Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    Yes. If you try a forum search, you should find a lot of threads!
  2. Skylark
    DGP is considerably more sensitive than the other tests in the celiac panel.
  3. Skylark
    Old thread but an interesting topic. Like Mushroom, I avoid canola oil. I don't worry about it in baked goods, but I don't cook with it. I don't care to eat erucic acid and canola can be GMO. I use olive oil for most things and peanut oil for frying.
  4. Skylark
    That sounds like a really good solution if you like giving the kids a lot of freedom in the kitchen! If I were in your situation, I would also let their mom know about the crazy cost of gluten-free specialty food. She probably has no idea we have to pay $5 for the luxury of a tiny box of cookies or $7 for a loaf of bread. That way if she's around and...
  5. Skylark
    I had to divide my dose of T3 for a while or I noticed palpitations and a little tremor a couple hours after taking the pill. Like you, I dropped it to 12.5 but it wasn't enough. I found I could take the second half of the pill in the evening to get up to 25 mcg/day and avoid the side effects. The other thing you can do is look into having a compounding...
  6. Skylark
    Are you on Lipitor, Crestor, or any other cholesterol-lowering drug?
  7. Skylark
    Osteoporosis articles are all over PubMed. You shouldn't have any trouble finding a bunch to read. The most interesting recent discovery is that TSH may have a direct affect on osteoblasts. It's clear and reasonably reproducible that extreme suppression of TSH to below 0.3 or 0.1 (depends on the study) causes osteoporosis. I haven't read as much on T...
  8. Skylark
    People who have no problems with gluten go on and off it at will, with no issues at all. It's no more of an issue than deciding not to eat strawberries for a couple weeks. You probably go on and off various foods like seasonal produce all the time without thinking anything of it. For people who tolerate gluten, it is digested with no particular inflammatory...
  9. Skylark
    Thousands and thousands. There is an osteoporosis risk with over-suppression of TSH, but that has made doctors too conservative. Apparently people who were using thyroid for weight loss had spectacular osteoporosis and it really scared doctors. Even worse, the American Endocrinology Society promotes treatment with only T4 for almost everyone because of...
  10. Skylark
    Sorry the kiddos are feeling so punk. Research shows you won't reliably get a relapse unless you eat gluten for 3 months so you're doing the right thing. You don't want to challenge too short, then wonder if the biopsy was right if it's negative. Genetic testing is not diagnostic at all. About 30% of the US population carries a "celiac" gene, but...
  11. Skylark
    No, not the Aussie stuff. This. Open Original Shared Link
  12. Skylark
    It's a little surprising what going off gluten can do when you're sensitive to it. You'd think it would be like deciding you're not going to eat strawberries or nuts but if you're sensitive it's totally different. For some people there is a mild opiate-like effect from gluten and when you remove it from your diet you go through a withdrawal. It's typically...
  13. Skylark
    I'm on the Mylan generic T3. I'm less worried about generic T3 than T4 though that might be a mistake. My Dr. just took me up to 150 mcg of T4 and I'm on 25 of T3. My poor thyroid gland is shot.
  14. Skylark
    This is where I learned about thyroid and cellulose. I'm assuming if it's bad in dessicated, it's probably also bad in synthetic. It's also one of the places I learned about T3 and while I'm not on a natural thyroid I do take synthetic T3 as well as T4. Open Original Shared Link Open Original Shared Link
  15. Skylark
    The hospital results seem a little garbled. Is the Endomysial 1:80 your son's result and <1:10 the "normal" range? If he has both positive endomysial and that high TTG twice I wouldn't think a biopsy is necessary. It's hard to get antibodies in babies so celiac is pretty certain. If he were my kid I think I would take him off gluten and ask for repeat...
  16. Skylark
    I eat Fage too, plain. It's so good it doesn't need flavor.
  17. Skylark
    I just went to the Dr. this morning and he's willing to switch me to either Levoxyl or Synthroid from my generic. I strongly prefer Synthroid because it is a sugar base. Most other tablets including Levoxyl are made of microcrystalline cellulose which can bind T4, making it harder to absorb and I still have some malabsorption issues. I have to chew up my...
  18. Skylark
    I don't think thyroid checking is routine during a physical unless you have symptoms. Also, there are some issues with older TSH reference ranges. Lab slips will often say TSH is normal up to 5.0, but endocrinologists say if it's above 2.5 you may be hypothyroid. You should absolutely have a full thyroid workup again, because it is one of the most common...
  19. Skylark
    Really? I'll watch for your update.
  20. Skylark
    Major depression + fatigue + brain fog + insomnia + celiac = get your thyroid checked. And heck, yes it's frustrating. Not having enough energy to get through the day is awful and I know how horrible it feels because it's happened to me. You also sound somewhat depressed, which makes everything seem far worse. When I feel the way you're describing,...
  21. Skylark
    I've had to send back salads like that. I had one served in a deep fried tortilla shell that wasn't mentioned on the menu at all. Nobody has ever charged me when I explain that I was going by the menu description and that it doesn't mention a major allergen. I would have gotten the manager, explained the problem, and flatly refused to pay an upcharge....
  22. Skylark
    I just answered your other thread. If I had your issues with celiac antibodies staying high for no reason, I would stop eating processed foods. Period. Get the antibodies to go down and then start to figure out what you can tolerate. You can tell there is no gluten in a scrubbed, whole tomato. You can't tell if there is a trace of gluten in a can of...
  23. Skylark
    Ah, that makes more sense. You have a low positive on the celiac screen, but the other two major celiac tests (TTG and endomysial) are negative. The DGP test in the celiac screen is the most sensitive of the three tests by far, so it is reasonably common to be celiac with a positive result on only that one test. It means you have antibodies to DGP (deamidated...
  24. Skylark
    Celiac antibodies are present in saliva. You cannot put gluten in your mouth without provoking some small degree of immune reaction. You also won't be able to rinse out 100% of the gluten from pasta. It will stick to your teeth unless you go brush them and even t hen you will likely swallow particles of it. If it were me, I would be looking for a new...
  25. Skylark
    That's a negative Enterolab panel, which is rather rare. You're probably not celiac. Your genes are DQ4 and DQ6. There are some DQ6 folks who don't tolerate gluten and I think we have a couple unusual DQ6 celiacs around the board. For your info, the usual celiac genes are DQ2 and DQ8. Most importantly, how do you feel on the gluten-free diet? It's...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.