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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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I like Tinkyada too, but I've bought other brands of brown rice pasta and they're pretty similar. Tinkyada makes a spinach pasta I like. Udi's or Rudi's breads are good and the Udi's muffins and cinnamon rolls are wonderful! Glutino makes good cookies, crackers, and pretzels. I like the Glutino bagels but the breads are so-so. Kinnikinnick has good frozen...
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ARCHIVED The 3 Year Saga And A Life Time Of Symptoms
Skylark replied to DaDarth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi and welcome to the board. You do sound like you have gluten issues. Even if you don't get a positive test, you already have a positive response to the diet which is huge. You could see if your doctor will do TTG now, and retest in a month if it's still negative! If that's not an option I would tough it out I think. -
ARCHIVED Gluten Free Stuffing Mix
Skylark replied to WinterSong's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't run across gluten-free premade stuffing. I like to do cornbread stuffing with homemade cornbread. Something like this: Open Original Shared Link -
ARCHIVED Lactose Or Casein?
Skylark replied to glutenfreemamax2's topic in Coping with Celiac Disease
I'm cutting out a bunch of foods including dairy right now on the GAPS diet, but I'm not being OCD about it. I'm using ghee for frying because it has almost no casein, and I broke down at a coffee shop and had a little cream in my coffee yesterday. I was figuring on going to "allergy diet" careful if I didn't start feeling better but it seems to be... -
ARCHIVED Fiance Had UC/J-Pouch & Now Celiacs, In Over My Head....
Skylark replied to learning's topic in Coping with Celiac Disease
Take a deep breath and don't panic. You will be fine. One of the underlying problems behind UC can be celiac disease. Your fiance was lucky to finally be diagnosed. He must not eat gluten, especially since he's already had so much damage to his GI tract. The celiac genes are only risk genes. Your kids do have a chance of being celiac but you... -
ARCHIVED Can Gluten Intolerance Cause Constant Heart Pounding/adrenal Fatigue?
Skylark replied to LOWNskater52's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most so-called "adrenal fatigue" is related to thyroid problems. Be very, very careful with naturopaths trying to treat you for "adrenal fatigue" because they will often make you sicker with cortisol. You are likely somewhat hypothyroid. Gluten can inflame the thyroid gland along with your gut. Slightly low thyroid will give you an exaggerated stress... -
ARCHIVED Should I Take Another Test?
Skylark replied to isabel86d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you saying you were only off most gluten for 5 days? If so, that's not long enough to change test results so your test was valid. You could still be gluten intolerant. There is no test other than trying the diet. I'm also confused about what test you got. Did you get celiac testing or wheat allergy testing? They are not the same. Be sure it was... -
It sounds like a big communication problem, and some classic fight escalation. Fight escalation is always extremely painful for everyone involved. It always takes two people to escalate a fight. Like most fights, this started with a simple miscommunication. You assumed he remembered that you were saving the chicken; he probably forgot. You think...
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ARCHIVED Am I Iga Deficient?
Skylark replied to LCL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As well as needing reference ranges to interpret the tests, usually abnormal results are marked as "low" on the lab slip. Was your total IgA marked as low? -
ARCHIVED Gluten Intolerence, But Not Allergic, Possible ?
Skylark replied to brakkar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not only possible, but extremely common. Allergy and gluten intolerance involve completely different parts of the immune system. -
ARCHIVED Does She Have A Problem?
Skylark replied to Lori2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can't tell from those results. Mildly elevated anti-gliadin is extremely unreliable and she has no signs of celiac. With the DQ7.5 she could have issues with gluten. The only reliable way to know is for her to try the diet strictly for a while. With the fibro and depression, thyroid problems need to be ruled out. She also REALLY needs to go off... -
ARCHIVED Genetic Testing
Skylark replied to LuvQuints's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, gluten intolerance is far more common than celiac. You can't make any assumptions based on genetics. 30% of the US population has a so-called celiac gene. The genes are not sufficient to cause celiac. Gluten intolerance can look very much like celiac, so the person needs blood tests & biopsy, and then a trial of the gluten-free diet. Also... -
ARCHIVED Would You Eat Rudi's Bread If Not Celiac?
Skylark replied to desperate's topic in Gluten-Free Foods, Products, Shopping & Medications
I would go back to baking my own wheat bread in a heartbeat. Rudi's is good for gluten-free but it doesn't have the taste or texture of fresh, homemade whole wheat bread. Like Bartfull, I'm not eating any bread right now so it's sort of a non-issue. -
ARCHIVED I'm The 1st Diagnosed With Celiac
Skylark replied to RVluvin's topic in Coping with Celiac Disease
The incidence of celiac and autoimmune disease is rising, particularly in the US, Scandinavia, and Europe. Nobody is clear what's going on but it means there are a lot of people like you, who are the first celiac in the family. -
ARCHIVED Help With Lab Tests
Skylark replied to uspsrt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One of your parents was predisposed with the DQ7.5 they passed on to you. There is no way to know which parent, or whether your other parent had a celiac gene pair that you did not inherit. As far as your kids, they have a 50% chance of getting DQ7.5, but so-called celiac genes are quite common and not sufficient for developing celiac. We also find gluten... -
ARCHIVED Is Kamut Gluten-free?
Skylark replied to happyslob's topic in Gluten-Free Foods, Products, Shopping & Medications
If you toss the toxic gliadin fragments into BLAST, all sorts of wheat relatives and grasses come up. Aegilops tauschii, an ancestor of modern wheat, comes up with particularly long matches and even has the toxic 33-mer peptide. I don't know who this Dr. Davis person is, but clearly he has not bothered to do his homework. -
ARCHIVED Me + Non Gluten Free Family= How?
Skylark replied to this-sucks's topic in Coping with Celiac Disease
I live alone but I can tell you what I do for pot lucks. You bring a dish you're happy to eat for dinner, and set your plateful aside BEFORE you set it on the table. There are often veggies, cheese, or fruit, and I pounce fast and get a little before it gets CC'd. My friends are great at making sure I get a little of whatever comes into the party that... -
ARCHIVED Dairy Items Substitute?
Skylark replied to glutenfreemamax2's topic in Gluten-Free Recipes & Cooking Tips
Funny. Near Mexico a taco is a fresh, soft, handmade tortilla wrapped around some good meat like carnitas or carne asada, with a dab of pico de gallo or guacamole. Sometimes there will be fried onions mixed in with the meat. Tacos were eaten in Mexico well before cows were brought to the Americas so they are traditionally dairy free. Usually only fish... -
ARCHIVED B12 Confusion
Skylark replied to katrina500's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with Rosetapper. It doesn't sound like B12 is your issue. It would be malpractice for your GP to inject you with B12 when you are not deficient, and it wouldn't contribute anything to your health. B vitamins work together and mega-dosing one just gives you expensive pee. You may be low on folate or vitamin D (or even unable to convert and require... -
ARCHIVED Gluten In My Thyroid Meds!
Skylark replied to climbmtwhitney's topic in Coping with Celiac Disease
Jillian wrote and the Paddock 50 mcg had the gluten. Mylan is safe. -
ARCHIVED Is The Autoimmunity Always There, Even Once Gluten Free?
Skylark replied to alicewa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think part of the problem is that it's too hard to eat truly gluten-free unless you avoid all processed foods and never eat out. The stuff is everywhere. There's decent evidence that some celiacs are casein-sensitive too, and I wonder about casein triggering low levels of autoimmunity. -
ARCHIVED Eatl / Food Poisoning / Cdiff/ Sibo?
Skylark replied to CNV2855's topic in Coping with Celiac Disease
Damn. I know your frustration because I have Hashimoto's and don't know what to do. The thyroid inflammation leaves me feeling tired and out-of-it all the time. Nothing like what you're going through but I do keep getting episodes of serious depression. I seem to be on enough thyroid so I'm trying GAPS, but that isn't working four you. -
ARCHIVED Eatl / Food Poisoning / Cdiff/ Sibo?
Skylark replied to CNV2855's topic in Coping with Celiac Disease
Well, it's kinda over my head. No malignancies or anything horrible, which is good. Having an antral diverticulum (a pocket at the bottom of your stomach) is a little unusual. Ask your doctor if that could be causing pain? He mentions reactive gastritis and no H. pylori (a common cause). Your stomach is a little inflamed. The small intestine looks... -
ARCHIVED I Think My GI Is An Idiot
Skylark replied to DonnaMM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to medical school. Please check your brain at the door.