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momxyz

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Everything posted by momxyz

  1. momxyz
    This very well could be a topic that should be posted elsewhere, but my "presenting symptom" almost three years ago was an itchy rash, so that's why its here. I know its not good to self diagnose, but at the same time I was dealing with the rash, I was helping my daughter through her problems. Long story I've told previously, won't repeat. But whenever...
  2. momxyz
    No, the grill is practically brand new, and nary a bun has touched it this summer! Also, my husband got this special tray for putting things like fish and scallops on. But, when I came home tonite, I pulled the bottle of sauce out of the fridge, and distilled vinegar was the second ingredient on the list. I have a few questions for you! 1. This wasn...
  3. momxyz
    I've been on this forum for almost exactly two years. My daughter has been gluten free for 2 years; my 2nd year aniversary is Aug. 10. I went gluten free to see if it would help with a perisistent, itchy rash of 10 months duration on my legs. It was so bad I couldn't wear shorts the summer of 09, and if I had to wear a dress, had to wear black pantyhose...
  4. momxyz
    I think there could be significant numbers of people who have Dh that don't get diagnosed. Just as with any other medical issue, it would seem logical that there would be a degree of variability to the presentation of the rash. So a "classic" case might be easily recognized. But, someone else's rash, which does not quite fit that classic presentation,...
  5. momxyz
    thanks for this post. Explains a lot of what I experienced lately, as I queried in another post. After previous "glutenings" exacerbation of the rash - my primary presenting symptom - was what I noticed first. 16 months out, this is no longer the case - to hear that new skin lesions are now one of your last signs corroborates both my recent experience,...
  6. momxyz
    I do believe my threshold is higher. My daughter, for example, is more sensitive than I. Would it make sense, that the longer I've been adopting the gluten free diet (16 months now), that this threshold would be even higher than when I started, because those antibodies have been eliminated over time? That there would be an even longer lag time between...
  7. momxyz
    thanks all. as far as continueing to eat gluten in order to pursue testing goes, I'm not really wild about that prospect. Yes it would be nice to have a diagnosis. But back in June, when the rash was reactivated after eating cake, I happened to have a physical. I talked to my physician about what I had experienced over the past year, and she told me she...
  8. momxyz
    It's been a long time since I've posted... because both my daughter and I have been doing well. Won't retell our stories....the recap is that alhtough neither of us have a formal diagnosis, the gluten-free diet helped my daughter in many ways, and going gluten-free helped me get rid of a rash with many of the hallmarks of DH. I had been experiencing a...
  9. momxyz
    18 years ago my mother in law had most of her stomache removed due to cancer. Immediately, this changed her life style, and, to some extent the nature of our family gatherings. First was the need to eat at planned times. She couldn't wait for a "fashionably late" dinner. Second, there were foods she could no longer digest. So, we had to ensure that...
  10. momxyz

    ARCHIVED Back Again

    momxyz replied to momxyz's topic in Coping with Celiac Disease

    oh yeah, she already did check Vit D! And my thyroid function. Both were low. and there was a parameter on my CBC that was a possible indication of Vitamin B deficiency. (I work in a lab, will explain that one on request) So, she prescribed Vit D, thryoid replacement hormone, a biphosphonate drug (for the osteopaenia.) I had already been taking supplemental...
  11. momxyz
    for the most part, I will "ditto" conniebky's reply... but I will also add that I do understand that it can be somewhat frustrating not to have an "official" diagnosis. Initially I didn't need the validation of an official diagnosis. First it was all about making my daughter better; the benefits I obtained from being on the same diet were observable...
  12. momxyz

    ARCHIVED Back Again

    momxyz posted a topic in Coping with Celiac Disease

    hi all, have not visited this forum in a while, mostly because life has been too chaotic. I have been working two jobs, while hubby got his feet on the ground after being laid off. This craziness, fortunately, will be ending soon, but safe to say, I have not had much time for social networking!!! My daughter is doing great on the gluten free path, independently...
  13. momxyz
    hey guys, sorry my reply has been a bit delayed, but following is my cracker recipe. Can't claim it as my own, was given to me by someone who helped me get started on this gluten free journey. I will give the the recipe they gave me originally, how I have used it, and other possibilities.. Brown Rice Flour Crackers. 2 cups brown rice flour 1/2 tsp...
  14. momxyz
    Well, this won't hit the salt and fat taste buds.... but I have a simple cracker recipe that does hit the spot when I need something to munch on. Basically brown rice flour, melted butter, water, seasoned with a little basil and marjoram... and brown sugar (more or less according to your taste). I like a slight sweetness so I add more than the original...
  15. momxyz
    I'm another "Other"! Although I voted "Eat to Live" I do appreciate good food, and go through periods where I really enjoy experimenting in the kitchen. Basically for me it boils down to time - when I am very busy and don't have time, or, I want to use my free time for outdoor activities, I don't focus on food very much at all, and like another poster...
  16. momxyz
    Not causing you problems..... that you know of. The severity of symptoms that people demonstrate is highly variable. And, some people do have problems and symptoms that aren't all that obvious and a lot of times, are not attributed to gluten intolerance. That's why many people are never diagnosed. Between my daughter and myself, here's a laundry list...
  17. momxyz
    I dont have an official diagnosis, "just" a response to the diet. I think the onset of menopause was the trigger for me... and would be curious if others have had this same experience.
  18. momxyz
    Another thought. I would suggest that you write a letter to the restaurant owner, describing your frustration and disappointment. Find and include an article about the growing number of people affected by gluten intolerance ... there have been several posted on this board. There have even been a couple on restaurants that are responding to this in...
  19. momxyz
    Frankly you were too nice. A "customer" is an "honored guest". However well the wait staff did during your meeting, his conversation with you afterwards negated any spirit of customer service at that establishment. Money talks.... I certainly would not have given him a 35% tip willingly - but I'm guessing that the tip was automatically added into...
  20. momxyz
    There are some really good - and experienced - cooks on this board; some folks even make their own flour blends. Although I really enjoy cooking, I don't have a lot of time for experimentation. However, over the holidays I used Namaste's flour blend to make my Christmas cookies, with happy results. Although I will make some adjustments in the recipe next...
  21. momxyz
    hi,I have some questions.... what were the neurological sypmtoms the doctor thought he was seeing? Was/is there anything else going on with your daughter besides the insomnia? And how old is your daughter?
  22. momxyz
    Mia, my daughter had primary amenorrhea and got really messed up with hormonal treatment for that... in researching I found a lot of connections between disturbances in menstrual cycles, miscarriages, and infertility and gluten intolerance and/or celiac disease. After five months on a gluten free diet, she got her period....unassisted and naturally....
  23. momxyz
    I've only had to attend 2 big family dinners (one wedding, one funeral) since going gluten-free (Aug 09). The wedding invitiation RSVP card included your entree selection so I chose the beef, thinking it was less likely to have sauce or stuffing. I was lucky in that this was the case. The vegetable served with it appeared to be OK and I just didn't eat...
  24. momxyz
    Try this web address Open Original Shared Link Advertisement.com/Articles/WangenGIG08.ppt#256,1,Testing for Non-Celiac Gluten Intolerance
  25. momxyz

    ARCHIVED Dh

    momxyz replied to hippo33's topic in Dermatitis Herpetiformis

    I had a rash that had all the hallmarks of DH... had it for over 10 months and no topical provided relief. I never sought formal diagnosis (long story) but went gluten free 8/10/09. Within a week or so I was already seeing a difference, in that the topicals that did nothing before, now provided relief. When I had a couple of pasta meals on a weekend...
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