is damaged in the small intestine. Would your doctor be willing to send the...
  4. rosetapper23
    Following my comments, I'll provide a link to a URL that lists the gluten-free processed foods that can be found at a regular supermarkets--all kinds of products (the list is over 100 pages long). However, before providing the link, I'd like to discuss an alternative to buying processed foods. In the beginning when people try a gluten-free diet, it's...
  5. rosetapper23
    I should clarify--DH only occurs when BOTH iodine and gluten are ingested. Since cross-contamination is very common when a person first begins eating gluten free, I usually recommend that iodine also be avoided. However, if you find that too difficult, you can just concentrate on just removing gluten from your diet. That said, since you mentioned salt...
  6. rosetapper23
    I agree--American gluten-free cookies taste really bad. When I visited my daughter in Australia, I discovered that their gluten-free cookies actually taste like REAL cookies. Now she sends them to me every few months. As for your Nestle's chocolate chip cookies, I make those all the time, and all you have to do is use Bob's Red Mill Gluten-Free All...
  7. rosetapper23
    Ken, More often then not, celiac presents multiple mysteries when odd symptoms pop up. Nutritional deficiencies can cause an array of symptoms where it can be difficult to determine what the root cause is. Have you tried a keyword search on your condition to see if you can find the various, possible nutritional deficiencies you might have (e.g., skin...
  8. rosetapper23
    Your story could have been written by many of us here on the Forum. (All those on the Forum who felt like dog poo, please raise your hands!) And, yes, the symptoms can wax and wane throughout one's lifetime. Gluten acts like a neurotoxin on both people with celiac and those who are simply sensitive (usually because they have leaky gut), which is why memory...
  9. rosetapper23
    Hormel is pretty upfront...
  10. rosetapper23
    ...and you can have the beer if you bring your own gluten-free brand. Redbridge is quite good and available at a lot of regular supermarkets and at BevMo. Bard's Dragon Tale is another gluten-free brand.
  11. rosetapper23
    Please read the following article that is available on celiac.com (look at the left column and you'll see something like articles and research/other diseases, and then scroll down to Schizophrenia/Other Neurological Diseases). /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/Schizophrenia-%7B47%7D-Mental-Problems-and-Celiac-Disease/ ...
  12. rosetapper23
    You might ask the doctor to test your daughter's manganese level--if she's deficient in manganese, her body cannot utilize iron and iron anemia is the result. Also, with a ferritin level of 10, I'm shocked that the doctor has not prescribed intravenous iron infusions. It is very important to maintain adequate iron levels because they affect her cell oxygenation...
  13. rosetapper23
    After being glutened in April, my scalp developed what appeared to be a flaky, fungal-type infection. It turned out to be from a zinc deficiency, and after taking the amino acid chelated form of zinc, the condition went away after about a month. Other symptoms of zinc deficiency can include hairloss, breakouts around the mouth area, and floppy tendons ...
  14. rosetapper23
    I was accidentally glutened last April, and I ended up with both floppy tendons and various symptoms of zinc deficiency (which included my hair falling out and the scalp becoming flaky). Anyway, I didn't figure out until late September that the zinc deficiency (and possibly manganese and silicon, too) was causing the floppy tendons, which resulted in numerous...
  15. rosetapper23
    That gastro gave you the WRONG advice, so I'm glad you're willing to overlook it. According to leading celiac expert Dr. Alessio Fasano, results of biopsies can be notoriously incorrect because the damage can be beyond the reach of the scope, the surgeon may not have biopsied a damaged section, and/or the pathologist is not experienced/skilled enough to...
  16. rosetapper23
    Ditto on the iodine--remove it entirely until your DH is under control. It's in high quantities in some dairy (depends on the brand and location, so organic is best) and asparagus. As for lag time, for me it's usually within an hour of having been glutened. Sometimes it happens in only 30 minutes, but it has never taken longer than a few hours. I think...
  17. rosetapper23
    In reply to Hobokenworkingman, yes, gluten sensitivity or celiac is a possibility. As you know, American society eats a LOT of gluten--the foods are full of it! The oats you describe are not certified as gluten free, so, yes, they may have contributed to a sensitivity to gluten. Because oats are harvested on the same equipment as other grains here in the...
  18. rosetapper23
    I see no reason to lie--you can't eat gluten because it makes you sick. Period. One study showed that nearly 30% of Americans are sensitive to gluten. You have plenty of company...but they just don't know it. Your mother needs to be educated on this topic, and I wouldn't be surprised to learn down the road that she finally discovered that she, too, is...
  19. rosetapper23
    Yes, that is the story! Thanks for posting it! Unfortunately, it doesn't seem to include the photographs of the patients that show the points of the face that were used and how the differences appeared, but if you contact me, I'll send you the PDF. At the conferences, I've taken numerous photos of people who represent the type of face I see over and...
  20. rosetapper23
    Unfortunately, the study was sent to me as a PDF after the conference, not a link, but it was entitled, "Large Forehead: A Novel Sign of Undiagnosed Coeliac Disease" and the paper was written by Finizio, Quaremba, Mazzaccca, and Ciacci. Interestingly, the Italian study showed that Italians with celiac tend to have larger, wider foreheads. The celiacs that...
  21. rosetapper23
    I believe the nutrient that is needed for facilitating iron utilization is manganese, not magnesium, and I believe I'm the person who wrote it initially in that earlier posting. I've copied the following information from Open Original Shared Link and the information you seek is listed in No. 11 below: How Manganese Benefits Health. Manganese is an essential...
  22. rosetapper23
    My son was diagnosed at 16, and he followed a strictly gluten-free diet until he was 18. At that point, he moved out on his own and decided it was too expensive to eat entirely gluten free--he had three roommates who shared the food budget and who preferred to buy cheap, processed foods. As a result, my 6'3" son's weight fell from 170 to 138 within a couple...
  23. rosetapper23
    You've received excellent information and advice above, and I also believe that it's in your best interest to go gluten free. At first, you'll grieve for some favorite foods, but then you'll begin to enjoy the diet (which is very healthful) and find it easy. I no longer miss any particular food, especially since gluten-free versions are available. I...
  24. rosetapper23
    I was plagued throughout my lifetime (from birth) with joint, bone, and tendon pain and inflammation, and I didn't learn I had celiac until I was 47. I can't recall how long it took for the pain to recede, but it did completely disappear within about 18 months. I'd even had fairly severe carpal tunnel problems that disappeared (my son, who was 16 at the...
  25. rosetapper23
    When I attend conferences throughout the U.S., I'm always surprised at the number of couples where both the husband and wife have celiac--but they didn't know it at the time they got married. At one particular conference, I learned of a study out of Italy that showed that the facial bones of people with celiac can be different because they don't "set" at...
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