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rdunbar

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Everything posted by rdunbar

  1. rdunbar
    the healing process takes time. If you've still been getting trace amounts, or have had intermitant glutenings, it intereferes with the healing process. the microvilli cannot heal if they are still getting pounded with antibodies. your immune system has been used to producing antibodies as long as you've been exposed to gluten. (your entire life). it might...
  2. rdunbar
    i was a baker for 4 years and a chef for over 20. every few days, in a bakery, a thick layer of flour grows on every surface that you can write your name in w/ your finger. every shelf collects a layer of flour from just the airborne flour that settles. it's everywhere. every time someone scoops some flour into a mixer, or fills a bin with flour, poof...
  3. rdunbar
    +1 good post. also good to know that i'm not the only one who can't eat in resturants. i agree that symtom free is not the same as damage free, as far as we know. i've heard bad advice on the board before that "; it's ok to eat in resturants that have gluteny kitchens, i'm soooo sensative and i do it all the time, no prob" it's frustrating to hear...
  4. rdunbar
    federico biagi, "a milligram of gluten a day keeps the mucosal recovery away: a case report" nutritional reviews 2004 found this in "The Gluten Effect" by Drs.Petersens
  5. rdunbar
    i wouldn't call DH a 'mild form of a rash'. maybe it's not DH? there are lots of other skin problems that gluten seems to have an effect on; that is, it improves when removing gluten from the diet. apparantly, people have had psoriosis and eczema improve on a gluten free diet. DH is another can of worms though, being full on autoimmune. DH in my...
  6. rdunbar
    I don't trust products that claim 'gluten free' to be gluten free, so why would i trust one that doesn't?? i trust sweet potatoes and meat and vegetables (especially with skins) to be gluten free, thats it. even then i'm not 100% sure. someone could have injected it with a syringe!! (just kidding), but no, i do feel THAT paranoid about gluten the more...
  7. rdunbar
    a study showed that 1/60th a teaspoon of wheat flour a day was enough to prevent intestinal healing in celiacs. that makes the amount of gluten in 1/60th a teaspoon super tiny, as there are 100s of protiens in wheat besides gluten. this is the good part: they havent done studies with even smaller amounts, so it is possible that it's ditto for 1/2 that...
  8. rdunbar
    if you are just beginning the healing process, i think it's best to be ridiculously careful about avoiding even the faintest hint of gluten in your life. since the damage is coming from your immune system creating antibodies, you have to stop it from doing so to give yourself a chance to heal, and that only happens if it doesn't sense the presence of gluten...
  9. rdunbar

    ARCHIVED Brainless Neurologist

    rdunbar replied to rdunbar's topic in Doctors

    ya, the orginizers were really nice. I learned that cyrex labs is now doing testing for more than just IgG, and IgA, but for an array of related antibodies, gliadins 15, 17, 33, glutenin, gluteomorpins, ect... the more limited tests could explain false negatives. also about wheat deamadization, which is pretty scary, what they do to wheat chemically...
  10. rdunbar

    ARCHIVED Brainless Neurologist

    rdunbar posted a topic in Doctors

    I went to a lecture/ meeting of a gluten free group where i live in marin, california. the presentation was by Shiela Wagner, who was great!! i learned some new things, and was pretty impressed. i also met a few people with celiac like myself, including someone newly diagnosed who needed some basic pointers ( i've tried to direct him here a few times). so...
  11. rdunbar
    thanks, it was a while ago. i had eaten the same thing at several other PF Changs in the past with no problem. at this point, i just try to look at it from a risk/reward perspective; i know i'm capable of bringing my own food with, so i don't have to eat out, so the reward is small, and the risk is great, even if it's not likely, getting glutened is too...
  12. rdunbar
    i went to PF Changs, ordered nothing but steamed chicken and spininch, with no salt, no nothing. just 2 ingrediants. i was really emphatic with the server that i was really sensative to gluten, no sauce, no nothing, and i still got severely glutened. you explain it to me, if it's not CC?? that was my last experience at a resturant, and they are supposed...
  13. rdunbar
    so, he's a jerk, and an idiot. at least you can leave the room, and chose not be around a jerk and an idiot. think about it, he doesn't have that option; feel sorry 4 him.
  14. rdunbar
    i totally agree. i got a bunch of documents from my uncle about my family history recently; there was one description of a family member many generations back who "cooked all his meals on a campfire", and rode his horse from Texas to Missouri when he was in his 90's!!
  15. rdunbar
    i googled it, and kale has 1,3 micrograms of iodine per 100g, and cod has 99 microgrmas for a 3oz serving, which is @ 100grams. green beans, (another one of the few ingrediants i even eat) has 3 micrograms. looks like spinich has even more, and i eat that. i'm going crazy, do i have to stop eating vegetables now??? i am so mad right now. i have no idea...
  16. rdunbar
    OMG im eating some kale right now as im reading this w/ chicken, a carrot, a sweet potato, green beans. i didnt know kale is high in iodine! I'll try dropping it. thanks so much!
  17. rdunbar
    i've wondered about that myself; i'm being told to avoid what is considered a nessisary nutrient. i've noticed an improvment since i cut out iodine, and actually remember having bad flare ups in the past when i was in mexico eating fish every day. i take a little fish oil that has a tiny tiny amount of iodine. how much do you really need??
  18. rdunbar
    easy for her to say, when she doesn't have to deal with herself. i don't know if it defines us, but it does limit us. i've had to accept it, and get used to it, that i can't spontaneously go on an outing w/out having a meal or two to take with me. I don't eat out though. i'm done with it after going to PF Changs, ordering nothing but chicken, and spinich...
  19. rdunbar
    don't they use wheat paste as a glue when making the wooden wine barrels?? if so, it stands to reason that trace amounts are in wine. last time i tried a sulfite free white wine, it made me feel terrible. could be that alchohol is'nt for me.?
  20. rdunbar
    okay, i really really recommend ordering "The Gluten Effect" by Petersens from Amazon, 11$. it will give you a good idea about what is going on, and why what your derms/ docs are telling you is uninformed, misguided gobbleygook. like, No, you DO have to have to use 100% gluten-free body care products. i would go yell at this idiot who told you this lie...
  21. rdunbar
    i just eat meat, vegetables and fruit. i'm trying to avoid anything that can have a chance of being contaminated. for me, it's not 'is it contaminated ?', it's 'is it possible that it's contaminated.?" if theres a chance, i don't take it if i don't have to. and it seems like there is always a risk. w/ gluten free flours, and other processed foods, you...
  22. rdunbar
    no, i don't have a significant other, or relationship ; i have my own apartment, and kitchen. theres no pet food. i used to do catering, but i quit over a year ago, when i realized what was happening,
  23. rdunbar
    thanks, i checked the website for the laundry soap i use, ecos, and they claim gluten/casien free. i only use soap from gluten-free savonnirie, which i love, and toms from maine toothpaste as body care products. thats why i'm racking my brains, because i feel like i'm going way way further than most ppl, and the DH keeps flaring up. eating out anywhere...
  24. rdunbar
    I really only eat a limited amount of ingredients for over a years now. meat, (beef,lamb, chicken) ; greens like kale, mustard greens, squash, carrots, sweet potatoes, lettuce, avacado, lemon, olive oil, cocunut oil. no nightshades, no broccoli, asparagus, no high fructose fruit like stonefruit, bananas ( and i love bananas) i don't make any exceptions...
  25. rdunbar
    thanks. I've actually never had a biopsy, and have no formal diagnosis for celiac either. I'm still not clear on if a DH biopsy would even be reliable if you're not consuming gluten.? In any case, you could not offer me a sum of money big enough to get me to consume one iota of gluten if that was nessisary for the test. I know what happens when i get...
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