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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Okay, for one thing, your dermatologist has no business running blood tests that she doesn't know how to decipher. Secondly, if she doesn't know anything about celiac, are you sure that she performed your skin biopsy properly? She should have taken the biopsy from a patch of skin NEAR a blister, not ON the blister. Do you know if she did this? If not...
  2. rosetapper23
    No, the scope takes preparation. As for the fasting, that probably dealt with a thyroid blood test. You just have to tell the lab person if you fasted or not--then they know how to run the test.
  3. rosetapper23
    L-Glutamine is a good supplement for helping to heal your gut. If you're like many of us who have celiac, you'll become more sensitive to gluten the longer you abstain from it. Of course, that's no reason to stop eating gluten free--it's just something you'll probably notice when you accidentally get glutened in the future. Also, although you believe you...
  4. rosetapper23
    If your iron levels have not improved enough to allow you to exercise, then you're not absorbing iron. Once you go gluten-free, it can take six months to more than a year for iron levels to normalize. In these circumstances, a doctor should consider ordering intravenous iron infusions once a week for four weeks. That builds the iron up to sufficient levels...
  5. rosetapper23
    Yes, I agree--the fatigue and malaise can feel life-sucking. I've always needed more hours of sleep than other people, and there have been times in my life when I simply fell asleep every night on the couch immediately after arriving home from work. Those days are behind me, thankfully. It sounds as though you may be deficient in any number of nutrients...
  6. rosetapper23
    Do you take any medications or supplements that might have gluten in them? Sometimes you have to call the manufacturer directly, since they don't list gluten on the jars. Also, remember that gluten is in beer, soy sauce, and in some seasonings. Lastly, you may be ingesting some gluten from your shampoo or conditioner. If you're a woman, skip the lipstick...
  7. rosetapper23
    Oh, my gosh! I'm sorry I didn't get back to you regarding the thyroid matter. Here's a good piece of information on how Hashimoto's can cause an up-and-down ride with regard to thyroid hormones. The part you'd be most interested in deals with "thyroiditis flares." Open Original Shared Link Hope this helps! Laura
  8. rosetapper23
    Bea, What a long, hard road you've traveled--so many celiacs have met with similar difficulties. I wish I could just spend the rest of my life training doctors, nurses, psychiatrists, and patients about celiac and gluten sensitivities. Advocates for this disease are so essential, but we don't fit into the medical community the way it is presently established...
  9. rosetapper23
    Bea, In reading the listing of your symptoms below your signature and your description on the other thread with regard to nerve problems, I wonder if you might benefit from L-Lysine. I take 1000 mg per day, and it is the the ONE supplement I refuse to go without. Thankfully, it's cheap. I noticed a great improvement in my nervous system after I started...
  10. rosetapper23
    Bea, I'm glad you liked the article, too--I found it positively riveting. After hearing how doctors are now convinced that celiac is a neurological disease (rather than a gut disease), this type of research seems to confirm that they're heading in the right direction. At the conference, they referred to gluten as a neurotoxin. My grandmother had schizophrenia...
  11. rosetapper23
    L-glutamine is oftentimes used to promote healing of the gut in people with celiac. Otherwise, healthful eating of foods high in nutrients may help, too. If you're iron anemic, you might wish to ask your doctor if you can get intravenous iron for a few weeks to boost your ferritin level while your body begins to absorb nutrients better. Some doctors don...
  12. rosetapper23
    DH begins at the average age of 20, so your outbreaks would be consistent with having it. However, you may simply have pimples. Both my son and I were 19 when we developed DH for the first time, and my dermatologist treated it as an extreme case of acne. Of course, the medications burned and peeled my sensitive skin, and I was tortured for four years until...
  13. rosetapper23
    Two things I forgot: Celiac.com has a great article that was published in October of this year on how celiac may cause neurological problems--it's a fascinating article. https://www.celiac.com/articles/22317/1/Hippies-Werent-the-Only-Ones-Tripping-in-the-Sixties/Page1.html Also, I forgot to mention that celiac experts recommend L-glutamine to help...
  14. rosetapper23
    The fact that your TSH is going up and down is a bit of a concern. With Hashimoto's, the thyroid hormone goes up and down as the gland is dying. If you have a knowledgeable doctor, he/she may be willing to give you a small dosage of thyroid hormone to see if your symptoms improve. Without seeing what you look like, I don't know if you're already showing...
  15. rosetapper23
    A couple of suggestions: Take amino acid chelated zinc and a supplement with choline in it (BioSil is a good brand). If you have a zinc deficiency, you'll have thinning hair, flaky scalp (perhaps only in a few areas, though), perhaps some pimples around your mouth (above, two the sides, and on your chin), and you might also be having some problems with...
  16. rosetapper23
    It's one of the best clinics on the planet! You're so lucky to live close enough to be served by them. World-renown celiac expert Dr. Alessio Fasano heads up the clinic, and he is a phenomenal doctor.
  17. rosetapper23
    I use EO products, which are made from essential oils (hence, the name). The line is gluten free, and I've been very pleased with it. I buy their shampoo, conditioner, and hand soap. If you go to their Website, you can find out where their products are sold. Desert Essence Organix also carries a line of gluten-free shampoo and conditioners--it says...
  18. rosetapper23
    I attended the annual conference of the Gluten Intolerance Group of North America that was held in Minneapolis last June. At that conference, a number of doctors and neurologists specifically addressed the neurological problems that are now associated with celiac disease....and there are many, unfortunately. Yes, it can cause memory problems, learning disabilities...
  19. rosetapper23
    I agree with everything said so far. Cooking gluten-free is really quite easy--just be sure to toss out the soy sauce and replace it with gluten-free Tamari sauce. To find processed foods that are gluten-free, you can find a great list here: Open Original Shared Link With regard to baking, all you really need is Bob's Red Mill gluten-free Flour and...
  20. rosetapper23
    I'm lucky--we always celebrate Thanksgiving at my mom's house, and she has celiac, too. Since my son, mother, and I all have celiac, people are respectful of the menu, but, as we all know, it's easy to prepare gluten-free food so that it is identical to regular food. My mom had bought stuffing mix and baguettes from Mariposa Bakery (which only sells gluten...
  21. rosetapper23
    I know how you feel. Even though my family has been very understanding (but, then, a third of them ended up being diagnosed with celiac after I was), some of my friends have either acted irritated or thought my condition was ludicrous or all in my head. My boss even made jokes in front of me, rolling his eyes when I asked questions of servers at restaurants...
  22. rosetapper23
    Yes, the idea that DH is always symmetrical is simply a fictional "fact" in medical journals--personally, I don't think enough research has been done or data collected for the medical community to know one darned thing about DH. While my DH is symmetrical on my face, both my son and I get DH on one hand and on the sole of the foot on the opposite side. ...
  23. rosetapper23
    It's possible that you have two conditions going on. Yes, I DO believe that you may have a bit of DH, but acne around the mouth can indicate that you're deficient in zinc. Do you also have a little dandruff? This also indicates low zinc, as does floppiness of the tendons (only if the deficiency is quite bad). If you can find it, take amino acid chelated...
  24. rosetapper23
    Trader Joe's has an excellent B complex sublingual supplement (with B12), and it's inexpensive. I've taken it for years...and I also can't eat fish. As for Vitamin D3, I take Bluebonnet brand. Their supplements are so easy on my system, I can even take their magnesium/calcium liquid supplement with no problems.
  25. rosetapper23
    From what I remember from a study that was done several years ago, the results were as follows: If a product has been produced on equipment that also processes wheat products, there is a 70% chance of contamination. If a product has been produced in a plant that also processes wheat products, there is a 30% chance of contamination. The article stated...
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