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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Even if I'm pressure cooking beans I soak them overnight. Soaking beans and rinsing them lowers the amount of raffinose. I tend to cook pots of beans on the weekend when I'm around and can let them simmer or pressure cook. During the week I throw them in a crockpot in the morning and come home to cooked beans. They do freeze well.
  2. Skylark
    Has anyone actually watched the show? Max is racist, rude, and insensitive. She's a perfect portrayal of how not to act. NOTHING that comes out of her mouth is politically correct. She makes racist slurs, sexist slurs, and picks on disabled people. If anything it's encouraging to have her making flip comments about someone ordering gluten-free in that...
  3. Skylark
    Age figured it out (not diagnosed): 37 Full recovery at 1.5 years. BUT my Hashimoto's is bad now so I've slid.
  4. Skylark
    The usual antibody in the intestines is IgA since you have normal IgA. IgG is an antibody more associated with allergy, if anything. People can have IgG antibodies to foods and nothing happens at all when they eat them because the food doesn't get to the bloodstream to react with the IgG. Other people are quite sensitive to their IgG foods. You need...
  5. Skylark
    That's great news! One fewer worry for the wedding. I hope it looks and tastes wonderful.
  6. Skylark
    I don't think much of Enterolab's tests scientifically but you will get a "celiac" gene and a stern warning about the consequences of eating gluten on the results. If that is enough to sway your husband perhaps it's worth the cost. I would write or call Enterolab first about testing children. Little kids are notoriously difficult to get positive antibody...
  7. Skylark
    If you can get to Fashion Valley Mall, which should be a short cab ride at the worst, there is a Chicago Uno's with gluten-free pizza, California Pizza Kitchen where you can get gluten-free pizza and some really nice salads, and P.F. Chang's. I haven't tried the pizza at CPK because there is a place closer to home I really like. Across the freeway in Hazard...
  8. Skylark
    Hard to know what that panel means, other than your immune system recognizes gluten. You'd have to get a biopsy to discover whether it's celiac or intolerance becasue anti-gliadin IgG can go either way. To my way of thinking, with weird labs it's definitely worth getting the biopsy done.
  9. Skylark
    You may be gluten intolerant rather than celiac. If that's the case, you won't ever show anything on labs. This talks some about Faesano's research on gluten sensitivity. Open Original Shared Link
  10. Skylark
    Look for sublingual methylcobalamin. I haven't really seen gluten in single vitamin pills very often so just look at the ingredients. I've been taking the Natural Factors 1000 mcg sublingual. It doesn't have any gluten ingredients but it DOES have lactose in the tablet. I'm really sorry to hear that you're still not feeling better!
  11. Skylark
    Thanks for the information about the masalas. I'll stick to MDH. I'm glad you confirmed the asoefetida - I had been avoiding it but I wasn't completely sure. It's uncommon in the US so it's not on celiac lists. I'm not a doctor, but if she were my daughter and doing so well I don't think I would try to get more tests done right away. She really does...
  12. Skylark
    The reporter who wrote the article is as dumb as Publix. Most commercial yeast is gluten-free. I'm glad it's just a recipe and not a product.
  13. Skylark
    Don't you mean flour and butter? Butter is the second ingredient in Starbuck's scones. I don't have fond memories of croissants either. They made me bloated and kind of ill-feeling. Naturally my Dr. told me the problem was gastric irritation from coffee, not the croissant.
  14. Skylark
    Save your money. DPP4 is the worst sort of snake oil. It does NOT detoxify gluten. The enzymes in clinical trials are different ones. People who think it works are either experiencing a placebo effect or getting some general benefit from all the digestive enzymes these sorts of preparations usually have.
  15. Skylark
    Hi and welcome. I get that feeling from gluten. For me the gluten anxiety reaction goes for 3 or 4 days, sometimes 5. It helps me to take fish oil and extra B12.
  16. Skylark
    To clarify even further: MSG used to be made from wheat gluten, which happens to about 30% glutamine. (This is why wheat is included in soy sauce. It naturally forms a lot of MSG.) Nowadays, MSG is made by bacterial fermentation of sugars but there are still outdated celiac lists around that list MSG as unsafe. If MSG were derived from wheat in the US or...
  17. Skylark
    There are people on the board who have had TPO fall after they went gluten-free. Inflammatory hormones produced by your intestine from gluten intolerance inflame your thyroid and make autoimmunity worse. If everything fell from borderline to normal off gluten that's more evidence for some degree of celiac autoimmunity. Give it a little more time with...
  18. Skylark
    Awesome! I wish I could get over my own reluctance to pick up the phone. I don't know what it is about that damn thing.
  19. Skylark
    Hi, and welcome. I hope you've found your answer with the gluten! You might wait until you have your labs back and you know whether you might need a celiac biopsy before you go gluten-free. Being gluten-free for more than a few weeks will throw your biopsy results off and some board members have had to wait a few months for an appointment. Once your...
  20. Skylark
    I think if I were you I would ask for a repeat biopsy in another year or two if the TTG doesn't start coming down. A normal biopsy would show her TTG is not connected to villous damage. If she's doing so well, it really sounds like her villi are healing despite the TTG. Is there any chance the thalassemia is throwing off the TTG tests? TTG is not 10...
  21. Skylark
    Nah, you pretty much have burn gluten into soot to get rid of the peptides that give us trouble. Baking temps won't do it. You have a great point about gluten and diary together. Pasta with a cream sauce would always kill me worse than tomato sauce, McDonalds burgers with cheese were bad, and things like pizza and lasagna were also iffy. I was dairy...
  22. Skylark
    I think he needs to get to a Dr. If diarrhea wasn't a major symptom before he went gluten-free it's hard to be 100% sure it's a food reaction. He may have been food poisoned right around when you introduced the wheat again and need an antibiotic. If your Dr. thinks it could be food, dairy is definitely worth checking as many celiacs are sensitive to it...
  23. Skylark
    If that's all the lab slip said I agree with Nora that you're probably double DQ2.5. It's no wonder you get so horribly sick from wheat. The big question is what proof YOU need. Mayo wouldn't diagnose celiac on only villous blunting - that's what's going on and why they're waffling. The "experts" want to see both blood and total villous atrophy to diagnose...
  24. Skylark
    DQ alpha 1 is missing something, I think. The first gene is 05:01 but half the designation is missing for the second. Is that exactly what's on the lab slip or did you miss typing two numbers at the end? DQ beta 1 is DQ2*0201 for both copies. DQA1*0501/DQB1*0201 is DQ2.5. You definitely have at least one copy of DQ2.5, plus a second DQ2 that's probably...
  25. Skylark
    I used to be that way too. Rich foods were far worse than bread for a quick IBS style reaction.
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