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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GottaSki
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ARCHIVED Heat Intolerance And Joint Issues
GottaSki replied to GottaSki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not sure...will check my iodine levels! Thank you -
ARCHIVED Do I Need To Have The Biopsy Done?
GottaSki replied to pinksmashing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had an endoscopy that confirmed celiac. My blood tests only marginally indicated celiac. Everyone is different. I'm 44 and there was significant damage to my small intestine. I'll be having a follow up biopsy at a year -- docs are confident that I can repair my body with diet. I am glad that I had the endo, but we've taken a different path for my kids... -
ARCHIVED Where To Start
GottaSki replied to Ruby & Logans Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome Pam! We did not replace our utensils, pots, pans, tupperware, etc. We ran everything possible thru dishwasher on longest heat cycle and washed other items very well those first few weeks. I did buy a second cutting board for our gluten-free items. Our house has less and less gluten, but my husband and one of my kids still eats reg bread... -
ARCHIVED Where To Start
GottaSki replied to Ruby & Logans Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm.... Keep it SIMPLE at first, meat, veggies, fruit, rice, eggs, etc. You can do this. You will make mistakes, but will learn quickly. You will be frustrated, but will learn quickly. You may have some improvements, then some setbacks...and eventually more and more improvement Take it one day, one shopping mission... -
ARCHIVED Longing For A Gluten Lifestyle
GottaSki replied to Gluteneater's topic in Parents, Friends and Loved Ones of Celiacs
This is the solution in our home. My husband and kids are all onboard with gluten-free...but other family members and friends are confused and still think gluten-free is a choice we are making... On Sunday we had my sister and other family over for her birthday dinner...everyone was shocked because I was "able" to eat everything on the table. We served... -
ARCHIVED When Does The Constant Hunger Go Away?
GottaSki replied to River*'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
First few weeks of gluten-free one of my first changes was true hunger...I don't think I've been really hungry for a meal in years. A few weeks after that I became concerned that all the food would result in weight gain...opposite seems to be true...my weight seems to be improving and the dire hunger has subsided a bit...although still eating much more... -
ARCHIVED Heat Intolerance And Joint Issues
GottaSki replied to GottaSki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks Ted! Another great thought...just remembered we thought I had yeast problems back in the late 80s -- completely forgot that round of strange symptoms -- I'll read up on that again tonight! Have a great day! -Lisa -
ARCHIVED Feeling Even Worse On A gluten-free Diet
GottaSki replied to bianca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree...simplify! I'm at 3 months. Had a very rough time from about 3 weeks on - health wise. My symptoms got worse during that time....we became more diligent with cross-cont issues and ate simple foods - eggs, meat, veggies, rice, fruit. Hang in there - just takes time - I have only slightly improved, but am very hopeful for more improvement... -
ARCHIVED Heat Intolerance And Joint Issues
GottaSki replied to GottaSki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks! That is one possibility none of my docs or research has come up with. I'll read up on it and bring it up at my next appt. All thoughts on my mysterious symptoms welcome . -
ARCHIVED Heat Intolerance And Joint Issues
GottaSki replied to GottaSki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Heat Intolerance And Joint Issues
GottaSki posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm 3 months gluten-free. Have seen some improvement with bloating/gastro issues...am confident this will continue to improve. Docs are stumped by my EXTREME heat intolerance...it is like my internal thermostat is broken. Anything over 75 or even lower with humidity and I am cooked! In the Winter I ski all day nearly every weekend, Spring/Summer... -
ARCHIVED Hi! Newbie...
GottaSki replied to Lynnie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Lynnie! ~ I'm still a newbie, a much better informed newbie...about 3 months gluten-free. I read your posts...so very happy that you found a doc that will listen...that is the key!!!! You can read my old posts to see the long road to diagnosis I went through...there is a lot of shared frustration with the medical community here. Anyway, generally... -
ARCHIVED Has This Happened To Anyone?
GottaSki replied to adia117's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had read about severe glutenings, but mine have been very few, mostly bloating. Unfortunately, now I am with you...just had the most severe reaction of the past three months. I ate out for lunch yesterday (have done this successfully most of the times I've tried) severe bloat within an hour, really sick to my stomach within two hours and completely... -
I tried Sammy's gluten-free pizza my first week gluten-free and felt sick to my stomach. Was still learning so much during those first days I thought we'd try one more time (I'm nearly 3 months gluten-free and have been successful in the transformation). I had a chopped chicken salad with my own dressing -- figured it was safe. BUT I also had a tiny...
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ARCHIVED Trials For Celiac Vaccine Have Begun
GottaSki replied to amber's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm...after 43 years of damaging my body by eating the wrong food for I find out all I have to do is not eat Gluten to have some healing and be healthier for the rest of my life. The last thing I want is to eat gluten under any circumstances and with my funky chemistry the vaccine will probably make my body allergic to vegies! That being said...I do... -
ARCHIVED Was It The Sausage,red Wine Or Cheese?
GottaSki replied to Tra cy's topic in Coping with Celiac Disease
Many sausages are safe. I've had good luck with Johnsonville (suggested by others on this site), Aidells (listed NO GLUTEN on label) and just bought Cantella's based on ingrediants, but haven't tried yet I too have bad reaction to tomato sauces -- hoping this improves with healing, but rarely test it. As for wine...I drink most reds...I bloat with... -
ARCHIVED Newly Diagnosed
GottaSki replied to Bastet's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Symptoms vary, but endoscopic biopsy is the gold standard of Celiac Diagnosis. If you have eaten gluten your whole life it stands to reason that it will take time for your body to heal. I'm just over a few months gluten-free after nearly 44 years of gluten. I see some improvement, but not much yet...the bloating has improved. About 3 weeks to a month... -
ARCHIVED 3yo Negative Bloodwork, But Intense Rash Cleared Up Since Going gluten-free?
GottaSki replied to kmama's topic in Parents, Friends and Loved Ones of Celiacs
Ditto....trust your instinct. Blood tests for Celiac Disease rarely diagnosis, only indicate possibility of Celiac - an endoscopy is needed for confirmation. If you already know there is an adverse reaction to gluten you don't need to know anything else with a 3 year old. In the future if a diagnosis is needed...there are ways to accomplish this and who... -
ARCHIVED New With Questions
GottaSki replied to ering917's topic in Parents, Friends and Loved Ones of Celiacs
PS...I did find Elisabeth Hasselbeck's new book gluten-free Diet helpful and would have found it even more helpful at week one of going gluten-free. -
ARCHIVED New With Questions
GottaSki replied to ering917's topic in Parents, Friends and Loved Ones of Celiacs
Welcome! We have been at this a couple months and it is becoming much easier. The most helpful thing for me has been to search this site if I have a question about an ingredient or food product. Nearly every time I have search a specific item I have the information I need...whether it is gluten-free and whether other celiacs are able to eat it or not... -
I recently discovered that Advil Gel Caps caused my first ever rash. I have always used Advil or Generic tablets, not gels for pain. This past December I bought Gel Caps and had my first ever itchy rash...lasted for 7-8 weeks. During this time I was being tested for many different illnesses and was in the docs office often. As I became more frustrated...
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ARCHIVED Please Help Me Save My Marriage
GottaSki replied to ERR's topic in Parents, Friends and Loved Ones of Celiacs
Here is something my husband has had a difficult time with - Guilt. I went undiagnosed for our entire 22 year marriage. Over the years I have had many unexplained illnesses, was told it was depression or simply in my head. I knew this to be untrue (most of the time). My husband believed this to be untrue (most of the time). Now that I have finally... -
ARCHIVED Needs Help, Gluten Free Is Hard In College.
GottaSki replied to TrevFitz's topic in Coping with Celiac Disease
Not sure if you are in a dorm or apt. If you don't have a kitchen...maybe you can microwave or toaster oven some of the items I suggest. We are replacing our gluten containing foods...this does take some time to figure out and understand this would be difficult to learn if we were not already used to cooking our own food...so it is best to keep to simple... -
ARCHIVED Craving A Candy Bar!
GottaSki replied to LoveBeingATwin's topic in Coping with Celiac Disease
Resee's (full sized) have been in my shopping cart every week since going gluten-free - we also like m&m's both plain and peanut -
ARCHIVED Restless Leg When I'm Tired
GottaSki replied to glutenfreejenny's topic in Related Issues & Disorders
I've had the restless leg thing...but not consistently. I do have problems with my hands when I sleep with them in certain positions. I've also had a great deal sleep troubles over the past 20 years.