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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    The short answer is that it will take time to see improvements. Whenever you change a lot of things at once it is hard to know what is doing what. Are you able to see a dietician to help you through this? It's important that you make sure you are meeting your basic nutritional needs, otherwise you will end up feeling unwell anyway. The fact that you are losing...
  2. gf-soph
    I have seen a lot of messed up family dynamics play out in my extended family, and I have seen good people remove themselves from family they love in self preservation (my father had no contact with my Aunt for about 10 years, fortunately now we do). Down the track sometimes things do work out and people change, but you can't live your life in misery because...
  3. gf-soph
    I totally agree with you - following the fructose and general FODMAP guidelines has been extremely helpful for me, especially in reducing bloating and normalising my gut function. It's amazing how quickly and massively I bloated up when I had my first high fructose foods after being on an elimination diet! If you're having a problem with raspberries, you...
  4. gf-soph
    Firstly, what your mother said is horrible! I can't imagine how I would react to something that stupid and hurtful from my mother. All I can assume is that she has some problems of her own that she is reflecting on to you, because that is not a particularly sane reaction to having a sick child, no matter what she thinks is causing it. I've had the experience...
  5. gf-soph
    I've had the old but well meaning dr before, he almost got me landed with neurological damage from low B12 - and that's the opinion of a heamatoloist I saw later on who was horrified. You are unwell, and you need a doctor who you can trust, and who knows what is going on. I woudn't even be on the gluten free diet if it wasn't for a chance meeting with a well...
  6. gf-soph
    I did do the 'one last meal' but it was mostly a lot of favourite junk like gluteny chocolate, marshmellows, bikkies etc. I will say it helped, but only because it reminded me that it really wasn't that great. I also felt pretty sick after, which helped. I think regardless of whether you had that meal or not, it's still really hard getting through the first...
  7. gf-soph
    You poor thing- you've been so ill, it sounds like you are doing so well to keep going as well as you are! There are lots of people here who know a lot about what you are going through, so you will probably get quite a few different suggestions to look in to. One thing you didn't mention is whether you have had blood tests to check the levels of your...
  8. gf-soph
    Some of the best advice I've seen is to get copies of all medical tests, especially blood tests. You can then post your results (make sure you include reference ranges as these vary from lab to lab), and get feedback from people here who REALLY know what they are talking about. A classic one is that the accepted minimum level for B12 is far too low, so drs...
  9. gf-soph
    It's always hard to start with, but trust me, it will get better. If you're stuck for substitute foods, let us know where you are and we can recommend brands we know are good. I've had 2 years gluten-free, and have found all the subsitute foods that I will ever need! The more I hear from others, the more I realise that we are actually pretty lucky to be...
  10. gf-soph
    A food diary is completely invaluable, I think anyone with ongoing problems should be keeping one. I am currently on an elimination diet, so have been keeping a detailed diary. You record exactly what you ate and time of day, then also write notes about any symptoms over the day, and a severity score for each. Even if your dr isn't that interested in...
  11. gf-soph
    Thank you both for your feedback. The more I look into this the more it seems like there are very different ways of doing it. I have had a lot of injections so the idea of an IV doesn't bother me really, it's more the idea of taking the prednisone. I am also on an elimination diet at the moment and all the medications and chemicals will disrupt this, but...
  12. gf-soph
    Hi all I have long standing iron deficiency, which hasn't improved after 2 years strictly gluten free. I can't do iron tablets, so I still need injections. These have kept me fairly functional, but it doesn't last very many weeks, and I am sick of the ups and downs. My problem is that the iron injections are painful and damage the muscle over time,...
  13. gf-soph
    I guess sometimes we do learn the hard way. Personally I wouldn't have done it. Reason why is that some of the gluten you inhale gets stuck on the mucous membranes, some of which you later ingest = gluten exposure. It wouldn't always make you sick if it was only a small exposure, but it's hard to know how much will do it. That's the same reason why I...
  14. gf-soph
    While it is definietly possible that it is gluten related, i thougth I would let you know the other things that have caused hand problems for me in case they are relevant. I had an RSI injury, mostly in the left hand, from a lot of repetitive typing. Chiropractic and massage helped, but I also had to adjust the way I was typing, and luckily it was just...
  15. gf-soph
    You really do have to adjust your expectations. And there's nothing wrong with grieving about what you have lost - options, convenience, enjoyment of some foods, or even missing out on social occasions. Not everyone will feel that way, but I think that plenty of people here do - I know I did! I think that you need to acknowledge and allow these feelings before...
  16. gf-soph
    You sound a lot like I did a few months back. I am now 3 months in to an elimination diet, and I have had periods of feeling amazing, and have identified some intoleranced I didn't know about before. If you're interested, have a look for a post of mine about the RPA elimination diet, as it's a complex diet to explain and I gave some detail about it there...
  17. gf-soph
    Just thought I'd add in that mushrooms are a problematic food for people with FODMAP problems, as they contain mannitol, which is a sugal alcohol like sorbitol. It's a type of poorly digested complex sugar. It could easily cause classic GI problems like bloating. I was always fine with a small amount of them, but never like mushrooms enough to have a big...
  18. gf-soph
    You can totally have an addictive type relationship with gluten - I used to work in a bakery and could totally gorge on the lovely fresh white bread. Would eat more than I wanted to, but didn't have the self control that I do with other foods. It sounds like it is so worthwhile you going gluten free for a decent period of time, you need to commit to at...
  19. gf-soph
    I'm pretty lucky in that regard - my family and close friends are pretty supportive. The don't always understand every detail, but they have seen me so sick for so long that they are supportive, and very encouraged by the results. The few times I have come across something that might explain my problems I tend to get really keen and want to discuss it, so...
  20. gf-soph
    There's no doubt it doesn't cover everything, I see it as one approach that might help in combination with whatever else you need to manage. I definitely have a problem with fructose/fructans, so there are a lot of allowed foods that I don't eat either, e.g. all legumes, garlic and leek, pears etc. The way I see the process is to use the information from...
  21. gf-soph
    I'm getting back into FODMAP after a false start, and it has helped the bloating heaps. I'm on the yahoo group, it's pretty active, well worth checking out. Thanks for posting the hedra page - I'm having a look now and it seems great!
  22. gf-soph
    I
  23. gf-soph
    I am on the diet as we speak! I promised someone (sorry to whoever it is, i'm a bit foggy) that I would give some more detail about my experience, it will be a long one so I will set up a new post about my experience. Short answer - I am 10 weeks in, and a couple of weeks ago I had 4 days in a row where I felt normal, healthy, totally myself. It was so...
  24. gf-soph
    As someone who is 10 weeks into an elimination diet, I can tell you a few things about keeping the diary! The way I have been doing mine is in line with what my dietician recommended. You write down the time of each thing you eat, and also record any symptoms, along with the severity (they use a 3 point scale where 1=mild (aware of it by tolerated without...
  25. gf-soph
    I think it will depend a bit on your general health as to how frequently you get checkups. To monitor the celiac, my Dr has used repeat blood tests to help see how the diet has gone, and it helped me to identify my glutening symptoms. I have been told that it can take 6 months for antibodies to reduce, and that was the recommended time to get those levels...
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