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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I'm going to let someone else take a stab at translation 'cause I'm not sure what you are looking for. They're using a bit of the gluten protein, a specific peptide, one a lot of celiacs react to. It does strike me more as desensitization than a vaccine; the gluten tolerance it would induce would be hopefully be permanent though.
  2. Skylark
    I had night time insomnia until I got onto a good multivitamin/mineral/trace and fish oil. Being off gluten so you can absorb them is probably important though...
  3. Skylark
    It's gotta be TSH. 0.5-6.0 is the standard old reference range. Slightly low TSH may or may not be a problem. Usually Graves' will suppress it to more like 0.1 but Golden Girl does need to be aware of the signs and symptoms of hyperthyroidism and probably does need TSHR. Early AM pulse is a decent indicator.
  4. Skylark
    I have noticed that with all the diets. Gaps, Failsafe, SCD, paleo to some people. If you eat even a crumb of "illegal" food you're off the diet and you will magically lose all the benefits. You'll also lose your job, your house, your spouse will leave you, and your children will run off to leave the circus and never speak to you again. :lol: Seriously...
  5. Skylark
    Coffee? Sleeping pills at night? Any chance you're wheat allergic as well as intolerant and an allergy pill would help? I don't know how I would survive a gluten challenge.
  6. Skylark
    Hi and welcome to the gluten-free club. Here is an article on basics of the diet. www.celiac.com/celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free-r1640/ In the gluten-free shopping section of the article it has links to safe and unsafe ingredients. Feel free to ask more specific questions if something is confusing...
  7. Skylark
    Actually Strawberry_Jam, you might find this super-interesting. There is a celiac vaccine in clinical trials. It's what's behind Alice's homebrew vaccine idea. https://www.celiac.com/articles/22559/1/ImmusanTs-Celiac-Vaccine-Passed-Phase-I-Clinical-Trials/Page1.html This is one of the articles looking at which peptides might be useful in a vaccine for...
  8. Skylark
    I read "an undiagnosed condition similar to Lupus" to mean that his doctors know it's autoimmune and systemic, but they don't know exactly what's going on.
  9. Skylark
    Most doctors say to eat 4 slices of bread worth of gluten a day. I really doubt your oatmeal would have as much gluten as even half a slice of toast because the gluten would have to be either CC or a flavoring. You could keep eating the oatmeal and have your gluten later or switch to a wheat cereal. (My stomach hurts just thinking about that one!)
  10. Skylark
    PM sent. I'm really curious to see what you did. On the bright side, I only feel 50% crummy today and I'm 5 days into Failsafe. I did figure out my celiac with elimination but then I had clear GI problems to guide me. Problem foods gave me a stomachache within hours. Now that my stomach is happy off gluten and the only signals are delayed fog and fatigue...
  11. Skylark
    Good luck and hang in there.
  12. Skylark
    I haven't used them myself. I think Domesticactivist and researchmomma have. You might PM and ask whether they were satisfied. Anti-EMA can sometimes take longer to read because it's done by hand; the 48-hour turnaround may be just general. I imagine you would get the total IgA, TTG, and DGP back pretty fast and the anti-EMA would take longer. As far as...
  13. Skylark
    Give it time. Healing takes months, not weeks.
  14. Skylark
    LOL! Your wife couldn't possibly have a more problematic profession, though on the bright side I bet you get some amazing gluten-free goodies. The conservative route would be for her to change clothes and wash her hands and face when she gets home from work. I don't know whether a problematic amount of flour would get into her hair. I know when I worked...
  15. Skylark
    Everyone is different. I barely replaced anything in my kitchen and I did just fine. I replaced wooden spoons, my toaster, a wooden cutting board that badly needed replacing anyway and my colander because I wasn't sure I'd gotten all the bits of pasta out of the holes. I also replaced a seasoned wok because it smelled of soy sauce I couldn't figure out...
  16. Skylark
    Lisa, how did you choose your foods? How did you tell what you're intolerant to? I'd do anything to be rid of this fog and mental trouble. GAPS was giving me migraines so I'm doing RPAH Failsafe at the moment. Fruit and veggies you would put in smoothies are totally off the list. (I doubt you made green bean, pear, and cabbage smoothies!) Failsafe relies...
  17. Skylark
    I eat at Chipotle comfortably. I usually order a rice bowl because I am not comfortable with a corn tortilla on the same iron they use for wheat. When you go somewhere like Olive Garden, you can always ask to talk to the manager to see how they handle gluten-free food. If the answer satisfies you that they are taking reasonable precautions against...
  18. Skylark
    Consider trying Specific Carbohydrate Diet. It's a grain-free diet that was developed in the '40s for "sprue". Back then they knew that elimination of only wheat wasn't enough for everyone and they worked out empirically what foods worked best and what to avoid. Open Original Shared Link
  19. Skylark
    Eating should definitely not be this difficult. Here are the allowed foods. It's a pretty easy list to stick to for a few weeks. Open Original Shared Link I'm expecting it to help the migraines because they used to be MSG sensitive. I was on GAPS and unknowingly eating a lot of natural MSG and salicylate. Did an antihistamine help you at all...
  20. Skylark
    I found the Zand stuff at a local Vitamin Shoppe. I'm sure you can find it online as well. Open Original Shared Link It does contain a little oat seed fiber, which may have trace gluten so pay attention to how you feel if you take it. I tolerate it fine but it might not be OK for someone who is super-sensitive. Looks like your thyroid is OK, as long...
  21. Skylark
    Your doctor will get your mom sorted out I bet. Good luck on the appointment. Hopefully it's not serious and being stricter on the diet will have you feeling better.
  22. Skylark
    Celiac made me bipolar and anxious. Among other things. I had all the GI trouble too. I would strongly suggest you get her tested and then take her off gluten with her sister. It's easier having fewer people eating gluten. You might be pleasantly surprised if you join them as well. Gluten intolerance/celiac is genetic. And yes, celiac disease...
  23. Skylark
    Those look amazing! Do you have the fancy little pan to get them to fry right? As Mizzo says, you will have to find asafoetida resin or get lucky enough to find hing powder made with rice flour rather than wheat. I usually just sub a little garlic. Split black lentils (urad dal) are a small split bean, not a spice. I have some in the pantry.
  24. Skylark
    Gluten is a baking term for the mass of sticky, insoluble protein in wheat. It's a mix of gliadin and glutelin. Cereal chemists use more precise language. We react to what cereal chemists call gliadin. Looks like 33%-45% of the protein is gliadin, called prolamin in this article. Open Original Shared Link
  25. Skylark
    Maybe. I'm casein-sensitive and can't tolerate it. Buy a little goat cheese and test first before you go whole hog. Smoked cheese should be OK. Obviously beer washed cheeses are not.
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