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T.H.

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Everything posted by T.H.

  1. T.H.
    It's really super easy, and cheap as can be (first time we get to hear that about gluten-free food, huh? ). 1 cup brown rice and 8 cups water - put in a pot. Bring to a boil. Simmer for 3 hours. It should turn out like a kind of slurry. Get a blender. fill it half with clean water from the tap, the other half with some of the rice slurry. Blend...
  2. T.H.
    I'm in the same boat as DilettanteSteph - haven't found a candy yet that doesn't make me sick. :-( Man but I miss that. My daughter seemed to do okay on Enjoy life candy bars, if I recall right, and she's on the sensitive side, too. Can you have dairy? A nice sweet kick that we've tried for my kids is just cream, sugar, and pureed strawberries, and...
  3. T.H.
    I'd definitely recommend that, too. We have a number of celiacs in my family and my son tested negative. We took him off gluten anyway, and his symptoms improved, so I'm a big believer in trying it out, now. Frankly, I think if there's celiac disease in the family, everybody should try the diet for a little while, just to see if it helps them out, because...
  4. T.H.
    ...although the paper for the envelope might not always be able to claim gluten free status, at this point. Some paper products are now using wheat pulp rather than tree pulp. It's not very prevalent in the paper industry, but it seems to be slowly growing as a market. I'm seeing it pop up a little now in eco-friendly or 'green' paper products, because...
  5. T.H.

    ARCHIVED Glutened?

    T.H. replied to SpiralArrow's topic in Coping with Celiac Disease

    Oh, very glad to know you are improving! My daughter's reaction to gluten does not seem as intense, pain-wise. However, when she's been glutened, everything that goes in her stomach for the next few days will set off the pain, almost exactly like you mentioned. She hates to eat or drink for days afterward, because she knows it's going to hurt. :-( So...
  6. T.H.
    I haven't seen any case of this happening in the USA. I know of one person who had an issue with cards and envelopes from...I think it was China, perhaps? But that was second hand information. The one thing you might want to be careful of is if an eco-friendly type paper makes up the envelope, actually. Wheat pulp is being looked at as an alternative to...
  7. T.H.
    Sadly, research into gluten induced neurological anything are still really in the early stages. Most doctors don't know about it. There's very few studies on it, so honestly? From what I've seen written about it from doctors, it seems like there is a LOT of guesswork on the part of the doctor, about what causes it, how it manifests, how it works, and what...
  8. T.H.
    applegate sausages are usually gluten free, I believe. Maybe this one would work? Open Original Shared Link Oh, hey, just found this link - a blog post with a list of lots of gluten-free sausage brands. :-) Open Original Shared Link It's a couple years old, so you might want to check anything mentioned there to make sure it is still gluten-free...
  9. T.H.
    Did you by any chance mention where you lived when you were speaking to them? Sometimes when I'm talking to a company and they have an either/or ingredient that something is derived from, it's often different by country. Like, wheat derived ingredient for Britain, but corn derived for the USA. Might be worth calling them back to see if that's the issue with...
  10. T.H.
    I really wish I knew the answer to that question, although I know that a yellow dye is also added because the more of these dyes added, the yellower the egg yolks are. Funky stuff! I wonder if you looked up beta carotene in humans if it might give some idea how it works? As I remember, a significant amount of beta carotene in our food will actually get...
  11. T.H.
    The anger is sometimes hard to deal with, but I think it helps to know that it's perfectly normal, because someone screwed up, and it screwed YOU. For myself, I was undiagnosed for about 20 years, and I'm not angry I wasn't diagnosed. they didn't even know the symptoms I had COULD be celiac disease back then, because I have atypical symptoms. But...
  12. T.H.
    Oh, that's a hard one! Wish I had the answer! I think it's kind of a 'yes' to all questions. It could be something else. You might not have reacted, or you might be waiting for the storm to come, or your reactions might have been masked by the fact that you are already having trouble. Or you could have a reaction to foods that you are consuming TOGETHER,...
  13. T.H.
    Gemini, there's two things you said that I'm going to quote here, but more because they seem to be fairly common sentiments towards the idea of super-sensitivity and I'd like to comment on them. Not trying to single you out otherwise. and These both seem to add up to a couple of common ideas about super sensitivity: 1) We don't know what...
  14. T.H.
    Re: symptoms. Inulin has a reputation for causing gastro problems for people, so it could definitely be that. Maybe find a few other foods with inulin that don't have similar ingredients otherwise to test that out. Might be good to call up the company and see how they ensure their food is gluten free, and some of the manufacturing practices. If...
  15. T.H.

    ARCHIVED Allergic Reaction?

    T.H. replied to Ellette's topic in Super Sensitive People

    With the breathing, I'd be so, so nervous doing it, honestly. Although it's not as scientific, it'd be much better to, when having a reaction, have someone check your heartrate. I know it'll be elevated because you'll be having a hard time catching your breath, but as I understand it, the heartrate jumps enough to be noticeable even with that, and will stay...
  16. T.H.
    I would respectfully disagree. I have seen a lot of 'this could never happen' and 'I don't react to this' and 'this would be too small an amount to react to.' I have never seen anyone systematically test a large sample size of wines in a controlled study. If you know of any, I would very much like to take a look at it. Really. I've been looking, because I...
  17. T.H.
    The only thing I can think of is to look up exactly WHERE the biopsy needs to be taken from. As I recall, it shouldn't be taken from the rash itself, but from the skin surrounding the rash, or it won't test positive. I'd double check that for accuracy, but I have heard of those who had the biopsy taken from the wrong spot, so it seems like something to pay...
  18. T.H.

    ARCHIVED Allergic Reaction?

    T.H. replied to Ellette's topic in Super Sensitive People

    Hmmmm. It almost sounds like an allergic reaction, but there's one way to double check that - check your heart rate. If it's very elevated, that's a good sign that you may be having an allergic reaction. I have a reaction with my throat feeling tight that is not celiac and not allergy that I'll pass on for what it's worth. It's called irritant induced...
  19. T.H.
    That looks awesome. My kids really liked plantains, but I haven't made them in ages. I'll have to go try some out for the kids! Thanks!
  20. T.H.

    ARCHIVED Inhaling Flour

    T.H. replied to john m's topic in Doctors

    Doc was right on the lack of research, but there's a lot of celiacs who have reported problems with inhaled gluten in areas where there is a high concentration in the air, like next to people baking with gluten flour. I would very seriously consider a mask, at the very least. You can check with an allergist - there are certain masks that can be worn for...
  21. T.H.
    Yeah, I keep hoping! So far, there is a common binding agent that was in all the ones I reacted to. My doc has been looking, along with the pharmacy rep, and they couldn't find one that didn't have that ingredient in the excipient list - I think that's the right word, LOL. How sad is it that the steroid is fine, it's just the crap they add on with it...
  22. T.H.
    Okay *cracks knuckles* let's see what pops here. I'm in the same super-duper sensitive boat with Steph, so some (possibly most) of what I have to say may not apply. I'll pass it along, just in case! Foods with wax coatings have ended up being a problem for me. It feels like a gluten reaction, but a very mild one. I thought at first that buying...
  23. T.H.
    Oh god, both of mine have said this, too! It just sucks out your heart and stomps it flat, doesn't it? When we got my daughter's diagnosis, she had a little idea of what it would be like, because I was diagnosed just 2 weeks before. She broke down in tears. We'd been on the way to the store when we got the call, so I was trying to help by picking up...
  24. T.H.
    I'd be wary. If you can tolerate the whole 'processed in the same facility' thing, which is sounds like you can, I'd still be concerned, primarily because the testing itself seems to be an issue. A while back I saw an article aimed at manufacturers who are thinking of using barley malt, and it said this: "It is a bit tricky to accurately test for barley...
  25. T.H.
    Haven't had these myself, but wikipedia had some good information on it, it seemed. Open Original Shared Link It sounds like, essentially, these often have an underlying condition that is causing them to develop...like Celiac Disease. So that's the good news, but there were low risk factors that would make me, personally, at least call up the doc to...
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