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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    It does sound like fructose malabsorption is a possibility. My Mom has it. A very simple diet of meat, potatoes, white rice, and leafy greens for a few days might help you decide if fructose malabsorption is a problem. She sounds so sick I'd be inclined to stew a chicken and give her broth and a little rice at first. (Don't put onions in if you're trying...
  2. Skylark
    I also have a friend who went vegan/raw for about five years. She was dealing with chronic shoulder pain and the diet cleared it up within a couple months. I have also known a frutarian who was 65 and radiantly healthy with the energy of a 30-year old. On the other hand, I've seen those pale, anemic vegans who would really benefit from some meat. I don't...
  3. Skylark
    That's great that the biopsy is normal! You can put the EATL worries behind you. Not getting answers is frustrating but EATL would be awful. Lyme sounds like a sensible thing to look into. Also can you have SIBO with a normal biopsy? I don't think much shows up with SIBO unless the small intestinal bacteria are cultured? I don't know that much about...
  4. Skylark
    Your doctor messed up. You cannot test endomysial IgA, or any of the specific IgA tests when your total IgA is low. The result will always be low. Your doctor should have ordered Endomysial IgG, and TTG IgG as well. Perhaps the lab is trying to indicate this. It's certainly not a "normal" result. It doesn't sound like there was a result at all.
  5. Skylark
    When I go dairy-free, I do it strictly. I agree with Shroomie about challenging, but I'd suggest giving it three or four weeks before you challenge. You want any inflammation to really settle down and that takes at least a couple weeks.
  6. Skylark
    Thanks for sharing your good news! How long did it take you to feel better after going grain free?
  7. Skylark
    Actually, "gluten allergy" would be a misnomer. It's "wheat allergy" and the allergic reaction is to different protein fragments in the wheat kernel than the immune system tends to choose for celiac. Also, people with a wheat allergy can sometimes eat rye and barley. Another thing that can cause temporary celiac-like villous blunting is severe illness...
  8. Skylark
    Awesome! Here's my favorite troll-related clip from Dora the Explorer.
  9. Skylark
    Maybe your directions will help folks out!
  10. Skylark
    Oh, good. I was afraid those numbers were gluten-free. You'll feel much better on the diet! Three days off gluten isn't enough to change anything. Holidays are easy if you're the one doing the cooking. If you have to visit family, it can be really hard. It really depends on your situation. Some folks cook and bring a separate meal. I'm lucky because...
  11. Skylark
    GIs seem to want you with tons of antibodies and villi pretty much gone (Marsh 3 or 4) before they'll diagnose celiac. It's not helpful at all!
  12. Skylark
    Waitamimute. You don't trust Wikipedia as a reference and you're believing that? Luv, they're trying to sell you snake oil and spouting pseudo-science to make it look believable. There is so much dangerous misinformation on that web page I can't even begin to list it. Haven't you had any gastrointestinal physiology in medical school?
  13. Skylark
    Usually thyroid inflammation improves when you get on the right amount of thyroid hormone. I haven't seen anything about dairy causing thyroid inflammation. The big one is gluten, plus certain foods called goitrogens. Soy, millet, and uncooked cruciferous veggies (brussels sprouts, cabbage, broccoli, cauliflower, kale, etc.) can cause a little thyroid inflammation...
  14. Skylark
    You don't have IBS. You have celiac disease. Stop eating gluten and don't look back. You shouldn't need the miralax once your intestines start to heal. Did you eat gluten for a little while before you had your blood tests, or was that done gluten-free?
  15. Skylark
    A LOT of us discover that we're more sensitive to wheat after we cut it out for a while. You didn't trigger the intolerance by cutting out wheat. Think of it this way. You probably eat a lot of seasonal fruits and vegetables. Asparagus in the spring, plums in late summer, pumpkin pie this time of year. You don't trigger intolerance by going without...
  16. Skylark
    Blood tests are available, but they pick up celiac about 75% of the time. The other 25% of the time, the antibodies (which are mostly in mucosal tissues) don't make it into the bloodstream. One of the celiac tests, anti-TTG is also not completely specific for celiac disease and can also be positive in ulcerative colitis and Crohn's. Doctors tend to want...
  17. Skylark
    It is interesting to see all the genetic variation. A lot of the variants are single nucleotide changes and they don't even change the protein, like *0501 and *0505. Others are single amino acid changes and it's hard to know for sure whether or not the amino acid could change how well HLA binds to deamidated gliadin. What will be REALLY interesting is...
  18. Skylark
    Welcome. You sure belong here. That's a strong celiac result! Let us know if/when you need help starting on the diet. Please jump feel free to ask questions. Low total IgA means that you are IgA deficient. It is not a big deal as far as health, but it is a risk factor for celiac so it's not surprising. The confusing thing is that usually the IgA celiac...
  19. Skylark
    The only way to be completely sure is to gluten challenge for three months and have celiac testing. If you can't contemplate eating 4 slices of bread worth of gluten for three months, you're gluten intolerant at the least. Celiac testing is NOT reliable and you might make yourself pretty sick on a full gluten diet so you have to decide if it's worthwhile...
  20. Skylark
    Yes, sadly they go hand in hand. You've been gluten-free for long enough for thyroid inflammation to settle down, so I'd suggest going with whatever your Dr. suggests. Make sure he reads your TSH with the new 0.5-2.5 range, not the old one that says you're OK if it's a high as 4.0. The good news is that you will feel much better on a thyroid pill if you...
  21. Skylark
    Absolutely not. It's a completely different immune response than allergy. Celiac disease is an autoimmune condition that is triggered by eating gluten. Get off gluten, and the autoimmunity resolves. It's the only autoimmune condition with a clear external trigger so it's being studied very carefully in the hope that it will give clues to other autoimmmune...
  22. Skylark
    Squash are not nightshades. Nighshade vegetables are tomato, potato, eggplant, sweet peppers of all types, hot peppers of all types, paprika, tomato relatives like tomatillos and tamarillos, and pimentos (the red things in olives). The nightshade family is known for its alkaloids, natural drugs. There are a lot of inedible and very dangerous nightshade...
  23. Skylark
    If you feel better off gluten, the usual thing to get a definitive diagnosis is to repeat the biopsy in a year or two gluten-free. If the atrophy is gone you have strong evidence for seronegative celiac.
  24. Skylark
    I had to look at your other posts. You had steroid-responsive RCD, right? I really see why you're worried about EATL because you do have many of the symptoms. Remember that EATL is very rare, and doesn't tend to show up in people as young as you are. I'd encourage you to aggressively read about how EATL is diagnosed and make sure you're getting the right...
  25. Skylark
    Apology accepted on my part! Your typing is so much easier to read this way. Life IS stressful, particularly school, and you'll find tremendous support on this board. We just like to be treated well, like everyone else. Your celiac will probably not go away if you are positive for antibodies and villous atrophy, although I do believe that you are...
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