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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Super-sensitivity is uncommon. The chocolate sounds fine to me since it doesn't have wheat warnings. They may have been making something with wheat and discontinued it.
  2. Skylark
    I had to go onto an antibiotic for bronchitis. After that my Hashimoto's titer went way up and I think it's when the dairy reactions started. I believe some bacteria I really needed got killed off along with the bronchitis and it started some leaky gut trouble. Yes, triple-drat. There are amines in cheese and yogurt. I'm starting to wonder...
  3. Skylark
    Then I misunderstood. I'm sorry I wrote that. I really was kind of offended but I understand what you meant now. Please don't write off the forum because I was confused. We really value new members and we try hard to help. You may get some useful info from the Enterolab TTG. I hope so, but above all, please trust your body with the gluten sensitivity...
  4. Skylark
    Try not to label the information we offer as "poo-poo", perhaps?
  5. Skylark
    I got soy back after a year of so of mostly avoiding it. I got dairy back for a while but I seem to be reacting again. (Drat, drat, drat!)
  6. Skylark
    The "intraepithelial lymphocytosis" means that there are a lot of white blood cells (lymphocytes) in your biopsy. There are not normally a lot of lymphocytes in the mucosa, just a few here and there to deal with food-borne bacteria. The autoimmune antibodies in celiac disease signal large numbers of a particular type of lymphocyte called natural killer...
  7. Skylark
    Don't be scared. Remember, the whole point of an elimination diet is to find your reactions. If you don't react to anything you won't get the answers you're looking for. That's the REAL thing to be scared of, that you go to all the trouble and don't get an answer at the end! Try to welcome the reactions as more of an "Oh, good I found something" rather...
  8. Skylark
    I've ruled out corn, rice, and I don't seem to react to gums because I can eat the So Delicious coconut products. I'm not sure about potatoes. My reactions are still confusing but it seems more like nightshade-caused fatigue than asthma. I need to go buy a bag of tapioca flour one of these days.
  9. Skylark
    Until Enterolab does what everyone else has to do to validate a diagnostic test, demonstrating good specificity and a low false positive rate, well-trained scientists like myself will keep calling them out. I keep fighting so hard because I think fecal AGA testing for gluten intolerance is a complete scam. It takes advantage of stressed-out people looking...
  10. Skylark
    OMG you poor thing. That's awful. You need another GI.
  11. Skylark
    There is no validated diagnostic test for gluten sensitivity. We told you that in the other thread; making a new thread will not change the facts. If gluten sensitivity is all you're looking for, you are just wasting money at Cyrex. (They will be happy to tell you otherwise and take your $$ but if you trust them I have a bridge for sale in New York City...
  12. Skylark
    If I had that reading I would be concerned. The evidence for fecal TTG being abnormal in the literature is much more convincing than that for AGA and you are well above the negative reading. Problem is, fecal TTG is not specific for celiac. It can appear in inflammatory bowel diseases like Crohn's and ulcerative colitis. https://www.celiac.com/articles...
  13. Skylark
    That Fasano study where he concluded that 10 mg/day is "safe" is about the worst thing that has ever happened to the celiac community. In that study, people who hadn't healed by biopsy were excluded. In other words, they didn't enroll the people who might be more sensitive. In fairness, they couldn't enroll people with abnormal biopsies because the study...
  14. Skylark
    Hopefully you'll get your answers. Be sure to prod your Dr. for the vitamin testing so she only has to go through one blood draw.
  15. Skylark
    Are you silent celiac, or just generally worried? I have noticeable gluten reactions so I don't worry about foods to which I don't react.
  16. Skylark
    I get mild asthma reactions from a lot of processed gluten-free foods. It's not likely a gluten CC reaction for me because I get GI trouble from wheat. I haven't figured out what gets me yet.
  17. Skylark
    Since you're declining the biopsy, I would ask for a confirmatory test that is more specific for celiac disease, either anti-EMA or deamidated gliadin before he is off gluten for too long. I assume you've taken him gluten-free, so you will have to get the test done fairly quickly (within a week would be good). With the high TTG number and yellowed skin I...
  18. Skylark
    Did she have TTG at Enterolab or only anti-gliadin? If she only has anti-gliadin I'm sorry to say it, but she needs the blood draw. The blood test is not as sensitive as one would hope, but it will catch 3 out of 4 cases of celiac so it's well worth doing. Unlike Enterolab, false positives are pretty rare on the blood tests. If she has no GI issues...
  19. Skylark
    The problem with Enterolab is that their own data show that fecal anti-gliadin is a poor predictor of feeling better on the diet. There is also a peer-reviewed study showing fecal AGA appearing and disappearing in the stools of healthy people who are able to eat wheat comfortably. In addition, when Enterolab tested healthy people they got a very high...
  20. Skylark
    The sensitivity of AGA is very poor, anywhere from 33%-60% depending on the study. Sorry, but your doctor is correct and you can't really interpret your daughter's negative AGA. Hopefully her TTG will fall some in the next six months.
  21. Skylark
    Character assassination does not help your argument. It only serves to make you look bad. I think everyone knows how dangerous refractory sprue can be. I'm sure USF1970's doctors are taking it seriously.
  22. Skylark
    Yes, you could be celiac or gluten intolerant. Is there more than one doctor in your family practice group? I think you need to ask for a second opinion so you can get the celiac blood tests covered under insurance. If you don't have any other options as far as general practice docs, ask for a GI referral and keep being a pest until someone tests you....
  23. Skylark
    Hi and welcome to the board. No, gluten is not bad for everyone. There are a lot of pseudo-scientific websites written around the Internet that may sound convincing but they are not accurate. It's a fad right now to think of wheat as bad and people are making money on websites and books that attack the latest dietary villain. These same people probably...
  24. Skylark
    I agree with looking at dates. In this case ELISA methodology has become somewhat more sensitive in the last 15 years but we're still looking at essentially the same test. They would have been reading biopsies more conservatively in 1996 but if anything that would lower the specificity. It's hard to find newer studies on AGA because that's about the time...
  25. Skylark
    Why don't you eat more naturally high-protein foods like egg whites and chicken breast? Processed foods are so hard to tolerate compared to natural foods. I've gotten very suspicious of anything that comes in a can or a carton.
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