Jump to content

SaraKat

Advanced Members
 View Profile  See their activity

  • Posts

    210

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by SaraKat

  1. SaraKat
    I would eat that. The ones I stay away from are the ones that say they are produced on the same equipment.
  2. SaraKat
    Have you had your thyroid checked? I only ask because before I got dx'd with celiac my TSH was high- so I was a little hypothyroid and they put me on 25mcg of Synthroid and my hair looks great now. It was looking really awful for a couple years before I went on Synthroid, I always thought it was from the highlighting or something, but I guess not. My...
  3. SaraKat
    maltodextrin doesn't have gluten as far as I know- if this is what you are asking. I just found this: Maltodextrin is gluten free. It can be made from a variety of starches, including corn, potato, rice or wheat. However the source does not matter because maltodextrin is such a highly processed ingredient that the protein is removed, rendering it gluten...
  4. SaraKat
    I used to be a tanning bed person in my teens and 20's and I had a skin cancer removed last year on my shoulder. I would not advise tanning bed use at all. I would try the supplement as the other poster mentioned.
  5. SaraKat
    You didn't do anything wrong, she was probably just frustrated. I feel bad when I go out with my husband and something bad happens with the food and I have to send it back or be pushy. It kind of can ruin the mood of the evening, but he is understanding usually.
  6. SaraKat
    A little bit. I was also anemic for years with no explanations. Everytime I would get a physical I would always be anemic. No Dr made it seem like a big deal, so I didn't either because I felt OK, always kind of tired, but got by. Then, in 2009 I started getting the joint pain (in the ribcage) and I had a few more blood tests and this time they tested...
  7. SaraKat
    Did they tell you to get an endoscopy too or have a follow up appt? Welcome to this site, I have found it amazing since I have been diagnosed (in the fall). Sounds like you def have it, but usually they will want to biopsy the intestine too to see the damage. The diet isn't that bad, it takes some learning at the beginning, but once you know what...
  8. SaraKat
    No, apples and PB have been one thing I have been eating a lot of since the diagnosis. I agree it might be a morning thing though, I usually eat them in afternoon. Maybe try changing the time up?
  9. SaraKat
    I really think the minis have gluten. I was feeling so great from Oct-Dec and then during xmas I was eating the minis a lot since they were laying around during the holidays. I probably had 5-10 a day for a week straight. I started having my celiac symptom of left sided pain and couldn't pin point as to why. Before I ate the minis I Googled Hershey...
  10. SaraKat
    A rheumatologist ran my celiac panel which was positive and then referred me to a GI Dr. I have been seeing him since. He did the endoscopy and I have my follow up blood test with him in a few weeks. I was wondering the same thing though- he told me it is just blood tests from now on, so I am thinking I could just go to my regular Dr. My GI seems pretty...
  11. SaraKat
    I read somewhere that the regular sized bars are, but the minis aren't? Specifically the milk, special dark, and mr goodbar. I know the Crispy ones aren't. Anyone know for sure?
  12. SaraKat
    From my experience chocolate is iffy, you have to read each brand's labels. Sorry probably not much help!
  13. SaraKat
    I would ask the dermatologist to biopsy the rash. I would also get a copy of the blood work, see if they tested Reticulin AB. I heard that one is usually positive for celiacs that have DH. I had a rash behind my knees in the summer and my derm biopsied it and it was not DH, it was an eruptive syringoma. There are a lot of skin conditions out there...
  14. SaraKat
    I doubt it. I had a positive blood test for celiac 8/15, I had the endoscopy 8/31 and I stopped eating gluten when I got my blood test (I know I shouldn't have, but I felt so crappy I did). Looking back it wasn't 100% gluten-free though since there is so much to learn on the diet. Anyway, my endoscopy was positive and I was given another blood test...
  15. SaraKat
    I am 5'9" and was dx'd at 35. My Dr told me it definitely was triggered after childhood or I wouldn't be this tall.
  16. SaraKat
    It sounds like you have it. I think my original number was 38 (with the same range you had) and my endoscopy was very positive.
  17. SaraKat
    I am the biggest scaredy cat with medical stuff- I used to faint getting my blood tested. Honestly the endo was not bad at all- I don't remember any of it and it was super quick. The worst part was getting to the hospital at 6:30AM! No big deal at all.
  18. SaraKat
    I know nothing about probiotis, but I hear them being mentioned here a lot as being good. I just noticed they are advertised on my Chobani yogurt that I started eating a couple months ago. Is one yogurt enough probiotics on a daily basis to help?
  19. SaraKat
    I was diagnosed in Sept, I never have/had abnormal stools- unless I was sick or something. So strange how this disease affects peopel differently.
  20. SaraKat
    It looks like you definitely have celiac- I think they say false negatives are common, but false positives are not. I would have the endoscopy- that way they can see how bad your damage is. How old are you if you don't mind me asking? I just got dx'd in September with no GI issues. Why did your Dr test you for celiac? What were your symptoms? ...
  21. SaraKat
    I didn't have any GI issues, but my blood was very positive. If it was negative I probably would not have had the biopsy.
  22. SaraKat
    I was diagnosed in August 2010 and I am 35. I get down about the diagnosis when I am not feeling well (like now). I have had 3 bouts of not feeling well since the diagnosis. It is hard, but I try not to get too down. I try to exercise a lot, usually I can do that even when I am not feeling well. My main symptom is pain in my left side and when it is...
  23. SaraKat
    I get breathing issues sometimes too- I attribute it to anxiety since I have had so many tests and everything seems to be OK. I definitely am an anxious person and the celiac dx didn't help! LOL
  24. SaraKat
    Hi- I was dx'd in August and my levels were really high. I have to get my follow up blood test next week and I have a question- I have been pretty strict with my diet, but I do know of 4 definite glutenings and I think over XMAS some of the chocolate I was eating had gluten (since I had some pain). My question is: if you are gluten-free for 6 months...
  25. SaraKat
    I was just dx'd in Sept and I was at a party the week later and someone gave me a piece of pie for dessert and I started eating it, my best friend was like- are you supposed to be eating that?? Totally hard to break the habits, I can relate! Where was your pain pre-diagnosis?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.