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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    That's not emotional! That sounds like an allergy to something in the air. You may be reacting to the medicine, or possibly to mold in the building. If you tolerate it, you could try a little of a non-drowsy antihistamine. If it helps you know for sure it's allergy.
  2. Skylark
    Yeah that's pretty normal. I am OCD about reading labels ever since something changed ingredients and I got glutened. Family members shouldn't want to make a mistake because they love you, but they don't have that nagging fear of being miserable. When I visit family they have learned to just hand me labels and let me double-check or point out the gluten...
  3. Skylark
    The almond and coconut flour are totally different in recipes than corn and potato starch so you'd have to look for other recipes. They use a lot more eggs and oil, especially the coconut flour ones. You might try some coconut flour recipes if you can tolerate coconut and skip the almond. As well as the recipes at Simply Coconut there is another huge...
  4. Skylark
    Sorry. You didn't take my meaning the first time around and I didn't know what to say in order get you to understand that you were on a nonsense website. I generally read the peer-reviewed literature. Open Original Shared Link There are some good books around, depending on what you are trying to learn. You might want to read Dr. Peter Green...
  5. Skylark
    Did you ask your primary care doctor just how sick you have to get before she'll stop practicing poor medicine and diagnose you? I mean really, does she want you to wait until you have total villous atrophy? You are very fortunate to have a GI who is reading the latest research. Increased IEL is the first phase of celiac disease and the latest thinking...
  6. Skylark
    Can you do eggs? I love baking with almond flour and coconut flour since I don't handle grains very well. I make coconut flour muffins and add whatever looks good. Nuts, spices, blueberries, raisins, etc. Open Original Shared Link Almond flour banana bread is another favorite. Open Original Shared Link I love the coconut flour and almond flour baking...
  7. Skylark
    Hi and welcome. I think if you're getting worse a doctor's visit is always a good idea. A lot of people have a checkup and blood test at 6 months to make sure their celiac antibodies are falling. Depending on how things are going their doctors decide from there. It might help to bring your family to the doctor so they understand that you are still sick...
  8. Skylark
    Sorry your bread didn't work out but thanks for the giggle. It reminds me of my gluten-free Irish soda bread shaped doorstop.
  9. Skylark
    It's OK to go have a good cry and get it out of your system. Of course you're sad. It's an enormous change. You'll probably feed much better gluten-free. Anxiety is a big gluten symptom for a lot of us, as is fatigue. I had both and while the fatigue went away fairly quickly I had to really bump up my vitamins and take fish oil to get rid of the...
  10. Skylark
    Food dyes? In an ADHD medication??? Looks gluten-free but my goodness that makes no sense! My brother was on the Feingold diet as a kid and food dyes would set him into a tizzy.
  11. Skylark
    That's great! I'm so glad to hear of his dramatic improvement!
  12. Skylark
    Ugh. That wouldn't be any fun. I can see why you are worried about an endoscopy. My symptoms are different from yours but nobody has exactly the same symptoms. Yes, rheumatoid and celiac run in families together. Celiac can cause joint pain too and it definitely causes fertility problems. Can't tell you how many people on this board conceived once...
  13. Skylark
    Endomysial IgA (EMA) is highly specific for celiac disease. I can't help you understand the rest of your tests because you didn't put the normal ranges. The "gold standard" for celiac disease is both blood & biopsy. Thing is, EMA is 98% specific for celiac. Studies on the few EMA+, biopsy-negative people show that they have metabolic markers of...
  14. Skylark
    I had too many symptoms to list. Stomach aches, irritable bowel, psychiatric problems, canker sores, chronic fatigue, rashes, and borderline anemia were some, plus I have autoimmune thyroid disease. I didn't ever get diagnosed. My doctors were useless and I figured it out myself. I wish I knew for sure about celiac but not enough to make myself sick...
  15. Skylark
    Hi and welcome. Unfortunately there's no way to tell about celiac vs. gluten intolerance without the testing. Both have a wide range of severity, from silent celiac where there is hardly any symptoms and the issue is mostly osteoporosis to extreme malabsorption. Gluten intolerance can also make people miserable and have symptoms that are almost the same...
  16. Skylark

    ARCHIVED Pf Chang's

    Skylark replied to Finally-45's topic in Gluten-Free Restaurants

    Yes, there's always that niggling worry in the back of my head that I was brought regular food. I still take my chances and eat out sometimes and P.F. Chang's is one of my faves.
  17. Skylark
    I haven't noticed Celiac's in the peer-reviewed literature. I have seen it in amateur medical writing in blogs and whatnot. It's when NBC gets it wrong that I have an apoplexy attack. Open Original Shared Link
  18. Skylark
    Just a lot of ignorance. The word celiac derives from the ancient Greek word for abdomen or bowels so it would translate to "abdominal disease" or "bowel disease". People who write Celiac's Disease or celiacs don't know the origin of the word so they don't realize how silly it sounds. It would be like writing Abdominal's Disease. Open Original Shared...
  19. Skylark
    You could definitely be celiac. It's common to have it come on in pregnancy. If you can get tested, you want to do that before you go off gluten. You have to be on a full gluten diet to get accurate results. If you feel better off gluten you're not going to want to eat the stuff for three months to be tested down the road. If testing is simply not an...
  20. Skylark
    I don't think the sensitivity is as high as they claim for kids. The best I'm seeing is 83% and they had to adjust the assay cutoff in the study, plus it was only under age 5. More typically it's 50%-70% for older kids, depending on the study. AGA is just not a very good test. Open Original Shared Link Open Original Shared Link Open Original Shared...
  21. Skylark
    He's still lying. Ancient domesticated wheats like Kamut and Spelt have 15%-20% protein, which is more than modern wheat at 7%-14%. BCM7 is hardly the only problematic casomorphin peptide in milk. It just happens to be the best-studied. Look, you can believe whatever you like but I'd really suggest you do some research on websites with better science...
  22. Skylark
    The incidence of celiac disease is rising. That means there will be first cases in a lot of families.
  23. Skylark
    I like arrowroot starch. I could never get potato starch to work without clumping.
  24. Skylark
    Nannu, is this the old anti-gliadin antibody test or the newer deamidated gliadin peptide (DGP) test? Those numbers sound more like DGP. I've never seen anyone claim 90% sensitivity for the old AGA test.
  25. Skylark
    I pretty much said the same in Jodie's other thread. I completely agree he needs at least a full celiac panel.
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