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T.H.

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Everything posted by T.H.

  1. T.H.
    I wonder if, with organic produce, some of the added iodine in the soil might come from kelp. It's a very popular ingredient in organic fertilizer sprays, and very high in iodine as well, although I don't know how concentrated it is, or how much that iodine might really add up to, on the scale you're talking about.
  2. T.H.
    I would guess that you likely are safe, yeah. Most of the time, celiacs are pretty safe with regular gluten-free stuff. :-)
  3. T.H.
    If it's in the family AND you already have one auto-immune disease, your chances of developing another one are higher, yeah. Should go check with a doctor, definitely. That said - if the test for diabetes is negative? You might want to have your celiac blood panel done again, if they haven't retested you again yet (they should do this post-gluten free...
  4. T.H.
    No recommendation for a different one, but oh goodness yes, she should drop it. I had sprouts that just happened to be sold next to wheat grass, where it turned out the spoon was shared between the sprouts and the wheat grass, and wow was I sick as a dog. I wouldn't touch that stuff with a ten foot pole. Just ouch!
  5. T.H.
    It's always nice when a company is going out of their way to add that extra information in for our benefit! A short note to add on for any more sensitive celiacs or those with more severe allergies to wheat/rye/barley (really doesn't matter much for the average celiac, I don't think): The company is not actually listing every ingredient that is derived...
  6. T.H.
    If it were me, I'd reschedule the appointment for maybe a couple more months down the line. Right now, the Dr. who researched and persuaded everyone that the biopsy was the 'gold standard' has actually said that based on the most recent research, he no longer believes that. Too many people are testing positive by blood test, testing positive with symptoms...
  7. T.H.

    ARCHIVED Mcflurries?

    T.H. replied to SpiralArrow's topic in Super Sensitive People

    All right, a few things to know, then. Dextrose and glucose can be derived from wheat there in the UK. It's more likely than here in the USA. It's listed as safe for celiacs because "there is no significant gluten content" remaining after production. However, if you are sensitive, that 'insignificant' amount could still do a number on you. This pretty...
  8. T.H.
    So, a few questions: 1. When you read the labels, what are you looking for? Do you find gluten free products, or do you look for gluten ingredients only? Many foods that have no gluten ingredients are actually not gluten free, sadly. They can get gluten cross-contamination from nearby machines, from workers, from the fields where ingredients were grown,...
  9. T.H.

    ARCHIVED Mcflurries?

    T.H. replied to SpiralArrow's topic in Super Sensitive People

    I'd assume gluten cc first, too, especially if you are not having any other dairy issues at this point in time. When we went to a movie the other day, my son got an icee, and I watched the cashier hand a hot dog to the person ahead of us, and then when he went to get the icee, he grabbed the lid from the inside with his gluten coated fingers, and did...
  10. T.H.
    Admittedly, you might be developing a new intolerance, but honestly, if this has popped up rather quickly, I would take a look at your food supply, first. You haven't changed anything, but the companies and stores you buy food from might have. Do you buy anything processed that you eat frequently? Any new bottles/packages/containers of something that...
  11. T.H.
    I believe this is a change since I last saw anything about Hain here on celiac.com. It's new since I last spoke to them, anyhow. According to two different representatives I contacted, if a product of theirs says 'gluten free' on it, they now test every batch of the product to below 10 ppm. The brand names this would involve are: Gluten Free Cafe...
  12. T.H.
    Both my daughter and I had a terrible reaction to fritos before, too. She's not sensitive to corn much, best I can tell, but we both got our gluten reaction to that one like crazy (before I knew I was super sensitive). Although I was talking with the frito's company today and the young man said that while they didn't test their products for gluten before...
  13. T.H.
    Late July Organic chips might be worth looking at. They are GFCO certified, so if lay's staxx work with you, I would imagine these should as well. ( Open Original Shared Link ) I haven't tried them myself, but my son seems to like them. :-)
  14. T.H.

    Hello T.H. I just wanted to say thank you for the response you posted on my "Glutened?" thread a while back!

  15. T.H.
    I don't know about Steph, but many of my own issues turned out to be gluten related that I had no clue were gluten issues at all. Vertigo, insomnia, memory problems, joint pain, carpal tunnel - all went away after i got completely gluten free. I have two friends now with fibro that have major symptom changes when they are very gluten free. Not all my...
  16. T.H.
    Oh, yes, that would explain it. The different rules would affect a lot - much more restrictive definition for gluten free - and then wheat is used as a derivative for many more products in Australia than it is in the USA, as well. I imagine her book has a LOT of products that are no good that would be different here.
  17. T.H.
    It's sometimes a bit of trial and error to find that out. In studies, it varies. A recent one had most people just mildly ill with 50mg of gluten a day, but safe on 10mg. However, one member of the study had a complete relapse on 10mg a day. Pretty much, that means we're on our own, trying to figure out what is safe for us, sigh. A first step can be...
  18. T.H.
    You're not paranoid. :-) If it goes in your mouth, definitely ask about it. Polish, flouride, tooth paste, floss. Most of the time, it'll be fine. A lot of dental pastes and such are gluten free now. It's usually the flavorings that would be a problem. I have heard from some - although haven't investigated this much myself - that a few of the flavored...
  19. T.H.
    With the FDA commenting open and discussions everywhere about what is safe and what isn't safe in our gluten-free food, I was wondering: how many of us are healthy on this stupid diet, anyway? And what are the issues we have when we're on the diet? Are there any at all for most of us, or are most of us completely healthy now? In part, I think it would...
  20. T.H.
    I really wish I did. I've never found a study that looked at this exact issue. Most of the information seems to be anecdotal and observational. Just based on what I'm seeing with the people I speak to, genetics might be involved, because of the celiacs I know who are super-sensitive, if there are other celiacs in the family, there seems to be a higher percentage...
  21. T.H.
    That's the only way to eliminate enough to be safe, yeah. The sanitizer won't do anything on its own but move things around, but if you used it and then wiped it off, some gluten will come off. Pretty much the same with water rinsing and wiping with a towel - some can wipe off, but just not enough to be fully safe.
  22. T.H.
    My vitamin D levels were low and continued dropping for a year when I was on the gluten-free diet, even though I am outside in the sun quite a bit on a daily basis. I reacted to all the vitamin D supplements, as well as all food that is vitamin D supplemented, so I was pretty worried where this was going to lead. Then I got rid of as much gluten cc as...
  23. T.H.
    So sorry that it's been so upsetting and difficult for you! It sounds so much like what happened to me. I got sicker going on the gluten-free diet, and was losing weight like mad: 1- 1 1/2 pounds a day for the first few weeks. Starving all the time, miserable. Really, really sympathize, hon! So, lemme see what I can add that might help, if anything!...
  24. T.H.
    I'd vote for the gluten cc as the first potential culprit, too. Tons of drinks, tons of gluten snacks (depending on where you went), and very often servers and bartenders pick up glasses with fingers that touch the lip of the glass or pick it up with a few fingers on the outside AND the inside. We just ran into that going to the movies, where I let my...
  25. T.H.
    Just to check: What brand of rice milk do you use? A few brands give many celiacs some real trouble. But I'm more familiar with the recipes used in the USA. I'm assuming by your language that you're not in the USA, would that be right? If you're in the UK, they allow hydrolyzed wheat in a lot of gluten-free products (maybe the rice milk, or salad cream...
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