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Emilushka

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Everything posted by Emilushka

  1. Emilushka
    If your insurance will cover it, get it done! I agree with everyone above who said it's better to know. This is your body and your health. If you're wondering, go for it. Get the answers you want. I personally chose to NOT get the bone scan, but I also chose to put myself on calcium supplements and weight-bearing exercise instead and just assume I'm not...
  2. Emilushka
    I'm a med student. Not as good as the pathologists who will look at your biopsies. BUT I have seen a bunch of colonoscopies and endoscopies and I know something about medicine. The mild atrophy is highly suggestive of Celiac Disease. You're right on in thinking that that supports the diagnosis. The erythema and petechiae do suggest gastritis. This was...
  3. Emilushka
    I find that plain-ish rice helps me. That and sips of water.
  4. Emilushka
    While there are IgA antibodies on mucosal surfaces, those same antibodies are not on the skin. Big difference.
  5. Emilushka
    My biopsies didn't even indicate Celiac, but I'm pretty sure I had some serious stuff going on somewhere that didn't get biopsied because I was starting to get nutritionally-related problems. So. The biopsies are far from perfect, and I totally hear you on the feeling-worse-than-the-biopsies-showed thing!
  6. Emilushka
    AMEN. That's the only reason I gave up my beloved cheese.
  7. Emilushka
    Just keep doing what you're doing. Stay gluten-free, be as healthy as possible, see your doc for routine check-ups. Make sure you don't ignore problems. That's honestly the best any of us can do, since we can all get hit by a bus tomorrow and negate all those pesky lymphoma risks completely. Don't try to take your odds from this research. There's just...
  8. Emilushka
    I got both ends scoped. They didn't have the Celiac diagnosis yet and were still trying to figure out what's what. Celiac disease doesn't increase your chances of colorectal cancer, which is what they were most concerned with when they found the occult blood was positive. So don't worry - your Celiac disease isn't making that any worse! The worst part...
  9. Emilushka
    Any random testing under 200 is counted by your doctors as normal. It's ideal for there to be as few fluctuations as possible. Fluctuations are caused by high-sugar items like cookies or soft drinks or juices. Even fruits can cause spikes and then resultant dips in your blood sugar. When you take in a glucose load (a meal high in sugar), that sugar floods...
  10. Emilushka
    Remember: one article isn't enough to create clinical guidelines. I found the article you were talking about. They only looked at 300 patients. Celiac is so different between people that I would wait until you see more studies before jumping to conclusions about yourself. The key finding from this article is that there may be some usefulness to getting...
  11. Emilushka
    From a medical standpoint, the lower you can get your IgA (closer to normal) the better for your chances of healing. I don't know what the magic number is that will allow you to heal, but higher antibody levels mean that there's a response to SOMETHING, and unfortunately with Celiac, the response is the problem. So my guess is that you'd need to get your...
  12. Emilushka
    There is a known link between Celiac disease and infertility, although as far as I know nobody knows why or if the risk is lessened by being on the diet. For all of you who have lost babies to miscarriage, my heart goes out to you. I'm sorry for your losses.
  13. Emilushka
    The DEXA is doing a density scan of your bone, so those colors refer to the bone's actual density, not the likelihood of fractures. With severe Celiac damage you could have lost bone density for sure, but the nice thing is that, as a 24-year-old male, you're going to get it right back quickly once your gut heals. However, keep in mind that a radiologist...
  14. Emilushka
    I know they can't be that expensive or complicated because my sister has one. I'll ask her what kind she likes when I talk with her next! ETA: This is what she directed me to. She says she had a SoyQuick, but she broke it by washing it. Also probably because she is a klutz (she and I are so alike ... ) Open Original Shared Link
  15. Emilushka
    Some doctors will be willing to give you a "clinical diagnosis" of Celiac based on the fact that you responded so well to the gluten-free diet. Talk with your doc about that and describe in detail how things have changed for you since stopping gluten. For what it's worth, my blood tests were positive and my biopsies were negative, but my doc said he believes...
  16. Emilushka

    ARCHIVED Enteroscopy Biopsy

    Emilushka replied to Susie A's topic in Doctors

    I think it's useful to make sure you don't have any ulcers or other problems caused by Celiac. Since people with Celiac tend to develop bacterial overgrowth in the small intestine, it might be helpful to get some biopsies to attempt to quantify damage and see if there's anything major to be concerned about. I'd go to a different GI doc to get the encoscopy...
  17. Emilushka
    Good luck! Keep reading up on things and figuring out what works and doesn't work for you - this is a process. I hope your process is reasonably smooth ... The cold turkey thing is a great point. Also, my GERD and gastritis are very much Celiac-related. I kept having breakthrough symptoms despite meds and more meds and Tums. Now, with the gluten...
  18. Emilushka
    I'm really glad that your values are still within the normal range! That's good. Potassium especially, when outside normal range, can actually be very dangerous. So that's a relief to hear. Do you take thyroid replacement? Levothyroxine? Maybe it's time to get the TSH checked again. Remember: if this is Celiac, you can't heal unless you stop eating...
  19. Emilushka
    As much as it hurts me to suggest this, you can purchase Facebook bucks (or whatever they call them) in a gift certificate for her. If all she likes is FB, maybe that's what would make you THE SUPER COOLEST EVER. Who knows. At that age, it's a crap shoot.
  20. Emilushka
    Right, but whereas the BUN and Creatinine are just potential signs of things not being quite right, the low sodium and potassium are potentially seriously problematic for the brain and heart. I think the BUN and Cr will fix themselves once lovinit4 gets to the root of the rest of the problems without too much trouble. At least we know there's no kidney failure...
  21. Emilushka
    The BUN and Creatinine are usually tests of kidney function. The fact that they're low is usually fine - the kidneys are doing an EXTRA super job of filtering waste products! My biggest concerns are the other values, especially the sodium and potassium. Those shouldn't be chronically low. That's why I suggested the other testing, and why I really think...
  22. Emilushka
    It really did. When I feel semi-OK, the biking is a lot better than the running. I think it's all the bouncing and impact from the running. Shaking up my guts is just not the happiest thing to do when I'm on the fence about feeling OK. But I really do need to get my cardiovascular system moving, and the exercise bike is a great way to do it. I think...
  23. Emilushka
    It's certainly possible but I don't think you could possibly use those lab results to diagnose Celiac Disease. Celiac causes the body to attack the gut in a spotty fashion, so it's not continuous (or consistent) damage. Everybody's symptoms and electrolyte lab values are different. So could you have Celiac? Sure! But is this definitely Celiac or would...
  24. Emilushka
    I recently ran my very first 5K. I'm a brand-new runner, and I was a LAZY kid and quite a lazy person up until I started working out a few months back. Now I use workouts as my mental health fixer, which works well unless I'm having a Celiac relapse. The full-blown relapse time really did require a full break. I didn't even think about not working out...
  25. Emilushka
    Yeah. I basically took today as a sign because I do really enjoy running. I did an easier workout instead today so that I wouldn't be a total lump. I did basically what you said, only I used the exercise bike instead. I find that a lot easier than running for whatever reason. So I used the exercise bike and it felt good. Hopefully tomorrow running...
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