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woodnewt

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by woodnewt

  1. woodnewt
    I focus on what I have, what I can do, and what I can eat rather than what I don't have, or can't eat, or can't do. I've learned to be thankful for what I have before it's gone. The primary thing keeping me focused right now is school. Returning student after a several year medical leave of absence. I was so sick, and so financially strained, I thought...
  2. woodnewt
    I would say the best brands of gluten free breads are Udi's and Kinnikinnick. I don't eat them anymore, but I used to. They are both very tasty IMO. I avoid all grains because through trial and error I have determined that they are detrimental to my health. I follow a diet that somewhat resembles a hybrid of SCD (Specific Carbohydrate Diet) and Paleo diet...
  3. woodnewt
    Bactrim is commonly given for UTI and is very effective. It's a sulfa drug and is supposed to be relatively safe, although yes, some people get really sick from it - like with any other antibiotic. When you take antibiotics, they kill all types of bacteria they are effective against - indiscriminately - so that means both the good bacteria in your body and...
  4. woodnewt
    In my own experience, it just took time. After a terrible issue with chronic (and unknowingly) consuming small amounts of gluten through cross contamination a few years ago, my weight dropped from a healthy 135 lbs (BMI 22) to around 90 lbs (BMI 15) over three months. Once I'd discovered the source of cross-contamination and eliminated the gluten, the weight...
  5. woodnewt
    Okay, I'm going to clarify this for you so you don't have to worry so much. Atypical Mycobacterial infection as a general term just means non-Tuberculosis Mycobacteria. You have probably heard of Tuberculosis, well, the full name for the bacteria that causes TB, both genus and species is: Mycobacterium tuberculosis. M. bovis can also cause TB. However, atypical...
  6. woodnewt
    There could be some sort of cross-contamination in your diet that you're not aware of, so you might want to go through all of your food items and double check. But otherwise, like others here have said, 10 cups of decaf coffee is a lot! If your gut's unwell, that is definitely going to be an agitant, especially if you're adding cream and sugar. Coffee was...
  7. woodnewt
    I don't know if 100% is ever possible Diagnosed around age 25ish It wasn't ever explained to me what celiac disease meant, or what gluten-free was other than avoiding bread/pasta (no concept of cross contamination), so didn't go "truly" gluten free until I became deathly ill and had to do the research myself, about 2.5 years ago 95%+ recovery, as...
  8. woodnewt
    I suspect a family member does, but I don't think he could change his eating habits anyway since it would disrupt his social life too much.
  9. woodnewt
    You are getting gas and bloating from the INULIN. Inulin is also known as "chicory root," "chicory" or FOS. It's being touted as a pre-biotic health food, but it creates a feeding frenzy for bacteria in your gut - both good and bad. Look for a yogurt without INULIN/FOS/CHICORY.
  10. woodnewt
    Just an update: Still have not been able to find out if TPN amino acids is gluten-free, but it wasn't the TPN making him sick. One of his nurses was doing something to him, and we only found out after a serious incident. We filed a formal complaint with the hospital as well as had him moved to a different floor, and his health began to pick up a couple...
  11. woodnewt
    Does anyone know if Ajinomoto Aminoscience LLC amino acids and amino acid mixtures that are added to TPN (Total Parental Nutrition) is truly gluten-free? My brother has celiac disease, is in the hospital, and is very ill and unable to eat because of an intestinal-related problem. He is extremely malnourished and needs surgery VERY soon, but they will not...
  12. woodnewt
    Perhaps he is reacting to the quaternary/disinfectant they are using on the chicken?
  13. woodnewt
    If you do searches on the net you will find quite a bit of info on the history of grains and living grain free. Best thing is really to read, read, read and study up on it and decide for yourself. Apparently grains were only introduced into the human diet in such large quantities about 10,000 years ago upon the start of agriculture. So it's a new food...
  14. woodnewt
    I take each day as it comes. No point in worrying about something that hasn't happened yet.
  15. woodnewt
    Once you start the diet the biopsy will not be an accurate method of diagnosing. I would highly advise you push to see a gastroenterologist and get the biopsy done while you are still consuming gluten to have a confirmation of the diagnosis. There are some doctors who will not accept a celiac diagnosis unless confirmed with a biopsy and this may work against...
  16. woodnewt
    That is correct. I do not eat out.
  17. woodnewt
    Facial swelling sounds like you do have a serious problem with eggplant at the very least, and it probably would be a good idea to avoid. A relative of mine gets a very bad rash if he touches the flesh of (peeled) raw round eggplants but he is able to eat them without problem if they are soaked and cooked well. He does not get rash from touching the long...
  18. woodnewt
    Time, I suppose. I am still not totally well but I feel so much better than I did several months ago. My entire lifestyle has changed: I removed all gluten cross-contaminated products (and there were a lot I was using/eating), turned our household completely gluten free, no more canned, frozen, packaged or processed foods, no eating out, everything cooked...
  19. woodnewt
    I do not know about false positives with the blood test, but as far as I know the biopsy is the only way to be 100% sure. You would need to consult a gastroenterologist. It is really important to know if you do have celiac or not, because the gluten free diet is something you are going to have to adhere to strictly and for life. Also, if it is something else...
  20. woodnewt
    Soy may be deeply ingrained in our food supply but we really should not be eating so much of it and especially not unfermented. Soy is meant to be eaten fermented, or if non-fermented, in very moderate amounts. You may have to look into supplements if you can't get enough calcium from your diet. I don't feel sick after eating soy but I avoid it anyway - had...
  21. woodnewt
    I've had no problems with nightshades. Peppers, eggplant, and potatoes are a regular part of my diet. I eat tomatoes once in a while... don't care for them much unless they're cooked well or made into a sauce. Do you soak your eggplant prior to cooking?
  22. woodnewt
    It is more likely the gastritis is causing your gut to be irritated by fruit. You may just be having a hard time with fruit right now and your gut needs some time to heal. When your gut's inflamed almost anything, even things you should be able to tolerate it, can agitate it. I couldn't eat any fruit (and a lot of other food) for several months without...
  23. woodnewt
    Most likely. But I wouldn't worry about it unless you are actually having problems with your leafy greens. When someone says they have a problem with nitrates it's good to bring the greens up, because usually it is something else causing the problems and nitrates get the blame. I eat my leafy greens since I don't have any problems with nitrates and see no...
  24. woodnewt
    Yes, there are varying levels of sensitivity. I used to be one of those who could actually eat wheat without feeling that ill, but I apparently pushed my body too far. I was diagnosed in 2004, went gluten-free in 2006, and didn't care about cross contamination (product with no gluten ingredients = safe to me), eating out at restaurants (trusting that if I...
  25. woodnewt
    This is not surprising. "Gluten-free" with no law or guidelines to back it up means "gluten free" is a diet fad right now. Never mind it is currently the only treatment for people who suffer from celiac disease. In corporate eyes it's a marketing gimmick to make extra cash. The logic is quite simple really. Can of PAM oil spray - you look at the back...
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