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Emilushka

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Everything posted by Emilushka

  1. Emilushka
    YAY! That doc is like gold. Don't lose her. :-)
  2. Emilushka
    You can definitely have a negative set of blood work and then a positive biopsy. The blood tests aren't perfect and won't catch everyone. The biopsies are the same, but with the biopsy you have the additional chance that if there's something else going on, you'll find it, and also that you can hopefully see how badly damaged your intestines are and know where...
  3. Emilushka
    Her doc might be hoping to spare her another month of misery by stopping gluten sooner. Also, if they're sure of the diagnosis (or reasonably sure) and stopping gluten as a trial would confirm it, then why not test for Celiac the "easy" and "old-fashioned" way by just having her eliminate it from the diet? It strikes me as convenient to avoid the blood...
  4. Emilushka
    The antibiotics won't make a difference. What will matter is whether or not you're eating gluten. If you're off gluten, the test could be falsely negative. My best advice: get the bloodwork done, then get off gluten and see if you get better. There's no reason to delay your health any longer than absolutely necessary. Best of luck to you!
  5. Emilushka
    Being gluten-free should help your immune system. Sounds like a nasty bug and I hope you feel well soon!
  6. Emilushka
    The only downside was that he hadn't ever heard of cross-reactivity with casein, which is what I've got. He was sure it was just lactose intolerance. Oh well. I guess we all still have something to learn.
  7. Emilushka
    Nobody's perfect, including (obviously) your parents. In this case, I think you know what to do. I wish I could tell you that there's some magical thing you could do to change their minds, but really, it sounds like you just need to keep to the gluten-free diet and ignore them. Sometimes the only thing you can do is take care of yourself and ignore the...
  8. Emilushka
    What I hear is that nonstick and wood retain gluten, whereas plastic and stainless steel don't. I use the same dishes as my gluten- and dairy-eating fiance, but those are all porcelain, plastic, or metal. I have my own pots, pans, and cooking utensils.
  9. Emilushka
    I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free. But I totally...
  10. Emilushka
    It sounds like whatever it is that you have, you can't tolerate gluten. I suggest you take that as reality and just go with it. The tests for Celiac are imperfect. It's worth it to talk with a GI doc to make sure you have the documentation in your chart, but if you're miserable with only a partial serving of breaded shrimp, I think you have your answer. ...
  11. Emilushka
    The magazines are full of it. If the fad diet brings us more safe products that are dedicated gluten-free, AWESOME. Otherwise, I'm sure the fad will pass and we'll be left with our trusted stand-by products. Don't forget that people love a headline, and the headlines are what sell magazines. It's all BS. Let it roll off your back like a bad dream.
  12. Emilushka
    Honestly? It totally sucks all the time. But what I remind myself is that I'm lucky. Lots of people are stuck with diseases that require medications (and every medication has side effects and problems). I got stuck with a stupid autoimmune disease that can make me miserable ... but only if I eat the wrong foods. Honestly? I'll take it. You're right - IT SUCKS...
  13. Emilushka
    If it's dominating your life, then that would be the point when it's too much. Maybe it would be better if you could organize your food more in advance so that it isn't such a constant thought. It's totally understandable that you would think a LOT about something this hard to control and this debilitating. However, you need to have a life that isn't dominated...
  14. Emilushka
    You can also find Lara bars online if you can't find any stores nearby that carry them. I imagine the same is true of Kind bars.
  15. Emilushka
    I can't imagine how you could cheat a lot and not be very ill and miserable ... I could imagine if you felt the need to cheat once a month or something because you missed pizza, but for me personally, the dread of feeling horribly ill outweighs my (incredibly huge) love of cheese and wheat. Then again, there is a recent study that compared people who were...
  16. Emilushka
    Keep in mind that everybody's sensitivity levels are different, so while cookware might be a problem for one person, it might not for another. Everybody's antibodies are probably slightly different and bind in slightly different ways, so for some, it might take more than a trace amount to trigger an autoimmune response and for others, the cookware might be...
  17. Emilushka
    The way the immune system works, it will react strongly to even a very small amount (trace gluten left on your cookware, for example) with a full-blown reaction. The question is just how sensitive your immune system is. Especially when you're first detoxing it's wise to be a little extra-paranoid and get either new non-stick cookware or use stainless steel...
  18. Emilushka
    They sell them at Kroger and Meijer in Ohio (large grocery stores).
  19. Emilushka
    At least you're on the right track now. Celiac damage is usually progressive, so hopefully for a while you were still getting some of what you needed. Just focus on moving forward from here. Sublingual B12 if that's your worry - it can't hurt to have a little extra just in case! I hope you feel better soon.
  20. Emilushka
    I second the Lara bar idea and nut butters. Maybe add a Lara bar as a mid-morning snack and a peanut butter sandwich on Udi bread (or whatever else you like) as a mid-afternoon snack? That would get you around 400 extra calories, which should help you to jump-start your weight gain back to a healthy weight. It also wouldn't require trusting strangers or much...
  21. Emilushka
    No disrespect meant to your sister, but the Celiac research and medical knowledge is new stuff. I'd bet money she has no idea what she's talking about when it comes to GI stuff and any recent developments, so in terms of Celiac Disease knowledge, she's no better than a dude walking down the street. Docs don't keep up with areas of medicine that aren't their...
  22. Emilushka
    One point nobody has made yet is that the gluten doesn't have to get through the skin barrier for the person to react to it. There are antibodies in the skin that cause reactions (just like a person can get a topical reaction to nickel, for example). Why does it have to be the same leaky gut mechanism on the skin for a person to react to gluten-containing...
  23. Emilushka

    ARCHIVED Burning In Upper Stomach

    Emilushka replied to Mayflowers's topic in Doctors

    Acid reducers cause bone problems because reducing the acid in your stomach causes decreased calcium absorption. So if you need extra and you're taking the right amount, once you reduce the acid in your stomach, you're decreasing the amount of calcium that actually makes it into your body. Pepcid does also reduce acid. It's a different class of drugs from...
  24. Emilushka
    First of all, you deserve MAJOR HUGS (((((((HUGS))))))) I am so sorry. But honestly, the way that you're talking, you sound like a really strong person and in a way, this couldn't have happened to a better person. Even through your ranting you stayed positive overall. You never lost focus on the fact that this part is awful, yes, but later will be better...
  25. Emilushka
    The biopsies may or may not be positive. The biopsies look for something different from the antibodies (they're looking for the damage to your intestines) so it's possible for the biopsies to be positive while your blood tests are negative. The way Celiac damages the gut is very splotchy, so there are always chances that they will miss the parts that are...
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