ms-sillyak-screwed
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Latest Celiac Disease News & Research:
Everything posted by ms-sillyak-screwed
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ARCHIVED What Does A Typical Day Of Eating Look Like For You All?
ms-sillyak-screwed replied to BeccaM's topic in Coping with Celiac Disease
skinnyminny -- I have a question do you eat GLUTEN? "with Corn bread spagetti with applesauce" "Spinach Lasanga" Don't mind me -- I can't eat many things other Celiac's can like corn, dairy, and anything packaged etc. What I listed above you posted are they just a name brand or are you eating gluten? I'm Italian and miss pasta Sundays. But... -
ARCHIVED Sleeping
ms-sillyak-screwed replied to lorraineeischen's topic in Related Issues & Disorders
paulasimone -- Thank you for your thoughts and you are right-on it. The thyroid doc is very nice but I really question her ability. She went on vacation right after my RAI and I had no way of contacting a doc for weeks and without being on any thyroid meds following it I have developed a heart issue now. Beyond that -- I have called around other typed... -
ARCHIVED Need Doc In Tallahassee In Fl - Fast!
ms-sillyak-screwed replied to floridanative's topic in Doctors
floridanative -- How did your mom do at the doctors in Tallahassee? I wish I knew one... You must have heard the joke/expression if you are from Florida. Do you know the first place to go when you get sick in FLORIDA? Just like those silly emails people send. Scroll down * * * * * * * * * * * * * * * * * * * * * * ... -
ARCHIVED Sleeping
ms-sillyak-screwed replied to lorraineeischen's topic in Related Issues & Disorders
Hi all! I'm here looking for some answers to why I can't sleep. I have been Gluten & Dairy free for 5 years now and I'm not sure what the problem suddenly is. I have always been a night person my entire life I thought it was because I was born at 1:50 a.m. [giggle] and love the night... I don't have kids or a j-o-b so my time is my own. But in the... -
ARCHIVED Questions For Veteran Celiac's
ms-sillyak-screwed replied to Flyingmango's topic in Coping with Celiac Disease
I have never been pregnant -- but those seasick wrist band really helped me a lot when I was on my boat yachting. I was an avid boat my whole life and have never been seasick in my life. I swear by them and used them in 12" seas in a fierce storm when others were hanging over this side green in the face vomiting. You can buy them at West Marine or any boating... -
ARCHIVED Questions For Veteran Celiac's
ms-sillyak-screwed replied to Flyingmango's topic in Coping with Celiac Disease
Flyingmango -- I don't know as much as many other here but I have been gluten dairy free for 5 almost 6 years. (I don't know anything about GERD surgery at all.) BUT I will tell you what I have learned the hard way about celiac disease. Many Celiac's also have a problem with dairy, for me it all dairy and also is eggs. It wasn't so hard because my reations... -
ARCHIVED Dreams About Food - A New Thing
ms-sillyak-screwed replied to DingoGirl's topic in Related Issues & Disorders
I had a dream the other night in the middle of insominia... My dream went like this ~ I was eating Italian pastries some of which were over stuffed cannoli's, cream and puffs, napoleons, pignoli, biscotti's, sfogliatelle's. I was chasing down my wedding cake with a double cappuccino right before I stuck my finger down my throat and made myself vomit... -
ARCHIVED Natural And Atrifical Flavors
ms-sillyak-screwed replied to HeatherMelissa's topic in Gluten-Free Foods, Products, Shopping & Medications
jerseyangel -- debmidge -- You are both very right -- I really have issues with the companies labeling "Natural And Atrifical Flavors" It might have some little thing that someones system can't tolerate and poses a problem for us. I just wish they would me honest and come clean and label every little thing so we can make clear choices. Like for... -
ARCHIVED Not feeling well
ms-sillyak-screwed replied to mario's topic in Gluten-Free Foods, Products, Shopping & Medications
I did some research for you... Don't know if you have secondary allergies to food like I do but it appears there are hidden things in this. Also it might be CC becace they make cherrios and they are made out of wheat if my memory is right. I can't do CORN, maybe you can. Here are a few problem ingredients I see. See below \/ modified corn starch -- caramel... -
ARCHIVED Doctors Vs. Pharmaceutical Companies
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Doctors
Thank you all for taking the time to write and help in putting our heads together on this. I think we might have something here. Tonight over dinner with my daddyO we went over all of your postings one by one. Earlier today I printed out this thread and this afternoon he read all of it. First I want to give you a little background on my darling 85... -
ARCHIVED Hydrolyzed Soy Protein?
ms-sillyak-screwed replied to kerri124's topic in Gluten-Free Foods, Products, Shopping & Medications
In New York and Boston slang they say "Bad" is good! [giggle] -
ARCHIVED What Does A Typical Day Of Eating Look Like For You All?
ms-sillyak-screwed replied to BeccaM's topic in Coping with Celiac Disease
skoki_mom ---- Have you had your thyroid checked? Oh and bankruptcy is enough stress to flip you out.... Stress is bad I know Open Original Shared Link I read somplace that some of us are really skinny and others are not; sometimes with celiac disease the body stores fat because it thinks it's being starved. -
A few great book I've just read... "LIVING WELL WITH AUTOIMMUNE DISEASE What Your Doctor Doesn't Tell You... That You Need To Know" by MARY J. SHOMON "THE AUTOIMMUNE CONNECTION" by RITA BARON-FAUST & JILL P. BUYON, M.D. "Breaking the Vicious Cycle" is also a very good book. If you can't afford them go to your local library. If they don't have...
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ARCHIVED Hydrolyzed Soy Protein?
ms-sillyak-screwed replied to kerri124's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link < this link will explain why. Yesterday a doc (I trust) confirmed it for me. But read this and judge for yourself. I wish someone told me this 5 years ago before this happened to me. -
ARCHIVED Not feeling well
ms-sillyak-screwed replied to mario's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link I wish someone told me this 5 years ago. My doctor (the one I trust) confirmed it yesterday. -
ARCHIVED Westsoy Soymilk
ms-sillyak-screwed replied to mookie03's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link <<< this is the link why. Find out now, before it's too late... I'm on a mission to help educate other that might end up like me with THYROID PROBLEMS or worse. Jnkmnky -- I'm with you! -
ARCHIVED Weird Answer From Tetley Canada
ms-sillyak-screwed replied to gabby's topic in Gluten-Free Foods, Products, Shopping & Medications
chamomille is in the RAGWEED family so if you have other allergies that might be the reason. It happens to me too... Today I made phone calls to food companies again. I wanted to know what the NATURAL FLAVORS are in CELESTIAL SEASONING TEAS. I was shocked at the answer... the womans said I can't and won't tell you. It's proprietary and they don't have... -
ARCHIVED Natural Flavorings Etc.
ms-sillyak-screwed replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
Today I made phone calls to food companies again. I wanted to know what the NATURAL FLAVORS are in CELESTIAL SEASONING TEAS. I was shocked at the answer... the womans said I can't and won't tell you. It's proprietary and they don't have to tell us. She said it doesn't have Gluten but beyond that she wouldn't tell me anything. pro·pri·e·tar·y a... -
ARCHIVED Natural And Atrifical Flavors
ms-sillyak-screwed replied to HeatherMelissa's topic in Gluten-Free Foods, Products, Shopping & Medications
Today I made phone calls to food companies again. I wanted to know what the NATURAL FLAVORS are in CELESTIAL SEASONING TEAS. I was shocked at the answer... the womans said I can't and won't tell you. It's proprietary and they don't have to tell us. She said it doesn't have Gluten but beyond that she wouldn't tell me anything. pro·pri·e·tar·y a... -
ARCHIVED Please Help Im So Sick!
ms-sillyak-screwed replied to skinnyminny's topic in Gluten-Free Foods, Products, Shopping & Medications
Did you say GREEN BEANS? I thought I was okay with LEGUMES for about 5 years until I had a food allergy test and came back SOY was a major food allery for me. SOY is in the legume family along with green beans. Soy cause my thyoid problem. My doc (that I trust confirmed) it again yesterday. I am also one of those celica's with a problem with corn.... -
ARCHIVED Hemp Hearts
ms-sillyak-screwed replied to Canadian Karen's topic in Gluten-Free Foods, Products, Shopping & Medications
Canadian Karen -- HI! How are the hemp hearts working out long term? Does it pep you up or mellow you out? I have problems sleeping too. I noticed you have collagenous colitis. Is that like (I think it's called) non-responsive Sprue? Or non-responsive Celiac? Do you also have secondary food allergies? I do. I found it stemmed from SOY. -
ARCHIVED Levoxyl-
ms-sillyak-screwed replied to jmj0803's topic in Gluten-Free Foods, Products, Shopping & Medications
I take Levoxyl -- If you have second food allergies it might pose a problem like what had begun for me. I believe it has CORN in it. I have a hard time with corn. I went to have a compound RX and it needs to be refrigrated. And I've lost power for 3 or more weeks at a time due to the hurricanes so I went back to LEVOXYL and its become a problem again... -
ARCHIVED What Does A Typical Day Of Eating Look Like For You All?
ms-sillyak-screwed replied to BeccaM's topic in Coping with Celiac Disease
pinkpei77 -- Sorry I couldn't resist, what a cute loveable face in your pic... -
ARCHIVED Beware Of Soy!
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Related Issues & Disorders
Keep listening to doctor(s) = keep being sick! Or live in denial. Like most people that find out the hard way... -
ARCHIVED Ingredient Deciphering
ms-sillyak-screwed replied to kari's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry to say to me it's filled with poison. I did a little research on a few ingredients below. Many of the food being sold on the shelves are from the old labling. And will be there until the consumers buy up what there is. Sad isn't it?! If you don't feel good this might be why... Here goes: maltodextrin = What is a maltodextrin? maltodextrins...