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woodnewt

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by woodnewt

  1. woodnewt
    My B12 was around 120 when I was diagnosed with celiac and has since gone up to very normal levels (>500). I have to take daily D3 drops because my vit D does not go up even with sun exposure. It was <20 and it is >40 now. I have never had iron deficiency, though I know it's common with celiac.
  2. woodnewt
    Most definitely, yes - this is a strong possibility, especially if you are recently recovering, and in the past was very ill. Dysbiosis of gut flora can also cause digestive problems, in addition to inflammation and malabsorption. I was basically living off of potatoes, meat and bananas when I was recovering a few years ago. I had to avoid vegetables...
  3. woodnewt
    Not my whole life. I lost my teen years to something else. I strongly believe I lost only my college years to celiac disease. I had a severe GI infection my first semester, during finals, and after that is when I believe I became gluten intolerant. I was not diagnosed, however, until years later and it severely affected my ability to live a functional life...
  4. woodnewt
    Infection can trigger celiac disease if there is a predisposition to it so yes it is possible that the parasites indirectly lead to the development of celiac disease. I am curious what types of critters these were. Tapeworms? Protozoa? You mention bowel obstructions so I would assume that roundworms were involved? Also I'm not sure that herbal treatment would...
  5. woodnewt
    This is scary. Very scary. Glad there is medical research being done on this. The article and video is interesting but doesn't explain any possible mechanisms causing the "allergies." Likely just too soon into the research. I wonder if a similar epitope is shared between meat protein and some sort of bacteria or immunogen (possibly from bacteria) that the...
  6. woodnewt
    Severe malabsorption and malnutrition can cause low cholesterol. So yes it can be connected to celiac. Mine used to be around 110. Sibling's was 70 but then he was also at death's door at the time requiring an emergency surgery and subsequent admittance to the ICU. I have never had cortisol levels tested. Last time I had a blood test my cholesterol...
  7. woodnewt
    Low WBC can be hereditary or related to medication, malnutrition, or infection. Prednisone is an immunosuppressant but usually artificially raises WBC. Acute or chronic viral infections can also cause low WBC. I wouldn't worry too much about it being slightly low and just follow up with whatever testing your doctors are recommending. If they recommend something...
  8. woodnewt
    Wow, thank you SO MUCH for posting this.
  9. woodnewt
    This is me. Ex-vegan. I eat no grains or pseudo-grains. Main starches are potatoes and bananas. I am intolerant to dairy (with one strange exception - sheep dairy is OK, goat and cow are off limits). I do not eat fish because I get an "allergic-like" reaction to it. I can eat certain brands of eggs with no problems (likely dependent on the feed). Daily...
  10. woodnewt
    I use paper towels, not soapy dishrags to wipe counters. Also doubt the soap being left on hands was the issue. It would not explain the other family member who does not do dishes. I am not the one who cooks and prepares his food. Dish soap is supposed to be amphipathic with one end of the molecule hydrophobic sticking to the oils on dirty dishes and...
  11. woodnewt
    Currently the research says celiac gluten intolerance is related specifically to certain grains including wheat, rye, barley, spelt (and a few others), but not to other grains such as corn, rice, or millet. As far as I know, there is no scientific research pinpointing other grains as culprit in celiac disease gluten intolerance. However, I think recovery...
  12. woodnewt
    Wow. This response is just inconsiderate and downright vicious. I explained what happened to me and then you attack my integrity? Why? I went through hell, my other family member went through a chain reaction of health issues and HAS NOT recovered - he is still going through hell, and you tell me this is either an in-your-head "if you want to believe it that...
  13. woodnewt
    Of course, very true. But it's also possible to be allergic to barley (IgE rx) without having celiac disease. I just think my allergy to barley is independent from my celiac disease. It's a separate but connected issue. If that makes any sense at all?
  14. woodnewt
    I also believe there was a "stress trigger" for the development of my celiac disease: I don't believe I had celiac disease until I turned 18, which was a few months after I developed a very severe gastrointestinal infection. I was always fine with any sort of foods when I was a child and teenager, with one exception starting in my mid-teens: I developed...
  15. woodnewt
    I seem to be "intolerant" to many foods, but as far as I know, the only "true" allergy I have is to barley. It's a classic (rash, asthma, swelling) but fortunately more mild, non-fatal allergy. I got the tests, and that's the only one that I have a Type I Hypersensitivity to. If I ever get insurance that covers allergy testing, I'll probably get re-tested...
  16. woodnewt
    Thanks for the info. I appreciate it. Maybe at some point I will get a full work-up but there is very poor medical care here and it will have to wait until I move. I do care about my health but this is not the place to go to the doctor if you don't have a very common condition.
  17. woodnewt
    This is not a common sense issue. You would think it is but it's not. No one really suspects dish soap, and if gluten is in the dish soap, every day exposure WILL happen. I want people to be aware of this because I don't want anyone else to go through what I did because of dish soap. The "cross contamination" issue that caused me to become extremely ill...
  18. woodnewt
    When I initially went gluten-free I was fine with other grains (rice, corn, millet) and pseudograins (quinoa, buckwheat, amaranth). However, after a CC issue a few years ago, even after eliminating all sources of gluten, I could not gain weight and still felt overall very fatigued and ill. Eliminating grains (and other problematic foods) has resulted in a...
  19. woodnewt
    This is something that has crossed my mind over the past few years, but I have been dismissing as probably just unusual food intolerance. I'm disinclined to go to the doctor and really have a poor view of doctors in general, so I figure I'm just going to leave things be as long as things can be managed by diet. After I became very ill and lost a great deal...
  20. woodnewt

    ARCHIVED Doctors

    woodnewt replied to Mateto's topic in Doctors

    I'm of the view that many doctors end up doing more harm than good. Iatrogenic illness due to mistreatment and misdiagnosis is also rampant but largely unrecognized due to the public's ignorance of medical and biological sciences. Not going into detail because it's too much of a rabbit hole to get into. I was diagnosed with celiac disease about 10 years...
  21. woodnewt
    Pretty much need to watch out for anything that could end up in your mouth. Going to emphasize dish washing soap, the kind you buy at the health food store in particular. Be wary of anything that says plant protein or extracts - it may be from vital wheat gluten.
  22. woodnewt
    There are a lot of different medical conditions from mild to serious that can cause muscle wasting. Whatever it is, I hope it's nothing serious! Do you think it could be possible he's just not eating enough protein? Milk is high in protein, and if he's cut that out he may have cut out a major source of his protein. RDAs for protein aren't necessarily ideal...
  23. woodnewt
    I can totally relate. I'm on a very strict diet as well - fresh meat, some veggies, minimal fruit, no processed foods and absolutely no grains. Practically everything social here involves food as well. It's really looked down on to not be able to eat what everyone eats, it's just part of the culture. I never really fit in well to begin with here, so the food...
  24. woodnewt
    Do you know if you are having a problem with lactose (milk sugar) or casein (milk protein)? The reason I say this is because there are dairy products with little to no lactose out there. Some hard cheeses, some yogurts, and butter should have negligible to no lactose. Also, very dark chocolate with no dairy added would only have trace amounts of lactose assuming...
  25. woodnewt
    I had a vitamin D deficiency (<20) despite living near the equator and getting adequate daily sun exposure. I take vitamin D3 drops x1 a day at a dose of 2000 IU. My D3 elevated to normal levels after about 6 months. This is the only thing that has worked for me.
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