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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I agree a thorough workup is necessary. However, I believe the OP's doctor wanted to put her on a very nasty immuno-suppressive drug. I would personally go to a 100% whole foods, home-cooked, grain-free, casein-free diet and see what happened for a few months.
  2. Skylark
    You do not need to tolerate this if you don't want to. I'm pretty sure what you're experiencing would legally be considered disability harassment, since it's so pervasive that you want to go eat somewhere else. It would fall under the hostile work environment laws. You need to politely ask your coworkers to stop bugging you about your diet. If the harassment...
  3. Skylark
    That's really interesting. A couple things come to mind. American food is pretty "dirty". Most non-organic wheat in the US is GMO, there is a fair amount of pesticide residue in our food, and it's mostly laced with preservatives and food chemicals. We have people on the board who have mentioned that they can tolerate organic corn but GMO corn makes them...
  4. Skylark
    When I was a kid I had psychosomatic stomach aches on top of the undiagnosed gluten issues. I found relaxation exercises helpful. If you can close your eyes for a moment and imagine being outdoors in warm sunshine in a beautiful place you might find that your stomach feels better. I also was taught an exercise where you imagine you're floating in blue...
  5. Skylark
    I think I have that to some degree. My gluten reaction is a mix of classic celiac stuff like canker sores and GI trouble and mild asthma. Once I went off grains, I realized that eating that gluten-free baked goods triggers my mild asthma. I have ruled out rice, corn, potato starch, and xanthan gum. I still need to track down tapioca in a pure form to...
  6. Skylark
    You might start trusting that online newsletter a little less. If anything, the lecithin in egg yolks would be anti-inflammatory. Eggs are a pretty common allergen so perhaps that's what confused the newsletter author?
  7. Skylark
    I say I'm celiac. It's simpler. The medical details and whether I'm celiac, gluten-intolerant, or allergic to wheat/rye/barley is nobody's damn business. All they need to know is that gluten makes me sick and I need to take some precautions to avoid it. Some people are so incredibly nosy and rude that you have to make things up to satisfy them. I find...
  8. Skylark
    Yeah, losing cheese is hard. Damn it is right! (I use stronger language in my head. LOL!) At least I figured out that canned coconut milk is good coffee creamer. I can survive with something decent in my coffee.
  9. Skylark
    I'm so sorry for your loss. Miscarriages are awful to endure, but it does not mean you cannot have a baby. You probably conceived because the gluten is out of your system. I bet you will conceive again if you can get up the heart to try. Just stick to the diet super-carefully and get very well-nourished to be sure things go well.
  10. Skylark
    Yeah, a lot of us have similar missed diagnosis stories. It sucks. I was bipolar too before I got off gluten. Before you go gluten-free you do have some testing options. You could get a home test kit. Open Original Shared Link Some cities have university celiac centers that offer free testing. If you can afford it, you can probably get a celiac...
  11. Skylark
    Hi and welcome. If I were you I would start taking cod liver oil. You might have been told that your vitamin A wasn't low enough for vision problems, but how did that doctor know how low vitamin A works for you personally? Supposedly the first sign of low vitamin A is night blindness. You also need vitamin D together with the A and cod liver oil has...
  12. Skylark
    Weird. I was considering metal testing and it took a decent-sized lock of hair. Hard to imagine what they could get from three hairs.
  13. Skylark
    It sure isn't one size fits all! Maybe you're right about people just assuming all celiacs are the same. I made the exact opposite mistake as you. I assumed I was reacting to traces of gluten and finally figured out I'm probably getting sick because of a dairy sensitivity.
  14. Skylark
    I'd personally eliminate them strictly for two weeks, then add back and see how I felt.
  15. Skylark
    I would normally offer links but I find myself disinclined to continue this discussion. You should find the research trivially easy to find in PubMed if you spend your time looking for it rather than trolling me. Plonk.
  16. Skylark
    In sit-down restaurants, it's pretty unusual to have a dedicated fryer for french fries. It does happen in fast food - Burger King, Chick-fil-A, McDonald's, and In-N-Out Burger come to mind as chains that typically have a fryer used only for potatoes. Take a look at the fried foods on the menu and if there are onion rings, fish and chips, chicken tenders...
  17. Skylark
    For me the anger comes when the person who doesn't "get it" has put me in a position where I am forced to either risk eating gluten or not eat entirely. I've gone to both formal and family events where bringing food was impractical, I thought I had made arrangements, and gotten to the event to find out that whatever idiot I talked to on the phone lied about...
  18. Skylark
    The blue "watch topic" button just above the top of the thread might do that for you. You can also find topics you've started or replied to by clicking your name at the top of the forum and selecting "my content" from the menu. I use that all the time. You might want to start your own thread so people see your questions. You're buried 5 pages...
  19. Skylark
    This argument about super-sensitivity exists IMO largely because other celiacs are afraid of it. What is more frightening than realizing that it's within the realm of possibility to react to the loaf of GFCO certified gluten-free bread in your refrigerator that you thought was safe? Or that there are people with celiac disease who cannot consider eating...
  20. Skylark
    Nope. I just had to look that up because I'm reacting to nightshades. Most of the orange tubers sold in the US as yams are sweet potatoes, and they are in the morning glory family (Convolvulaceae). True yams are botanically very distinct and are in the yam family (Dioscoreaceae). After reading about them and looking at pictures I don't know that I've ever...
  21. Skylark
    Right. Food allergies and reactions come and go all the time, and I doubt most doctors and clinical researchers would find it remarkable if a gluten intolerance in someone who was not diagnosed with celiac disease resolved. Gluten intolerance may be a horse of a different color so to speak, but I don't think it's been characterized to the point where recovering...
  22. Skylark
    Cool! So glad to hear the chocolate turned out. I might have to give it a try. Thanks for sharing the recipe! Glad you're enjoying the coconut flour too. I have been really happy with coconut flour baked goods. It's so easy and I love how they turn out.
  23. Skylark
    It is hard. They have to get some idea of mg/day in a study to be quantitative but it's a really iffy number. I think we have people on this forum who react below 1 ppm of gluten in a not-large portion of food. I don't know that any study has addressed that level of sensitivity. It reminds me of the most serious peanut allergies, where someone eating...
  24. Skylark
    I went and read the Chartrand study. They gave people wheat starch that was 0.75 mg gliadin/100 g (15 ppm gluten) and they estimate people were eating about 100g/day, four slices of the bread they made with it. They didn't do any dietary manipulations to try to control people's diets other than adding the wheat starch, and the study was not blinded in any...
  25. Skylark
    Even the Fasano study does not draw the conclusion that 10 mg/day is safe. He says it's a "grey area" when you read the paper. The government has taken the next paragraph out of context. This is a situation just like GMO foods, where corporate interests outweigh the interest of the taxpayer. I haven't seen a medical study on super-sensitivity other...
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