Lynayah

AliB: "The quarter to half a teaspoon daily is a guide."

Does this refer to a quarter to half teaspoon daily of sole mixture, or a quarter to half teaspoon daily of pure salt?

How much sole mixture do you drink per day, and what is the ratio? (Kindly forgive if you already posted this).

Best,

Lyn

Did you eat the pancakes plain or could it be the topping?

I have a large bag of Pamela's mix that I picked up several months ago that hasn't caused me any problems yet. I'll keep this question in mind when I buy my next bag of flour or one of Pamela's mixes.

Good question. I ate them plain, absolutely nothing on top.

It may be that I need to avoid all refined gluten-free foods for a while. I am thinking about trying the Specific Carbohydrate Diet until my body gets back to normal. The 8 week gluten challenge I went through really put my body through heck, and I now seem to be hyper-sensitive refined foods, mixes, etc.

Just a guess. We'll see. Thank you for your post.

When TJ's products list "no gluten ingredients," does the packaging also say that the item is manufactured in a plant that processes wheat?

Sorry if I missed it.

Thanks,

Lyn

Do any of you find that an Epsom Salt bath helps a bit?

yep, upper right back moving under the shoulder blade. one of my conclusive signs that I've been glutened

maile: I know it is off topic, kindly forgive me everyone, but I just had to say that your puppy photo is beyond CUTE!

I am very excited to learn about this! I went to the health food store today and purchased true, pink Himalayan Salt, which appears to be the best to use.

I purchased some to make the brine for the sole drink, and I also a salt grinder for Himalayan Salt, so I can use it on food.

Thank you for this information!

Have you heard of the book Water and Salt? It talks about Himalayan Salt specifically. I haven't read it, but found out about it while researching the salt on the internet.

I also found some excellent videos on Youtube by searching under Himalayan Salt Sole. GREAT info - thank you, thank you, thank you!

Sole (pronounced So-lay - as in 'sun') is salt saturated water - nothing to do with fish - which was why I suggested putting 'Sole salt' in Google as it would bring up the references to it.

You put a tablespoon or so of salt granules or 'rocks' in a jar. Add two to three inches of water and leave for 24 hours. If all the salt has dissolved you need to add more salt until granules remain undissolved - at that point you have reached saturation point of 26%.

That can then be kept and used indefinitely. You can keep adding more salt and more water to keep the level up.

The saturation changes the properties of the water and apparently renders it into a very healing substance - packed full of essential minerals.

You take just a teaspoonful in a glass of water every morning to get the benefit from it.

Where did you purchase the "rocks" or Himalayan Crystal Salt Stones you used?

Has anyone noticed belly improvement after following the Specific Carbohydrate Diet?

PS: Thank you, Brian, for your post.

An update: While my oral dose Miralax helped a bit with the C, it did not lessen the discomfort of being glutened, at least not for me. Next time, I will probably just wait it out. For me, it takes about a week to get to the other side of being glutened.

Hello,

This is my first post. My 8-yr old daughter is being treated for Leaky Gut by Dr Hicks out of Delavan Wisconsin. Although I am happy with the results thus far, I am looking for an MD experienced in nutrition who also takes insurance and I think I hit the jackpot with University of Chicago Celiac Center. I have yet to schedule her for an appointment. However, I need to make an appointment for myself because I believe I need testing also. Lyn, could you please explain a little about the testing and if they insist on an endoscopy right off the bat?

Appreciate any info....

T

Let me begin by saying how very happy I am with the treatment I've received at U of C.

Testing: It all depends on the person. I had to do an 8-week gluten challenge first, which left me highly symptomatic. After the challenge, they ordered blood work right away and, if memory serves, they went ahead and scheduled the endoscopy in case the blood work showed that an endoscopy was indicated -- frankly, I don't remember for sure if they scheduled it right away or shortly thereafter.

They are careful to test you in the best order for insurance coverage. As I understand it, not all insurance companies will pay for the endoscopy unless the blood work indicates it is necessary.

A quick word about the endoscopy: It was much, MUCH more comfortable and much easier than I expected it to be. Dr. Simrad did an excellent job.

I'd suggest beginning with an appointment for your daughter and then discussing your concerns with her doctor at U of C. If you use Dr. Stefano Guandalini, who has an excellent reputation, he will, I am sure, guide you as needed. He does not take adult patients, so you will need to use one of the adult specialists there. I am very happy with Dr. Simrad and would recommend her to anyone.

Soooo this may be the reason....

I woke up one day with extreme hip pain in my right hip a couple months ago. I nearly fell when I got out of bed. I was in so much pain I was almost to tears. My hubby had me take some naproxin which is for inflammation and the pain subsided somewhat. The next day I was fine.

I couldn't for the life of me figure out what my problem was. I was beginning to think I had migratory arthritis and was a hair away from going to the doc to find out what was wrong. It was warm and slightly red that day. I had a similar incident summer of 08. I was in Missouri visiting my hubby's family for the first time and I woke up the day we were leaving with a horrible pain on my knee..it wasn't inside...but on the outside like it was sitting on the bone and was red, swollen and very painful. I had to ride on the plane in the cramped up seat with this pain. The next day I was fine. I know I was ingesting gluten while there...it was impossible to avoid.

Yes, I compltely understand. As you quoted, my hip pain can be extreme, too. It especially hits hardest in the middle of the night, making sleep quite difficult. FOR YEARS I never knew it was related to gluten.

I'm glad to see that your symptoms seem to get better after only about 24 hours. I know 24 hours is a long time, but for many it can take longer. So, I guess that is a little silver lining, anyway. : )

Thanks, Lynayah! :-)

You are very welcome! Sending a hug.

Lyn

I've been reading about this. There is a book called "Going Against the Grain". The author suggests that some people can't digest any kind of grains. You might want to look into it.

Thank you for this post. I've ordereed this book and am looking forward to reading it. Much appreciated!

I eat 24 bil of probiotics a day and I am flat flat flat. Except when it's filled with dinner like right now lol

but it's cause I am about to burst I ate so much

be very well sweetie

What brand? Thanks!

My guess is that at least 80% of Celiacs know exactly the "The Celiac Belly" is. As I read through this thread, I could relate to at least one thing in each of them!

If you have only been gluten-free for a few months, or for years and years, I would recommend looking into Digestive Enzymes and a Probiotic. I consider myself "healed", but I started to take a full spectrum enzyme before my larger meals, or a meal that is different than usual, and it has really made a world of difference. At work, I eat lunch, but then return right after to running around, bend, lifting, helping patients, etc. Pretty much everyday I was uncomfortable after my lunch, so I started taking the enzymes. I would say, it makes me feel about 70% better (which makes the afternoon so much more pleasant). It's worth looking into if you have similar problems.

I can also relate to the weekend thing, when as soon as you eat some weekend food (which usually isn't all that out of the ordinary), you have problems. I used to have this all the time, but have gotten a good hold on it. I usually have a crazy meal on Friday night, and then stick to whats normal for the rest of the weekend. My crazy meal is usually something like homemade gluten-free pizza. Wild, huh?

To ensure the health of your gut, especially if you have D, a probiotic is a must. Highly recommend looking into it! We can't avoid the Celiac belly, but we can take steps to calm it down. ; )

Heather xxx

Please, what brand of pro-biotic do you use? Thank you!

Hi, Lynayah,

I'm from the US. At this point, I don't really care if the test isn't good. I can't eat any more gluten. I'm just not going to. Thanks for your encouragement, though. Good fortune to you.

deglu

I totally understand. Actually, considering U.S. insurance and how they deny coverage sometimes, medical costs, etc., it might actually be the smartest thing to do, especially if you are super dedicated to not eating gluten, the same as if it were Celiac (just in case you do have an auto-immune disorder instead of being gluten-intolorant only).

I wish you all the best, and I wish you all success in your gluten-free journey. See you around the boards!

Yes, I get it at the grocery store, but I'm thinking of ordering off of amazon as it's cheaper and they will sned it to me on a regular basis.

Thanks!

Hi, All,

Thanks ahead of time for all your help! I had been gluten-free for 6 weeks when my doc said he wanted me to eat gluten again and get a blood test for celiac. Is it possible I still have some antibodies? If I eat gluten for 2 week, will I have built them up enough? I've been eating gluten for 4 days now and feel absolutely horrible.

Thanks,

Aimee

You really need to do all the weeks. I did six after being partially gluten-free, and doc still isn't sure if it was long enough. The gluten challenge weeks, oh my gosh, I was so sick. It was a nightmare.

A gluten challenge is HELL. I completely understand what you are going through. It will be over eventually, though, and even thought it might seem like a million years right now, it will be worth it, and it will be okay.

Hang in there, and please feel to PM me if you wish.

Question: Are you U.S. or Europe?

If it is a Wal-Mart brand, it will say gluten free on it.

I need to check next time I am there. Thank you for the reminder.

Thanks for the info about TJ. He truly is the very best....I will miss him at Boma as that is our favorite stop. But I'm sure we will go to OHana's just for Chef TJ.....

mamaw

I hear he's also been known to appear at Captain Cook's. Not when I was at Cook's, unfortunately . . . but maybe if you ask for him, if he's around he'll come over.

He is such an obviously enlightened, immersed-in-love individual. Just thinking about him makes me smile!

Thanks for your post. Always GREAT to be in touch with you, mamaw! You're a doll.

I am learning that when I get glutened, constipation can be a problem, as I know it can for many.

I get horrible back pain in the kidney area that sometimes becomes so severe it mimes a kidney infection. Right now, I have a reaction so intense that raising a leg is almost impossible. Bending? Forget about it!

At night, my hips will hurt horribly as well.

I am wondering if a gentle laxative such as MiraLAX might help alleviate at least the kidney/back portion of my glutened symptoms. Any thoughts?

I mention MiraLAX because that is what my doctor recommended I take at the onset of my going gluten-free. I had taken so much Immodium during my gluten challenge, that I had become seriously backed up and needed to be "let free."

Anyway, I know MiraLAX is gluten-free and a gentle, safe laxative.

I should add that the constipation I have is joined with loose stools. I know it sounds weird, but it's like there's always something loose "there" pushing through and sometimes leaking through . . . even though I'm backed up. Go figure! This is all so confusing.

I plan to call my doctor to ask the same question, of course, but I would also be interested in opinions here. Right now, I don't even know how I'm going to be able to work tomorrow. Is there anything I might be able to do tonight (Sunday) to help myself?

I'm thinking that while MiraLAX might not help, it can't hurt. I will probably give it a try, but I'd like to see what others have to say first.

Thank you for any assistance.

Hi--and welcome Lynayah!

I don't know if it matters what kind of yogurt maker you use except that you want to make it so it stays on for at least 24 hours.

The idea in general for making yogurt is that you first heat the milk to almost boiling (roughly 175 degrees--or where the milk is starting to froth and about to boil) in a double boiler with water in the lower pot or (as I do) in a large pot placed in an even larger perhaps more open pot or stainless steel bowl with water in it. I use a large colander under the pot with the yogurt in it. Others just put the milk in large jars... Then let it cool sufficiently so that the milk no longer is so hot it will kill the yogurt (roughly 100 degrees or so).

I just put my large stainless steel pot into my old fashioned oven which always has the pilot light on. Alternatively one could put a drop light in (turned on) --or as many do put a heating pad on the lowest setting under the pot or jar of yogurt with a towel wrapped around the jar.

I have found (as others have here too) that using a small 1 cup package of Greek yogurt is best (plain and without additives of course) as the starter. From it use 2 or 3 tablespoons of yogurt, mix in with some of the warmed milk til runny and then stir into the milk with a wire whisk. Put the milk in the oven or yogurt maker or whatever and wait. You can let the milk sit even longer for even better results. The yogurt won't be as firm as store bought since no pectin, gelatin or added milk solids are put in there. However it is much better for you since all the lactose will have been digested out from the yogurt by the acidophilus etc.

I recently bought 2 cups of Greek yogurt to use as a starter. However after a while it lost its usual integrity9began to separate with whey rising to the top), and made less than perfect yogurt--so from now on I'm just getting the one cup at a time to use as starter.

You can make yogurt cheese too afterward, by dripping the yogurt over a colander lined with a while cloth for about 5 or 6 hours. It makes a delicious cream cheese. The resultant whey is good to keep by the way--useful in drinks to add to juice or in cooking. Has lots of acidophilus in it.

Wow, what a great reply! Thank you for all this excellent information.

I'm not sure I understand the 2 cups Greek yogurt losing integrity part -- did your homemade yogurt lose integrity due to your taking from your homemade yogurt to beging another batch, or did it lose integrity because you were using more Greek yogurt than needed? Sorry for my confusion.

Bea

I have a yogourmet and love it. I would suggest if you decide to buy it, get the second conatiner too. I did and make yogurt about every other day! Good luck with your selection.

Great suggestion, thank you. Do you use the Yogourmet starter as well?

I am buying a new yogurt maker and would appreciate opinions on which brand to buy. I am thinking of purchasing a Yogourmet (currently have Salton, lid is cracked).

Thank you!