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emaegf

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by emaegf

  1. emaegf
    Actually that little "Contains:" message is by law required to be there if the product contians any of the top 8 allergens which wheat is one of them. Also having that label there is a good thing as well as the law. So any time you see that pass the product up it's not gluten free. The eight foods identified by the law are: Milk Eggs Fish (e.g., bass...
  2. emaegf
    No you can't substitute coconut flour for almond flour. It won't work. Coconut flour acts very much differently then any other flour. You would have better results if you found a different recipe for the cupcakes using the flours you do have.
  3. emaegf
    Blood results as well as endoscope testing will Not be reliable since you are already gluten free. More tham likely you may have false negatives do to being on a gluten free diet for the five weeks prior to testing. The blood tests look for the antibodies your body produces in response to the gluten you eat so when you remove the gluten the body has...
  4. emaegf
    I can save you a few weeks of torture and the gastrointestinal tests, you'll still need the blood work done though. Your blisters are characteristic of Dermatitis herpetiformis (DH) an autoimmune blistering disorder also a symptom some get with a Celiac. You need to see a Dermatologist familiar with Celiac and DH and have a skin biopsy done to check for...
  5. emaegf
    Two things come to mind - Most preshredded cheese are coated to prevent the shreds from clumping together. Try shredding your own at home. Second over heating cheeses results in the casein clumping just enough to make a gritty texture. I never use starch of any kind when I make alfreado sauce, just cream or milk, butter, cheese and a touch of white pepper...
  6. emaegf
    Mono & Diglycerides Monoglycerides and diglycerides are different kinds of fat made from vegetables and soybeans. (Most of the fat we consume falls into the triglyceride category.) These ingredients keep the ice cream from separating once mixed. Since only a tiny amount is used, monoglycerides and diglycerides do not contribute any measurable fat calories...
  7. emaegf
    I've read most Celiacs don't react until 20 ppm so a less than 20 ppm is supposed to be ok for us hence the threshold for amount allowed and still be called gluten free. I've also read that Celiacs don't react until 10 ppm so really no one but the Celiac knows for sure in my opinion. It would have been great if they required ppm to be listed on labels but...
  8. emaegf
    I agree with psawyer. The only thing I replaced when I was diagnosised was my toaster, everything else can be scrubbed and washed well to remove any specks of gluten that may be hiding. I even use a pan handed down by a family member with no problems with croos contamination. I just scrubbed it good and washed it well.
  9. emaegf
    Better than the premade ones you buy in the freezer section. Easy to play with as well. I liked it. Yes, expensive but if you're looking for coupons Pillsbury has $1 off one tub on their website. And coupons dot com has $0.75 off coupons on their page.
  10. emaegf
    Not Celiac related just normal muscles cramping. If you have had surgery they cut the muscles in places so they can access the area to do the surgery and the muscles usually aren't as tight like they used to be can be explaination but it does happen to those who haven't had surgery. Also if they are in the lower part of your abdomen on either side could just...
  11. emaegf
    It happens but means nothing really. You've been drinking a lot juices which are naturally high in sugar could contribute but nothing to be concerned about. As for gallbladder and liver issues you won't have color in you poo those both have very pale cream or white colored poo. Been there with my gallbladder. Not fun and not something you would miss the symptoms...
  12. emaegf
    Dermatitis Herpetiformis also known as DH. You need a skin biopsy which is done by a Dermatologist. If it's just on your back though I don't think it's DH. That shows on your arms and legs first not your back. DH lesions are more like little (or big) blisters. Mine are various sizes and while in control if I get gluten they stay on my legs. More gluten...
  13. emaegf
    I would say stop taking the probiotics for a while and see if your levels go down. No antibiotics or prednisone which is a steroid. Both can cause more problems. And continue to eat healthy.
  14. emaegf
    Agree a week shouldn't make much of a differance but if you want to eat gluten go ahead. But you only need a half a piece of bread or a few crackers a day. Also if you should have a skin biopsy for the rash to confirm dermatitis herpetiformis. Not hard to do it's done by a dermatologist and only takes a few minutes.
  15. emaegf
    Actually false negatives seem more common than false positives. I also have no idea about doing a endoscope on a child at two but you can call the gastroenterologist office at your local clinic and ask them. Or you can go online to either Twitter or Facebook and locater The University of Chicago Celiac Center and ask there. The person who takes care of...
  16. emaegf
    Yes, it is possible to test positive even if you had a negative test years earlier. If you do have negative test results again do a gluten free diet trial and see if it helps. Testing for Celiac is three fold 1 - Blood panel, 2 - Biopsy, 3 - Patient's response to a gltuen free diet. If 3 helps even if 1 & 2 are negative you may be nonCeliac gluten intoleratant...
  17. emaegf
    No not a legitimate claim. He couldn't clarify because it was BS, he didn't know what he was talking about. It's common for a doctor to diagnosis IBS when it's really Celiac but the tests come out negative. Diagnosis is three fold for Celiac and all steps must be considered before making a diagnosis. Testing should occur BEFORE patient does even a short gluten...
  18. emaegf
    Leave out the xanthan gum. That's what gave you the rubbery/gummy.
  19. emaegf
    You can cut them, place them in the pan and refridgerate them over night then bake in the morning. I've done it no problem.
  20. emaegf
    Isn't it great? The first time I was there all the employees stopped and the Manager told the ones who were touching the buns to play statue and not move until she tapped them on the shoulder again. She and two others were the only ones able to touch anything until they handed my bag to me. It was like a well rehearsed dance. I was very impressed and made...
  21. emaegf
    The typical reaction to being glutened is the same symptoms you would have had before going gluten free. Since each person is different their symptoms will be different. Open Original Shared Link Since she is still having problems only at night there is something else going on. If she was glutened two weeks ago that should be out of her system by now....
  22. emaegf
    Oh I had 2 skin biopsies both done wrong, the first dermatologist was taking part of the blister which just ruins the sample and the sample she was taking as "normal" skin was actually the one that should have been used for the diagnosis. The second time the lab saw something abnormal in the "normal" biopsy so I had more tests including a second set of Celiac...
  23. emaegf
    People with IgA deficiency require a different version of the antibody tests. The tTG and EMA tests have IgG versions and these tests will then be accurate for someone with IgA deficiency. IgA deficiency is diagnosed when someone has a total serum IgA test and the results are very close to zero (less than 10mg/dl). Sounds like the doctor didn't know anything...
  24. emaegf
    First off you said you were eating gluten free for 6 months before your biopsies were taken. Don't be surprised if they come out negative. You have to continue to eat gluten containing foods until after the biopsy is done or you can get a false negative. I'm surprised your doctor did them wiuth you being already gluten free for so long. If they do come out...
  25. emaegf
    Well the diagnosis for Celiac is supposed to be a 3 fold process not just one or two. 1 - Blood tests 2 - Biopsy 3 - Gluten Free diet trial Even if blood work comes back negative you can still have damage that can be found only by biopsy if both those are negative but the patient is till experiencing symptoms then a trial of a gluten free diet should...
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