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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Your analysis makes sense. I think they picked out SH2B3 from that stretch of DNA partly on biological evidence. It codes for an adapter protein called Lnk that mediates cytokine receptor signaling. Lnk has also been implicated in Type 1 diabetes, and as we're well aware there is a propensity for people with Type 1 to also have celiac. I loaded up...
  2. Skylark
    Luv, lie thorough your teeth. "Yes, they're related." Obviously it needs to be sorted out in one appointment and if your doctor needs more time he/she will tell you to make a followup.
  3. Skylark
    GAPS diet is here. Open Original Shared Link You do have to buy the book, but it's well worth the cost. It explains what's going on and why the gluten-free diet isn't enough to heal. Why you keep getting more and more intolerances. Why you get sick from sugar and starches. Why your nervous system doesn't work right either, and you get depression and...
  4. Skylark
    Threelac is fabulous! I'm taking it now along with Bio-Kult. I did two months of Threelac after the antibiotics and it helped a little, but I'm still having a LOT of thyroid autoimmunity problems. All the work at Alvine and recent work on Type 1 diabetes is suggesting that leaky gut plays a strong role in autoimmunity.
  5. Skylark
    You've listed a bunch of foods with lectins, and the nightshades you also have in your signature have a lot of lectins and other food chemicals. "Leaky gut" can let lectins that shouldn't be in your bloodstream across. I also get that fatigue you're describing from starchy foods and I'm figuring out it's a combination of insulin reaction, and feeding too...
  6. Skylark
    Your reactions and sensitivity can definitely shift around. I never know what "grab bag" of symptoms I'm going to get from gluten. Sometimes it's horrible D, other times I just feel unwell; I've also had no reaction other than anxiety a couple days later. The amount that sets me off has also varied considerably over the past six years I've been gluten...
  7. Skylark
    I think you need to get him followed by someone other than a chiropractor. You definitely need a second (and possibly third) opinion at the absolute minimum.
  8. Skylark
    That sounds awful. You poor thing. A couple ideas. With the vision problems, that sounds a lot like either ocular migraine or a partial complex seizure. The crash almost sounds more like a seizure than migraine. Did your doctors ever run an EEG while you were experiencing the vision blackouts? I've also been reading like crazy about gut dysbiosis lately...
  9. Skylark
    I got stomachaches from cow casein and soy when I first went gluten-free. I also had a mild shellfish allergy. After a year or so gluten-free and on probiotics I was able to eat casein, soy, and shellfish again. I don't know exactly what happened as far as leaky gut, but I certainly had some dramatic changes in my food intolerances.
  10. Skylark
    You need to be working with an allergist. I don't understand how you lived through eating wheat three more times if you have an anaphylactic allergy to wheat. Are you sure the anaphylaxis was from wheat and not another food?
  11. Skylark
    I think you need advice on current thinking from a pediatric allergist! Any chance you can get a referral to one in your area? Someone at a teaching hospital who is up on the latest research would be ideal.
  12. Skylark
    You're making good points, but you are undermining what you are trying to say with arrogance. For starters, it takes a trivial amount of effort to hit the shift key and type with proper grammar. Are you trying to say that we are not worth the trouble? I thought I had some respect for you as a poster, but you just fell seriously in my estimation if that...
  13. Skylark
    Thanks Roda. That's a bit of comfort. I PM'd Jillian in the hopes that she'll come back and give us more details.
  14. Skylark
    I don't know whether the evolutionary arguments for the celiac loci are any good or not. I was teasing you, not trying to provide a reading assignment! I do find the strong linkage disequilibrium in the HLA complex interesting. I would think haplotypes like DR3/DQ2 and DR4/DQ8 would not be under such disequilibrium if they were purely detrimental...
  15. Skylark
    As you would expect, muscle testing fails spectacularly in properly blinded scientific studies. They are quite amusing to read, particularly the positive responses to things like saline controls. References 21-28 at the bottom of the Wikipedia article. Open Original Shared Link
  16. Skylark
    It does sound like reflux. You could try prilosec. As far as getting nauseous, switch over to broth, ginger ale, Jello and other clear liquids until the nausea subsides. Then try really bland foods like rice, applesauce, or bananas (BRAT diet). I have to do that when I get glutened.
  17. Skylark
    Open Original Shared Link Open Original Shared Link *giggles and runs away* By the way, did your friends have their wisdom teeth out? Born by cesarean section? Ever have a strep infection in childhood that was cured with antibiotics? Manage to not die of polio becasue of vaccination? Ever have surgery? They are being cruel, but they probably had...
  18. Skylark
    Gosh that's hard. Other people are offering you very kind advice, but you do need to be aware of current research suggesting that introducing gluten around 4-6 months while still breastfeeding helps prevent celiac. The idea is that it trains his immune system that gluten is OK. Could you husband possibly give your baby small amounts of a gluten food and...
  19. Skylark
    What new foods have you started eating? If you're eating gluten-free breads, they can have xanthan gum that some people don't tolerate. They also have a bunch of grains and starches you might have never eaten before.
  20. Skylark
    Please, what brand had the gluten and what brand was safe??? I take the Mylan T3.
  21. Skylark
    Boy is that a letter full of CYA. I bet they're not testing. It's expensive. I notice Crisco oil is soybean. I wonder if he was simply sensitive to all that soy? Olive oil is way healthier anyway.
  22. Skylark
    You're right. It's her FAQ where I read it. Open Original Shared Link Is gluten intolerance a subset of GAPS or is it something independent? Yes, gluten intolerance is a subset of GAPS. Gluten is a large protein molecule and is quite difficult to digest, even for people with a healthy gut. People with abnormal flora and hence damaged gut function are...
  23. Skylark
    I linked to my post in another thread with the peer-reviewed articles I could find on remission in the first page of this discussion. There may be more out there; the ones I found should give you an entry into the literature. I wasn't "journal article" careful to find everything. Here's the link to my post again. I'd put remission as rare...
  24. Skylark
    OK. The genes separated by slashes are similar enough that the PCR test cannot tell them apart. Your son does have two copies of A1*0505 or something very similar, so you also have a copy. The 030101, 0321, and, 030103, and 030104 are all DQ7 (B1*0301) variants. (reference is Open Original Shared Link) I can't figure out the others but they will be similar...
  25. Skylark
    OMG too funny!
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