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mommyto3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommyto3

  1. mommyto3
    I think you can claim the Celiac on your income tax so you get a deduction for the extra cost of food but from what I've read, they make it so difficult to calculate/corroborate that the effort isn't worth it for most. I really am considering switching doctors. The only trouble is that there are 5 of us including me and my husband and finding a doctor...
  2. mommyto3
    I can't believe how uneducated some doctors are! It's scary.... Lately my husband has been breaking out in really bad rashes around his armpits that are super itchy (he hasn't switched soaps or deoderants or anything like that). The skin eventually breaks in places as he scratches and then the rash kind of scabs over in places but is still really angry...
  3. mommyto3
    I hear a lot of mention about Lyme disease on this board and people who are tested for Celiac are often tested for Lyme too. Is there a connection? Just not sure why these two seem to be mentioned together all the time. Thanks
  4. mommyto3
    We were spending $1200/month for a two adults and 3 kids (1 adult and all kids on gluten-free) but I've since cut out most of the organic fruits and veggies to save money so we're sitting at about $1000 now. Our Udi's bread alone costs us $15 - $20 per week!!!
  5. mommyto3
    How much is the Udi's bread going for? I know there's one store in Toronto that carries it but they're charging $7.50 per loaf! I cross the border and get it for $4.00 per loaf in Buffalo.
  6. mommyto3
    I really have to second the suggestion for Udi's bread. My life was sandwich-free until I found Udi's. Now I bring a sandwich every single day to work and it's AWESOME!
  7. mommyto3
    Can somebody provide me with the name of a lab who tests (reliably) for Lyme? I've read about a lab in California but I can't find the name. I'm in Canada and I have a lot of the symptoms. I know when I go to my doctor she is going to give me a hard time (she's not very approachable) so I want to research the testing on my own to prepare in case she won...
  8. mommyto3
    Hi all, I've been having this terrible twitching all over on and off for a couple of months now. It seems to be getting worse and I now have shooting nerve pains, burning and some pretty massive twitches (some that jerk my whole shoulder). Not liking this AT ALL. I've had mild twitching on and off for a few years now but nothing like this. It...
  9. mommyto3
    Sorry I don't have any advice for you but I can say that my daughter behaves much the same (without the head banging). She's only 2 but she has the worst tantrums I've ever seen. I've honestly never heard a child scream as loud as mine and the violence of her behavious is really disturbing. She's constantly mad at the world and we also "tip toe" around...
  10. mommyto3
    I'm glad to find someone else who also has BFS. Mine started after back surgery about 10 years ago and during the recovery I was SUPER stressed. I also think that's when the Celiac was triggered. Saw a neurologist who said I have an "overactive nervous system" whatever that means and said the twitches are harmless. He told me not to drink coffee. I...
  11. mommyto3
    You mentioned you often feel like you have a UTI but you don't. I felt like that for probably 4 years, on and off, before I found out I had celiac. I had really bad bladder irritation which would cause me to feel like I had to go all the time. Only difference with a UTI is that you have the burning - I didn't have burning with the irritation which is how...
  12. mommyto3
    I'm packing the family up and crossing the border tomorrow to pick up some Udis products and hit up the Wegmans. I'm from Canada and we have a lot fewer gluten free products than you folks in the US. Can anybody give me suggestions of some of your favourite gluten free products from Wegmans (or even other large chains) so I have an idea what to pick...
  13. mommyto3
    Anybody else diagnosed with this? I had crazy twitching, vibrating, little electrical shocks, hyper-senstivity (especially along the seams of my pants!)all over my body a number of years ago for a quite a while. Finally went to a neurologist back then who said I have BFS. He said it's an "overactive nervous system" and told me not to drink coffee. I...
  14. mommyto3
    I still struggle with the "what's causing this symptom" question daily. Often I can trace feeling crappy back to not being careful enough but sometimes I just sit there with a big question mark. Maybe it's addt'l food intolerances now like one of the previous posters suggested. Who knows. One thing I'm certain of is that I get tired of the constant...
  15. mommyto3

    ARCHIVED Poll Time:

    mommyto3 replied to Aphreal's topic in Coping with Celiac Disease

    Blueberry Fritter from Tim Hortons!! Ummmmmmmmmmmmmm.
  16. mommyto3
    I don't have any advice as it's so hard to stop kids from sneaking it when they have minimal symptoms. My son is the same. He's 7 and all of his symptoms are behavioural (so he doesn't even realize). That makes it so hard. If given the chance, he will totally eat gluten. For instance he's at a birthday party right now and I know he'll eat the cake if...
  17. mommyto3
    An ER doc diagnosed me with "gallbladder spasms" after they couldn't find anything on an ultrasound for my excruciating pain. I'm like, gallbladdeer spasms huh, you think so? Duh, of course the thing is in spasms! But what was causing the spasms??? To me his diagnosis was just another way of saying "we have no idea". He gave me pills and sent me on my...
  18. mommyto3

    ARCHIVED Neuropathy

    mommyto3 replied to k2626's topic in Coping with Celiac Disease

    I have crazy neuro symptoms just like yours that come and go. And sometimes I swear that I haven't eaten any gluten. It actually seems to have gotten worse since going gluten free but I'm thinking my gluten sensitivity has just skyrocketed so now it only takes a tiny bit to get my nervous system going. It really drives me nuts! I'm actually at the end...
  19. mommyto3
    If you can afford it, I had my son tested through Enterolab. I refused to put him back on a gluten diet for the testing and with this test, you don't have to. Good luck
  20. mommyto3
    Sorry....title should say "Reverse Engineering Udi's" My son and I are hooked on Udi's. Two problems: 1)It's very hard to find here in Toronto and when you do find it the price is $7.50 per loaf and I have to drive across our very busy and congested city. 2) I pick it up in the US sometimes but that is also a huge trek across the border. At 3 loaves...
  21. mommyto3
    I have to say that your symptoms sound exactly like what I get with hypoglycemia. The whole system kind of goes haywire so maybe that accounts for the bathroom part of it? Good Luck
  22. mommyto3
    Thanks everyone! Can't wait to get bakin
  23. mommyto3
    Sorry you had to end up here with all of us but Welcome!! This is a great forum full of supportive and incredibly knowledgeable people. Everything you're experiencing is totally normal. It's a huge life change and a difficult one at that. Scour this board to find out all the foods you can eat. All the info you need is right here! If you don't know...
  24. mommyto3
    My relatives were recently "upset" because I brought my own toaster to a cottage that didn't have a toaster and they didn't understand why they couldn't toast their whole wheat bread in it. I could feel the eye rolling behind my back. I wanted to yell but didn't......in hindsight I wish I had! Good for you
  25. mommyto3
    I found the best gluten free cookies EVER at a local gluten free bakery but they're so expensive that I can't afford to keep buying them all the time. Compared to these cookies, the packaged stuff is totally gross. My son loves the bakery cookies but at $1 each (not that big either) it's getting a bit ridiculous. I'd love to learn how to bake a really...
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