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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    L-Glutamine purportedly helps heal the gut according to several celiac experts. I've tried it myself, and it helped a great deal.
  2. rosetapper23
    I didn't know I had celiac until I was 47, and I'd had "issues" all my life that worsened when I was 11. Even though I went completely gluten free at 47, there are a number of symptoms that have never been relieved: numbness in my toes, night blindness, and difficulty clotting. Since it's been seven years since I went gluten free and these symptoms still...
  3. rosetapper23
    Your story sounds consistent with celiac or gluten sensitivity--please follow a gluten-free diet for a while to see if you feel better. Also, the hot flashes might be related to a thyroid condition associated with celiac: Hashimoto's. It can also cause pain in the joints, so this sounds like a possibility in your case. Also, regarding your concern that...
  4. rosetapper23
    Okay, I'm just going to throw out some guesses here for you to investigate. Tendon pain anywhere in your body can be caused by a misbehaving thyroid (so you might wish to get your thyroid tested), or it could mean that you're deficient in zinc, manganese, and/or silicon, since these all support tendon health. I recently suffered from these deficiencies...
  5. rosetapper23
    Okay, you KNOW you have a gluten problem, since you get sick when you eat it. In my opinion, both the tests for celiac/sensitivity and doctors are oftentimes wrong....or, in some cases, nearly always wrong. I lost my confidence in doctors many years ago after being misdiagnosed since birth. For Pete's sake--I was born with Ricketts! Even then, the doctors...
  6. rosetapper23
    I would like to add that you should be tested for thyroid problems, since your chronic tendonitis and fatigue might be caused by that. Another cause can be a deficiency in manganese, which can cause tendonitis and contribute to iron anemia. You might consider taking chelated manganese for a short period of time to see if there's any improvement in your...
  7. rosetapper23
    It took 18 months on a very strict gluten-free diet before my diarrhea and the fatigue completely resolved. It takes a while to heal your gut! If you want to speed it up, try taking L-Glutamine, which is oftentimes recommended by celiac experts to help heal the gut.
  8. rosetapper23
    Josef, The symptoms you describe have been found in individuals with celiac or gluten sensitivity--they're fairly common. However, I don't understand how the pressing of the back of your neck would alleviate the symptoms. I do know that gluten has been known to reduce the blood flow to the frontal lobes....and maybe, by pressing the upper part of the...
  9. rosetapper23
    As far as I know, the only recent study-proven help for any kind of scar is Essential Oil of Rose--it's expensive, though, and some people are sensitive to it. However, if you are interested in improving your skin's health and elasticity (and, hopefully, help those scars fade), there is a program by Carole Maggio called Knuckle Massage, where you use your...
  10. rosetapper23
    I live in the San Francisco Bay Area (East Bay), and the restaurants and stores have only recently begun offering enough gluten-free fare to satisfy me. Only four years ago when I was finishing my senior project for college (which dealt with training restaurants in preparing and serving gluten-free meals), I was aghast at how unknowledgeable and unaccommodating...
  11. rosetapper23
    Just want to add that if you're low in Manganese, you can't utilize the iron....and will still feel tired. The best type of Manganese to take is the chelated form. Also, although Floradix is a very good liquid iron, it is very LOW in the amount of iron it delivers. If you don't feel better soon, ask your doctor for intravenous iron infusions. These...
  12. rosetapper23
    I'm not sure if you're asking about the L-Glutamine or the amino acid chelated zinc, so I'll respond for both. I no longer have to take L-Glutamine, but a doctor recommended it to me when, after being on a gluten-free diet for three years, I still didn't feel all that great. He recommended Metagenics UltraClear Sustain Medical Food (which contains 500 mg...
  13. rosetapper23
    Wow, you're being put through the wringer on this! It sounds to me that neither the doctor nor the dietitian is an expert in gluten sensitivity or celiac disease. I also question whether the eczema your daughter has is actually eczema--it might be Dermatitis Herpetiformis, which ONLY exists in celiacs. If you can get a dermatologist who is experienced...
  14. rosetapper23
    My son and I both have celiac, and we both suffered from carpal tunnel syndrome that began in our teens. After we went gluten free, our symptoms resolved; however, I can't recall how long it took. If you want to speed up the healing of your gut, though, I would recommend taking L-Glutamine, which is often recommended by celiac experts. Also, tendon problems...
  15. rosetapper23
    It can take a long time to get your gut back into shape after gluten free. It took me 18 months before the frequent diarrhea finally went away, and I was very strict with my diet. By that, I mean that I ate NO processed foods whatsoever--just natural foods. Also, what finally healed my gut was L-Glutamine. This is oftentimes recommended at celiac conferences...
  16. rosetapper23
    One of the leading experts on celiac disease is Dr. Alessio Fasano, and he has stated in presentations (and in an article to be published shortly) that if your bloodwork is positive and your symptoms are alleviated by a gluten-free diet, NO biopsy is needed. He said that the damage can be beyond the length of the scope, the surgeon may not have biopsied...
  17. rosetapper23
    When you go to Whole Foods, check out two great gluten-free breads: Whole Foods Prairie Bread and Udi's sandwich breads (whole grain or white). Both can be found in a freezer compartment. You can also find gluten-free waffles, muffins, pizza crusts, beer, etc., there. I've found that Trader Joe's offers fewer gluten-free products every month. They used...
  18. rosetapper23
    After being glutened last April, my hair began to thin, break, fall out, etc., and my scalp even got flaky. I finally figured out two months ago that I was deficient in zinc, and my research showed that I needed to take "amino acid chelated zinc" to improve all of the things in my body that had gone wrong as a result of the zinc malabsorption. When I went...
  19. rosetapper23
    Carl, Regarding the crumbs in the butter, you're going to need to have dedicated butter, mayo, peanut butter, jams, etc., just for YOUR use. Contamination can be a huge problem otherwise (and the cause of hurt feelings). You should also have your own toaster because your other half's toaster will have wheat crumbs in it. Do you have a BJ's Brewhouse...
  20. rosetapper23
    I've found that even when a restaurant offers a gluten-free menu, sometimes the server is new and hasn't been trained properly in submitting the order to the chef. Now, I always ask the server if he/she has received training in serving meals off the gluten-free menu; if not, I respectfully request another server or even the manager. I explain how very dangerous...
  21. rosetapper23
    Since the average age of onset for Dermatitis Herpetiformis (the auto-immune skin disease that some celiacs suffer from) is 19-20, you are right to consider this possibility. My son and I both developed DH at the age of 19. To have this disease, you need to ingest BOTH gluten and iodine. It's good that you've eliminated gluten, but you might try eliminating...
  22. rosetapper23
    I feel for you...what a difficult situation. Is there any chance that once you're convinced that gluten is a major culprit behind your symptoms that you could serve only gluten-free food to your children? If you follow a natural diet and make your own bread, perhaps there would be less stress about contamination. If you're not already doing so, I would...
  23. rosetapper23
    Luckily, Thai food has many gluten-free offerings, and it's close enough to Chinese food that I don't miss it much. When I really DO miss it, I go to PF Chang's. They added more offerings to their gluten-free menu about six months ago. One of them was my previous favorite meal before I knew I had celiac, so I checked it out. Unfortunately, it was perfectly...
  24. rosetapper23
    Did you happen to read this interesting thread on auto-immune diseases? I think you might find it helpful. Also, you might consider taking L-Glutamine because it heals the gut and has helped many of us with gut issues. Here's the thread:
  25. rosetapper23
    To be honest, you might even be getting cc'd from kissing your kids after they eat their PB & J's. For many of us, it doesn't take much to get sick. Regarding "leaky gut," someone started a thread yesterday on an interesting site that discusses auto-immune diseases. It discusses this condition and was written really well. Hre's the thread:
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