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Latest Celiac Disease News & Research:
Everything posted by love2travel
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ARCHIVED Worried About Endoscopy/colonoscopy
love2travel replied to BlessedTXMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The flours/starches are interesting to work with. My freezer holds 17 kinds! It is fun experimenting - I just wish they created the same texture/consistency as gluten but there simply is no such thing, sadly. But coconut and almond flours in cakes, cookies, quick breads and so on are wonderful! -
ARCHIVED I Need Chocolate!
love2travel replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
Just contacted the company re Reeses and was told that NONE can be guaranteed gluten-free at all (in Canada). -
ARCHIVED Worried About Endoscopy/colonoscopy
love2travel replied to BlessedTXMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Although I do not feel sick from eating gluten I would never, ever consider cheating because I know what is going on inside. I also think of my future and will do all I can to avoid other auto-immune diseases and cancer. Did you know that those with undiagnosed celiac or celliacs who do not follow a strict gluten-free diet have a four times higher mortality... -
ARCHIVED Worried About Endoscopy/colonoscopy
love2travel replied to BlessedTXMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all, welcome here! There are so many incredibly helpful and knowledgable people here with years of experience. Unfortunately it is advised to eat the equivalent of 4 slices of bread each day for three months prior to biopsies for accurate results (the gastroscopy or endoscopy show this - the colonoscopy is to rule out other problems most... -
ARCHIVED What Would You Like To See In A Cookbook?
love2travel replied to MissBonnie's topic in Gluten-Free Recipes & Cooking Tips
Soooooo true about most recipes (aside from baking). Very simple to make the obvious changes! I can recommend a really good baking book that contains yummy classic desserts such as: - crepes - popovers - buttermilk biscuits - madeleines - ladyfingers (great in tiramisu) - shortbread - biscotti - graham crackers - tarts (savoury and sweet) ... -
ARCHIVED What Would You Like To See In A Cookbook?
love2travel replied to MissBonnie's topic in Gluten-Free Recipes & Cooking Tips
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ARCHIVED Need Opinions, Please!
love2travel replied to DarkStar's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I will never, ever forget what real Italian pasta tastes like! I used to make it often. Am making my own gluten-free pasta - haven't happened upon the perfect ingredient ratio yet but am working on it. It'll come... -
ARCHIVED Oats
love2travel replied to soccermom's topic in Gluten-Free Foods, Products, Shopping & Medications
Just attended an excellent lecture by a leading Canadian celiac expert, a gastroenterologist, who said that we must not have any oats, even oats that are guaranteed to be gluten-free and produced at a dedicated gluten-free facility, for TWO YEARS following celiac diagnosis. She said we must give our gut a long time to heal. She believes that there may be... -
ARCHIVED How Long On Gluten For A Positive Test?
love2travel replied to raesue's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hopefully this is not too redundant but I attended a lecture by one of Canada's leading celiac disease experts, a gastroenterologist and professor at med school, the other night who said one must be on gluten for three months and have the equivalent of four pieces of bread daily for an accurate result. That's what I was told prior to having my biopsies.... -
Unfortunately I can also relate to severe chronic back pain. I was literally in bed for nearly two years with a back injury which caused muscle wasting, weight gain and numerous other issues. I thought it was all due to my injury BUT recently was diagnosed with fibromyalgia which exacerbates my back pain. FM can be linked to celiac disease, too. It can...
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I, too, have had severe chronic and often debilitating lower back pain for 3 1/2 years. I thought much of it was due to a back injury (herniated discs and so on) but recently was diagnosed with fibromyalgia which can certainly be related to celiac disease. That is why my back pain does not heal. The specialist used this analogy. If my husband, for example...
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The What's For Dinner Tonight Chat
love2travel replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
We live in northern Alberta but thankfully not in the area where there are catastrophic forest fires. Actually, that puts things into perspective. This is unusually cold, even for here. To speak in gardening terms, we have on average only 87 frost-free days per year and are Zone 1a. No wonder I cannot wait to live in Croatia!! -
The What's For Dinner Tonight Chat
love2travel replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Today is very cold - not a lot above freezing so to sum up supper: Chicken, Chorizo and Prawn Jambalaya! We are supposed to get down to -3C tonight so am worried about all my pepper, tomato, basil, etc. plants. I just planted them this week and they have been doing so nicely. I absolutely killed my back doing it although they are in raised beds... -
ARCHIVED Crest Is Gluten-Free But They Don't Always Test
love2travel replied to fakename's topic in Gluten-Free Foods, Products, Shopping & Medications
I emailed Crest re their products and they said that their toothpastes are gluten-free. However, they did also say that their Crest Pro Rinse and Crest Whitening "...could contain trace amounts of gluten. We recommend that you contact your doctor if you have questions before using these rinse products...". -
ARCHIVED Does Bacon Have Gluten?
love2travel replied to Myooshka's topic in Introduce Yourself / Share Stuff
I live in Alberta and HAVE seen bacon containing soy sauce derived from wheat! Cannot recall which brand, though. So, carefully read the labels. -
The What's For Dinner Tonight Chat
love2travel replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I don't blame you - I would be excited, too! The caramelized onion, roasted garlic with those cheeses is marvelous. -
ARCHIVED At Least 8-11 Biopsies Required For Accurate Results
love2travel replied to love2travel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was at a lecture in person so got it straight from the "horse's mouth". The gastroenterologist does not have celiac disease but celiac disease is her life. She is a huge advocate and has been instrumental in future labeling laws, etc. She has based this information on personal experience (having seen TONS of those who have been misdiagnosed and many... -
ARCHIVED gluten-free Honeymoon Suggestions?
love2travel replied to alissar's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Although Italy isn't tropical it is an amazing place for those with Celiac. They are incredibly knowledgable about the disease and there are many gluten-free pizza places and restaurants. It is mandatory that everyone must be tested for celiac disease by the age of 5! Just returned from Italy and Croatia (Croatia is another recommendation but not as knowledgable... -
The What's For Dinner Tonight Chat
love2travel replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Yum! I often get Germany food cravings, too. Tonight we are having: Moroccan Rubbed Pork Tenderloin with Passionfruit Glaze Smashed Potatoes with Buttermilk and Chives Cardamon Glazed Roast Carrots Strawberry Shortcake with Sherry Syrup -
ARCHIVED At Least 8-11 Biopsies Required For Accurate Results
love2travel posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As I've already mentioned on a few other threads, last night I heard an excellent presentation on celiac disease and the importance of proper biopsies. Insist that your surgeon takes at least 8-11 biopsies for greater chance of accuracy rather than the usual 3. In Canada (and presumably similarly in the US) only 39% of biopsies are done CORRECTLY!!! No... -
ARCHIVED Perfectionism And Sensitivity To Criticism
love2travel replied to joej1's topic in Coping with Celiac Disease
In Canada for every 3 women diagnosed with celiac disease only 1 man is. -
ARCHIVED Frustrated Over Biopsy
love2travel replied to jemms's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Last night I attended an interesting lecture by one of Canada's leading authorities on celiac disease (a gastroenterologist). She said that only 39% of all biopsies (in Canada, at least) are done correctly! She said to make sure that at least 8-11 biopsies are taken, not just the usual 3. Interesting stuff. -
In the general population in Canada the prevalence is at least 1-2% but likely more. She said that over 80% remain undiagnosed largely because of the long delays in diagnosis. Waiting lists for such specialists alone can be up to two years. She said that in the US only 5% are diagnosed. In Canada the mean age at diagnosis is 46 (+/-16) years. For...
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Will look up the numbers after lunch in a few minutes. I did rat out the GLUTEN LADY table. There was general shock and disgust. The lady felt absolutely awful and looked frightened, too. It was unbelievable. There were many attending who never would have known that the gluten-free pretzels look different than gluten ones. I would be interested...