Jump to content

lynnelise

Advanced Members
 View Profile  See their activity

  • Posts

    470

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by lynnelise

  1. lynnelise
    There is a mill near my home that alternates grinding wheat and corn so I agree with the above to test yourself by eating corn on the cob not corn meal. You could be reacting to CC and not the corn itself.
  2. lynnelise
    Oh no! Feel better soon! I know how you feel though...I always wait til the last minute to go to the doctor because I'm never 100% sure it's not a glutening.
  3. lynnelise
    I always take Larabars everywhere. I research the area I'll be traveling to and find restaurants with gluten free menues. I play it super safe and don't eat anything unproven before the concert, pack pepto and advil just in case. Then depending on how late it is after I find a safe meal. Something I didn't think of at my last concert...beer. Unsure...
  4. lynnelise
    They did an ultrasound to rule out gallstones and when that was clear they did a HIDA scan that showed that my gallbladder was not functioning. When they took it out they saw the swelling and scar tissue! Hope this helps!
  5. lynnelise
    Larabars are amazing. Kind bars are good. Nature Valley almond crunch bars aren't bad. I once found a protein bar, I think they were called Bumble Bars, that was gluten free and fairly tasty. I've also made my own granola bars with gluten free oats and also some with quinoa flakes.
  6. lynnelise
    Coconut water can also be good for constipation!
  7. lynnelise
    Did you say in a previous post that you have gastritis? If that is the case that could be causing some of your discomfort. I occassionally eat something (either gluten or not) that causes my gastritis to flare and then I will have discomfort for several days after. Something I have found to really help is coconut water. It really soothes the stomach lining...
  8. lynnelise
    I agree with the above about not knowing who may be more understanding that you think. I got in an embarrassing glutening situation while me and my husband were out with another couple...turns out they have several family members with Crohn's disease and completely understand mad dashes to the restroom.
  9. lynnelise
    I have days like that too and it is so frustrating. I'm trying to get back into working out this week and was doing good until I pulled a calf muscle. Now I can barely walk plus I've had a sinus headache off and on for over a week. It can really get you down. I just keep reminding myself that even with this I feel 100% better than a year ago. This is...
  10. lynnelise
    I would say so. Everyone reacts a bit different and honestly every once in awhile I have a reaction that is abnormal compared to my usual. I would say the headache, joint aches, nausea are very common! Glad it passed relatively quick for you!
  11. lynnelise
    Try the elimination diet and if you still have pain I would suspect gallbladder issues. I had mine out, like the previous post said no stones but it was terribly swollen and adhered to my liver with scar tissue.
  12. lynnelise
    Well advice-wise definately tell your hosts. They are good friends so they will of course do what is necessary to ensure you have a safe and healthy visit! Pack lots of safe snacks and offer to go to the grocery store upon arrival and stock up on the stuff you need. Throw in disposable baking sheets and pans so you have less to worry about. This may...
  13. lynnelise
    I honestly think they are just ignorant. When you are used to doing something like serving yourself from an appetizer plate it's kind of ingrained in you and you scoop into it without thinking. When I'm out and an appetizer is ordered I say do you mind if I grab my portion first so I can be sure that no gluten will touch it? Everyone has been really...
  14. lynnelise
    I agree with getting the vitamin levels checked. I needed B12 shots for the first few months I was gluten free just to make me feel alive!
  15. lynnelise
    I love the Udi's bagels and the bread! I grew up in Arlington...too bad I don't live there now! I have to drive over an hour for Udi's!
  16. lynnelise
    I would give Panera another try just to be sure it wasn't a coincidence. I also agree that you should just tell them. It's nothing to be ashamed of!
  17. lynnelise
    Basically I like that it can be treated on my own without expensive drugs. I like that it can get me out of situations like eating gross storebought cake at work without hurting anyone's feelings. I don't like that it makes traveling a pain. That outings with friends always involve a big debate about where I can and can't eat. I especially don't like...
  18. lynnelise
    I think there is a chance your tests could come back inconclusive. It's typically recommended that you keep eating gluten until all testing is finished.
  19. lynnelise
    I always say if I ever go back to Key West I think I may have to consider the chocolate dipped frozen key lime pie. It was the best thing I ever ate and I'm not sure I could turn it down! lol!
  20. lynnelise
    It really depends on who I'm speaking with. I usually say I have food allergies or that I cannot digest gluten. If the person has some type of medical background I will go ahead and say I suffer from celiac disease. It was not diagnosed by biopsy but it is just easier because somehow medical people don't take you seriously unless you name a diagnoses.
  21. lynnelise
    Glad you got off mildly! I had a big gluten goof up this weekend but it was all my fault! I ordered a bunless mushroom swiss burger wrapped in lettuce. I took three bites to realize that it was mushroom gravy not sauteed mushrooms. I felt like such an idiot! I was practically in tears over my stupidity. My issues are usually bathroom related as well...
  22. lynnelise
    Oh well. No ideas it seems. Guess there will be no more dinners out with friends.
  23. lynnelise
    The funniest part for me was that I had been seeing my regular doctor for digestive issues, fatigue, and body aches as well as the repeated shingles outbreaks and he was all gung ho about cancer and HIV tests because of my weakened immunity...well I broke out with shingles on the weekend and had to go to a generic walk-in urgent care center and the lady there...
  24. lynnelise
    I have been gluten free for about a year now and have unfortunately gotten glutened several times. What usually happens is around an hour after eating I get sharp stomach cramps and bloating and then D. I usually have about 20 minutes to find a bathroom after the cramps start. Then I hang out in the bathroom for about an hour and later the fatigue starts...
  25. lynnelise
    My first outbreak of shingles was when I was 18 years old. After that I was good until last year when I got shingles 4 times. In less than a year. The doctor also tested me for HIV and various cancers. I was not gluten free at the time however. Once I stopped eating gluten the shingles outbreaks stopped. I also get DH and can tell the difference...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.