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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Stick to the diet for at least two months before you decide one way or another. You need to give time for any inflammation to resolve. Also consider cutting out all dairy and casein-containing foods during your two-month trial. A lot of gluten intolerant folks are also casein-sensitive and don't feel better until they remove both. (I actually had to go...
  2. Skylark
    The curezone article is bunk. Here's info on the ineffectiveness of the juice and olive oil flushes. Open Original Shared Link To keep kids from getting celiac disease, I would give them a low-gluten diet in general and switch to gluten-free when they get sick and their immune system is really active.
  3. Skylark
    Ahem. Units? There are some that disagree with the IOM report. I believe that just like every single other fad supplement that has turned out to be detrimental when pushed to non-physiologic levels, we will figure out the same for vitamin D.
  4. Skylark
    The GAPS diet is at Open Original Shared Link in case you can't find the link. You should get the book if you want to try the diet because the book explains how to do heal yourself.
  5. Skylark
    Don't eat it? What's the point of making yourself sick so some doctor can satisfy his curiosity? I thought of getting tested. I didn't make it past the first sandwich.
  6. Skylark
    Wow, that sounds like an ordeal but I'm very glad to hear it hasn't spread. Thank you for updating us and I hope you have a compete remission and recovery.
  7. Skylark
    No, there is emerging evidence that Vitamin D levels over 60 ng/ml are not healthy. We are in the midst of a Vitamin D over-supplementation craze. In a matter of time, they'll figure out that just like every other isolated nutrient, pushing vitamin D to non-physiologic levels (over 40 ng/ml) is detrimental. In particular, have a look at the IOM report in...
  8. Skylark
    You need to gluten him up for at least two months to have a hope of the celiac tests working. Three months is a little better. He needs to eat 4 slices of bread a day worth of gluten. Anything with gluten like bread, pasta, cereal, or cookies is fine. If he starts feeling really ill eating the gluten, he might figure out the intolerance on his own. ...
  9. Skylark
    I imagine your doctor already told you this, but you need to lower the B and D supplementation. I guess you're healing and absorbing your vitamins better. Overdose on vitamin D is particularly bad and if I had your reading I would try to take about 2000 IU/day less.
  10. Skylark
    I feed terrible for Bonnie because stomach cancer is very serious, particularly if it goes for months undiagnosed, but you can't jump to the conclusion that it had anything to do with her celiac disease. H. pylori infection is a more likely cause. There is an extremely rare leukemia associated with celiac but threatening people with one-in-a-million cancers...
  11. Skylark
    I was about to say the same thing. I've cut out soy, dairy, and grains and am feeling a lot less tired. Now I have to figure out which one gets me.
  12. Skylark
    Send him to a GP, and one who is smart enough to tell him that if gluten makes him sick he shouldn't be eating it! The GI docs aren't nearly as good about gluten intolerance as the GPs. They'll probably try to celiac test and if your hubs hasn't been eating much gluten it may come back false negative. Your husband just needs to be told to exercise his...
  13. Skylark
    I'm so sorry to hear of your illness. Please don't hesitate to ask for support here if you need it. ((( hugs )))
  14. Skylark
    I looked at the so-called study and ingredients and I am absolutely appalled. Run, don't walk from these scam artists. There aren't even enzymes in it - it's homeopathic stuff and vitamins. There's no way it could cure celiac disease. Also, very few false negatives come from Enterolab because almost everyone is positive! I'm sorry your antibodies...
  15. Skylark
    Whether or not her doctor considers her officially deficient, she does NOT have enough IgA for a celiac panel to be accurate. I saw someone else recently whose doctor said their child's IgA had to be below 21 for deficiency. It may be that the reference ranges are not very good, like TSH. Here's the thing. If there isn't much IgA, deficiency or not,...
  16. Skylark
    With the slow 2-month decline it really does sound more like celiac than gluten intolerance. You may be one of the folks with celiac who doesn't get antibodies into your bloodstream. It's estimated the blood tests only pick up 75% of celiac disease becasue the antibodies are mostly in the gut, not the blood. You could try chasing down salivary anti-gliadin...
  17. Skylark
    Bleah. Go strict. I think that yogurt got me.
  18. Skylark
    It's common. We think it has to do with your immune system getting back to functioning normally after the constant assault from gluten. You react quickly and strongly to gluten instead of having the reaction suppressed. It's just a guess from some folks on the board because we see it happen so often.
  19. Skylark
    Ah, that makes more sense. Hard to figure how you could get neuro symptoms from lactose. Yes, it's hard! Unfortunately that means we're getting the opiate-like effects. I had to cut out the cheese first, substituting with avocado or nuts. I ate smaller and smaller slices of cheese until I ran out. That got rid of most of the dairy I was eating...
  20. Skylark
    Have a look at GAPS diet. It's supposed to help ADD. I'm having the brain fog/motivation issues too and they are getting better. Open Original Shared Link
  21. Skylark
    I think it's different for everyone. Intolerances can come and go and the symptoms you get can shift over time. Have you tried going casein-free?
  22. Skylark
    DH = dermatitis herpetiformis. It is the celiac rash. As far as gluten intolerance, I'm not sure what you read but it is NOT the same as celiac disease. Celiac disease is an autoimmune disease triggered by gluten. Gluten intolerance may have similar symptoms, but it lacks the autoimmunity, and there are probably multiple ways people are reacting to...
  23. Skylark
    You are neither low IgA nor positive for celiac. Thing is, you can have negative test results and still have serious issues with gluten, plus the blood test only picks up celiac maybe 75% of the time. Hashimoto's is associated with gluten intolerance, so it's worth trying the diet.
  24. Skylark
    This is GREAT advice!
  25. Skylark
    We can't tell you what the number means without the "normal" range from that laboratory. Anti-gliadin is NOT a full celiac panel and it's the least reliable of the celiac tests. Keep eating gluten until you get to a GI or get your GP to run the full celiac panel. There are other tests that need to be run, a test for your total IgA, anti-TTG, and anti...
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