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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I have to get the carbs out of the house so I have no choice. Throw them away or give them away. (Wasting a little food to regain your health is worth it.) I have to find something to substitute too. For me snacking when I'm hungry and my blood sugar is low is the worst. Celery sticks are really good because they give you something to chew. Put...
  2. Skylark
    You are most likely severely gluten intolerant. Welcome to the gluten-free club!
  3. Skylark
    Waitaminute. Why are you making yourself sick for the idiot doctors? I thought you'd given up on them. Tell them you don't eat gluten because it makes you sick. End of story.
  4. Skylark
    Or you could just skip the challenge, figuring the inevitable mistake on the diet will serve as a challenge.
  5. Skylark
    It sounds like he was trying to get back at you for the phone messages thing, which is immature and petty. Silent treatments are NOT going to improve your marriage. That's just passive-aggressive and breaks down communication rather than improving it. Have you tried falling back on the "when you say ____, it makes me feel ____" pattern? It can be very effective...
  6. Skylark
    It's a GOOD thing to have a normal biopsy and no damage! Gluten intolerance can be milder than celiac and you don't have the autoimmunity.
  7. Skylark
    You will always be second-guessing a negative biopsy. Go back on gluten.
  8. Skylark
    Who knows? It's definitely bad for DH but in general why choose a shampoo with hydrolyzed wheat when there are so many without???
  9. Skylark
    Do you say something when people eat a food in front of you and it makes you upset? Don't assume that they will realize it. Be gentle, but stay firm about it. Leave the room if the person eats in front of you again, quietly, politely and with no drama, both to get away from a bad situation, and to make it clear that you will not tolerate being "teased...
  10. Skylark
    It is possible to have normal TSH and T4, but low T3. There are a few people who do not convert T4 to T3 correctly. It's a relatively rare problem, but you already had a low T3 reading so it's worth considering. You might ask for total T3 and free T3. The three-food elimination wasn't a big deal. I made a leg of lamb and sliced it. Then I took a container...
  11. Skylark
    Female. My thyroid is so messed up it's hard to get a bead on the other hormones.
  12. Skylark
    In the few studies who have followed folks with positive TTG, GI symptoms, but negative biopsy, the people tend to become celiac by biopsy in a few years. DGP-IgG is considered as good if not better than TTG IgA. I'm glad he will be going gluten-free. Open Original Shared Link
  13. Skylark
    There is a celiac research center at UCSD. Open Original Shared Link They should be able to refer you to a clinic or doctor who specializes in treating celiac. Whoops I see you already got the link to Warren. I bet Dr. Kaganoff knows a decent celiac doctor who is taking patients if you ask.
  14. Skylark
    Mine was simple. Lamb, white rice, and lettuce for two weeks. It's a classic allergy elimination and how I figured out I couldn't eat wheat, rye, or barley. I have considered trying this food chemical intolerance diet. Open Original Shared Link As far as adrenal function, be CAREFUL. There is a lot of alternative medicine garbage out there right now...
  15. Skylark
    The bread is OK but I prefer Rudi's and Udi's. I love the Glutino bagels, dream cookies (Oreos!!!), pretzels, and crackers and I buy them all regularly.
  16. Skylark
    Hi, and welcome. You have some friends with celiac now. Giving up foods is HARD. You will grieve because your life has changed and it's OK to cry it out if you need to. The sorrow will pass because really it's only food. You've already figured out that you are not defined by it. Be patient with yourself, and also try to forgive your family for not...
  17. Skylark
    Joy, will GAPS help obnoxious fatigue and mild depression? I keep thinking I'm showing signs of some sort of intolerance but it's not specific enough to track down. I feel foggy, metallic taste, and kind of vaguely poisoned. My asthma is a little worse too. I've thought of trying FAILSAFE because they list so many of my vague symptoms, but now you have...
  18. Skylark
    Shroomie, can the lectin thing come and go? Like eating a food fine most of the time, but crashing and burning once in a while on the very same food? I had chronic GI trouble with the gluten, not OK for a couple months between wipeouts.
  19. Skylark
    I'm on a year and a half of low thyroid and really high Hashimoto's antibodies. I know what you mean about the autoimmune crap. It gets very old. My high cholesterol has finally fallen to normal, which is a good sign that my Dr. and I are finally on the right track. I had a bit of an epiphany the other day. I'm wondering if the autoimmunity isn't a...
  20. Skylark
    Fair enough! As long as it's usually normal and creatinine is good. I bet things will sort themselves out once you're on enough thyroid.
  21. Skylark
    Nice! I grew cells antibiotic-free in grad school but in industry we couldn't afford the higher risk of downtime so we used pen/strep. We did train beginners by having them carry a couple lines antibiotic-free in an incubator we didn't mind them contaminating.
  22. Skylark
    Hahaa! Cell culture is awfully good training for thinking about gluten. All people living with celiacs should have to carry a cell line antibiotic free for two months. Then they would "get" it!
  23. Skylark
    I almost could have written your post, although I don't get full body symptoms as horrible as you're describing. I just go into orbit around the toilet for 2-3 hours until my intestines empty themselves out, get dehydrated, and feel tired the rest of the day every month or two. Sometimes my stomach will be upset for the next few days. The D was chronic...
  24. Skylark

    ARCHIVED Pyroluria?

    Skylark replied to Nads's topic in Coping with Celiac Disease

    Yeah, it's a bad sign when you type "pyroluria" into PubMed and only get one '70s article. It looks like one of those whacky orthomolecular psychiatry pseudo diagnoses. A lot of quacks writing about something on the internet does not make it real. A LOT of gluten intolerant people have anxiety and four months into the diet is not always long enough for...
  25. Skylark
    Positive bloodwork and very low iron is plenty of evidence of celiac disease. Many doctors will avoid an unnecessary invasive procedure if they're really comfortable with a diagnosis. You probably had a lot of antibodies on more than one test. If you had anti-EMA that's definitely diagnostic. Most celiacs go on the diet, the antibodies fall, the iron...
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