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caek-is-a-lie

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Everything posted by caek-is-a-lie

  1. caek-is-a-lie
    I've done so well over the last couple of months, but tonight I made dinner and afterwards I wanted more, so I cooked more and put it on what I thought was my plate because it was exactly where I put my plate. But while I was eating it I picked off what looked like bread or egg. Weird, right? Turns out my boyfriend put his used plate on top of mine and...
  2. caek-is-a-lie
    I know how you feel. Doctors suck. I've gone through that with countless doctors for my Narcolepsy and the gluten intolerance. I went to my latest PCP for a year saying "I think I have food allergies" and he gave me no help. Then I went gluten-free myself and it worked and I went back to him saying do I need to be tested for Celiac since it runs in my...
  3. caek-is-a-lie
    M&M's and all Dove chocolate are safe to eat. I love the sugar free Dove Chocolate Cremes when I don't want too much sugar. They are just to die for!
  4. caek-is-a-lie
    I had a baking phobia, too, for a long while, but lately have been finding amazing replacements for old favorites that I haven't had in years. Plus I finally started trying to eat out at restaurants and have had remarkable success (knock on wood!) It's so frustrating at first--I wanted to just stop eating altogether!--but it gets easier once you figure...
  5. caek-is-a-lie
    Hmmm. From what I've read here, you need to be on gluten for at least 3 weeks before testing, preferably a few months. However there are labs that service the public directly, and some claim to have tests sensitive enough to pick up antibodies a few weeks after being gluten-free. There's also HLA testing, which is a genetic test that can tell you if you...
  6. caek-is-a-lie
    Pizza's tricky because the flour can get everywhere, even if they clean the area they're making gluten-free pizza in. But I've been eating at other restaurants lately...the kind with special gluten-free menus. I have had good luck so far. I just make it very clear to the server what my needs are down to the pots and pans, and they've been excellent about...
  7. caek-is-a-lie
    LOL that happened to me 2 nights ago. I had these giant slices of cheese pizza in my hand and I thought "no, I can't eat them" and then I was talking to someone and thought "screw it I'm hungry. I'm eating them" and ate them anyway, and then I was horrified "oh no I'm going to get sick!" Then I woke up and thought it was real for a minute or two. I thought...
  8. caek-is-a-lie
    Oh this TOTALLY happens to me. If I eat gluten I wake up at 2am with panic attacks worrying about the stupidest things. My heart races before I'm even awake, and those ghost dreams are the worst! I wake up paralyzed and can't scream and it feels like they're in the room. Of course, I have Narcolepsy from eating gluten and this is called Sleep Paralysis...
  9. caek-is-a-lie
    It does get easier. I was totally frustrated at first, too. I wanted to quit food completely because it was too much trouble. And I started doing this in November 2008...not that long ago. Since then I've found great replacements for many of my dining and 'treat' needs. I found a great chocolate cake to make for birthdays, cookies I can eat without getting...
  10. caek-is-a-lie
    I love Bob's Red Mill chocolate cake mix. NO RICE!! That's important to me. Make some butter cream frosting from the recipe on the back of the Ghiradelli cocoa power can, and you have the best chocolate cake I've ever made, gluten or not! My whole family demands this cake now for any occasion. :)
  11. caek-is-a-lie
    I have Narcolepsy, non-epileptic seizures, and anxiety from eating gluten and quite a few other people have common sleep problems, anxiety, depression, seizures, and other neurological problems from gluten intolerance. And not just on this forum. I've heard many accounts of people with sleep disorders being incorrectly diagnosed as bi-polar at first. When...
  12. caek-is-a-lie
    I thought paying $40 for a bag of flour I'd never tried before was a tad pricey, especially since I don't have much disposable income. Plus, I think it's made with rice and I can't eat that anyway. I subscribed to her mailing list, but it seems that the recipes and cookbook are useless to me since it always calls for using her flour and I wouldn't know...
  13. caek-is-a-lie
    I"m allergic to rice, buckwheat, and quinoa, but I get by just fine. I don't make any bread, but I've found quite a few Bob's Red Mill mixes for cakes, etc., made from corn, potato, bean starch, and sorghum. They work great. I eat gluten-free corn cereal, like Gorilla Munch. I also like Corn Thins instead of rice cakes. Other than that it's just...
  14. caek-is-a-lie
    Wow, your mom sounds like my mom, except her blood test was negative 10 years ago. Of course, it was just "below" a certain level, not necessarily zero. They never told us if we were actually at zero antibodies or not. So she's 70 and I keep encouraging her to go gluten free anyway, but she won't, I suspect. It worries me because she will actually...
  15. caek-is-a-lie
    Well, I'm in your age bracket, but I was already with my life parter when I started eating gluten-free. However, I had my neurological problems before I met him, so what I can tell you is this. And trust me because I've been in some baaaad relationships in the past. If you start dating and they aren't accepting and tolerant of your needs and won't...
  16. caek-is-a-lie
    I just use Bob's Red Mill Chocolate Cake Mix and it works perfectly every time. It tastes amazing and I am a hero to my family every time I bake it. I top it with the Ghiradelli butter cream frosting recipe on the back of the cocoa powder can. Oh it's to die for! I think I'll go for another piece right now! I've offered to make it for my sister's wedding...
  17. caek-is-a-lie
    Thanks, Fiddle-Faddle, and I believe you. You have a good point. Lobbying is a big problem in DC, and I don't believe for an instant that the NIH is immune. And don't get me started on the FDA. But at least when the NIH funds something, the pharmaceutical companies aren't right there in the lab dictating what we do. Maybe they influenced who got what...
  18. caek-is-a-lie
    Sorry for the third post in a row! You are right, but there's even more to it than that. I was reading yesterday about studies on the developing immune system and the effects environmental toxins, viruses, and allergens have on the developing fetus's immune system, and that a lot of our autoimmune problems today and other diseases, whether they be in...
  19. caek-is-a-lie
    I am a scientist and I can tell you this is not entirely true. Medical science is also heavily funded by the government, specifically the NIH. The last 8 years have seen a serious erosion of scientific funding by the Bush administration, who didn't think science was important or compatible with their fundamentalist beliefs, and current economic times are...
  20. caek-is-a-lie
    Here's my take on it, and you are all free to differ. Everyone here is gluten intolerant. It is the big umbrella we all sit under. None of us can tolerate gluten. Some of us are Celiac, and our immune system is attacking our small intestines. Some of us have neurological problems, and our immune system is attacking our brains. Some of us have...
  21. caek-is-a-lie
    I think he gives some people hope about their condition and/or treatment, particularly after he has made an effort to connect directly with the gluten-intolerant community through lectures and essays. I've never been fond of the practice, myself, as I'm extremely jaded and I've known specialists in other fields that people worship that are actually manipulative...
  22. caek-is-a-lie
    Yeah, what is up with that?? I said the same thing several times and they immediately said, "well it can't be that!" o rly? guess what it was, doc...
  23. caek-is-a-lie
    Boy I hear ya. The Stanford Sleep Disorders Clinic wasn't much better.
  24. caek-is-a-lie
    Thanks for the list. My kitty has been having bowel issues ever since we got him and it's confirmed not to be parasites. The vet has yet to recommend a food, but my first thought was grain allergy. Seems strange at first until I realized I never see cats eating processed grains in nature. I want to try a gluten-free, possibly grain-free product to see...
  25. caek-is-a-lie
    The ancient Greeks had Celiac and probably the ancient Phoenicians, Egyptians, and Africans before them. My guess is it's been around since the dawn of agriculture. The likely reason why there's such a high prevalence in Ireland is because it's an island, so it's going to have a larger "founder effect." Like dwarfism among the Amish. Genetics &...
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