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Skylark

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Everything posted by Skylark

  1. Skylark
    Can you substantiate this, please? I believe it's a rumor and no manufacturers have said anything about belts with gluten when we have written and asked about CC.
  2. Skylark
    With a TSH at 0.1 and still hypothyroid symptoms I think you need to ask for an endocrinologist referral. If she refuses that, insist on a second opinion within the practice group you're seeing. Ditto the celiac testing. If all else fails, I think you can get a Canadian home celiac test kit shipped to the US. Open Original Shared Link
  3. Skylark
    My asthma is still a mess and flu means a nasty round of bronchitis. I get mine!
  4. Skylark
    I don't understand your statement "biopsy which showed flat villi, biopsies came back negative". How is flat villi negative? The combination of transglutaminase antibodies and villous damage is the "gold standard" for diagnosing celiac. The other things that cause flat villi (giardia, radiation poisoning, tropical sprue) do not cause celiac antibodies...
  5. Skylark
    Yeah, it's not recommended for folks with autoimmunity to get tattoos. They're kind of scary because there is essentially no FDA regulation on the inks. We're more prone to sensitivity and allergy than folks with normal immune systems and once the ink is in your skin there's almost no way to get rid of it. I wanted a tat about ten years ago, even had drawn...
  6. Skylark
    I'll try but the research is kind of sparse. What's known is: 1) Some celiacs are intolerant to dairy, and the reaction is to casein rather than lactose. This has been demonstrated very convincingly and is NOT a result of CC, or cows eating wheat. It is also not an allergy. 2) The reaction is a cross-reaction where anti-gliadin IgA recognizes casein...
  7. Skylark
    Isn't sticky beyond belief the whole point of a carmel apple?
  8. Skylark
    Stupid doctor. There are studies showing that gluten antibodies in people with celiac disease can cross-react with casein. It is a different part of milk than the allergenic fraction, so it is NOT related to milk allergy. For you, casein may be working just like gluten. You need to go as carefully casein-free as you are gluten-free and see if...
  9. Skylark
    If you're in the US and don't tolerate carmel color, it's not a gluten issue. It's made from corn or the package has to declare wheat. I agree with T.H. that you really don't quite have the diet right yet. You have to get certified gluten-free steel cut oats. Bob's Red Mill makes them. Chinese food is always a no-go. Even if you order a dish without...
  10. Skylark
    I don't think it's ever polite to eat something in front of another person and decline to share. That's just me. I only get out gluten-free things I'm willing to share when I have company over, like corn chips or inexpensive rice crackers. If I'm the one doing the cooking, the whole meal will be gluten-free. It's just easier all around.
  11. Skylark
    I don't know about the carmel apples. I've found flour in carmel sometimes and the ones at the fair never have ingredients. I get candy apples, the ones that have the red hard candy glaze on them. I've never seen gluten in a candy apple recipe.
  12. Skylark
    As long as you go right back on gluten a week and a half shouldn't mess up the celiac tests. Good luck! I had an itchy rash on my hand so I know how annoying it can be.
  13. Skylark
    Your Dr. is offering good advice to follow up with GI doc. Anti-gliadin probably means you're gluten sensitive but you might not have damage or autoimmunity. You probably need a biopsy to figure out what's going on. Good luck!
  14. Skylark
    Oh, geez. Sorry you didn't get any good answers. I know how incredibly frustrating that is to KNOW you're ill but have normal labs because I went through it this spring. Turned out my labs looked OK but I was still hypothyroid. I had to figure it out by reading thyroid books (I suspected it was thyroid because I have Hashimoto's). Maybe there are...
  15. Skylark
    Unlikely to have something is not the same as no chance at all. About 1 in 100 celiacs don't have the common genes.
  16. Skylark
    Sounds to me like your thyroid isn't as regulated as you think it is. Tired + weight gain = hypothyroid. All our endocrine glands are tied together, so your insulin response may be "off" as well. Unfortunately, many doctors blindly treat hypothyroidism to "normal" TSH instead of looking at your symptoms.
  17. Skylark
    odd. double-post.
  18. Skylark
    If you're going to play around with eating gluten, you really need to get the endoscopy to be sure you're not celaic.
  19. Skylark
    This is great to know! I have some promethazine around for migraine nausea. I'll try a little at bedtime next time I'm climbing walls with anxiety from getting into gluten.
  20. Skylark
    No, celiac is an autoimmune reaction triggered by gluten. Nobody breaks down gluten completely, but it doesn't cause problems in non-celiacs. In celiacs cells with the DQ2 and DQ8 genes get hold of the poorly broken down bits of gluten and teach the immune system that gluten is an invader. Somewhere along the way the immune system also learns to attack...
  21. Skylark
    The major cat allergen is in their saliva too.
  22. Skylark
    Since dairy seems OK I'd go off wine and challenge with that first. Wine has yeast, sulfites, and all sorts of food chemicals.
  23. Skylark
    Look what I found! A video on how to make gluten-free baklava. It looks like a ton of work though.
  24. Skylark
    Without the genes you are most likely gluten intolerant. There isn't a test for that other than response to the diet. You could gluten yourself up and get the biopsy if you're really curious but it may come back negative. Remember that your doctor does not control your diet. It's fine to stay gluten-free and simply not tell him.
  25. Skylark
    Chronic GI trouble here. I didn't know all the other stuff like canker sores and depression would also go away.
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