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julie5914

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by julie5914

  1. julie5914
    Colonoscopy is harder than endoscopy IMO (I have never had endoscopy though) because you aren't given anything to sedate you that strongly. Sometimes they give you a sedative - you may want to ask for that. The worst part is cleaning out - you basically stay up all night cleaning everything out for the procedure and it is no fun. Colonscopy is a little...
  2. julie5914
    uff, yeah, I remember how long that wait was for a diagnosis. I certainly hope you get some answers and that if isn't celiac it is treatable!
  3. julie5914
    Yeah, I was anemic but not underweight at all - I had gained actually, not sure if it was related though. I started feeling better digestive wise within a few days to a week. It has been a month now, and I continue to feel better and better, but it was just such a big thing to have the digestive problems start going away.
  4. julie5914
    Haha, yeah, being a food critic is out. I imagine jobs that involve a lot of travel would be hard, but they couldn't turn you down if you wanted to do it. I wouldn't want to though - I don't like going out to eat anymore. Guess I am a bit of a control freak!
  5. julie5914
    Yeah, you do not need an endoscopy necessarily, esp. since your blood tests were all high and pos. If your doctor diagnosed you and you know you feel better without gluten, you are good go full speed into the gluten-free diet.
  6. julie5914
    Well, with my wedding cake there were little stands separating the teirs, so the cakes didn't touch, and you could tell by size which layer was which. I meant to say to the top gluten-free and the rest with gluten with gluten-free pieces set aside that you can feed each other, btw. I accidentally said make the top gluten-free and then the rest gluten...
  7. julie5914
    If you have celiac, no, you can't eat regular wedding cake. But, since you stil have 18 days, I doubt they have made your cake yet. Call them and ask them about it - you can replace the flour with gluten free flour. Pamela's makes all kinds of baking flours for cakes and things. I'm sure if you provide the flour and tell them where to substitute it won't...
  8. julie5914
    Eating gluten doesn't cause celiac - you couldn't have prevented it in any way. I don't think it is known yet what activates it in those of us who didn't get symtoms until later in life. Among those of us who haven't had symptoms since we were very young, we also don't really know if damage has been occurring all along with no symptoms of it the disease itself...
  9. julie5914
    I wanted a diagnosis, and I would have done it if my doctor wanted it for diagnosis. They diagnosed based on blood tests alone though since they were so high and since I had the EMA positive. I was happy because I felt like they were right, I didn't want to wait anymore to start the diet, and it saved me time and money to not have to do the procedure. They...
  10. julie5914
    I don't think anyone really has IBS. UNC Chapel Hill has a center for Gastrointestinal Research - one particularly for motility - they do a lot of IBS studies. The one that I participated in test patients for all kinds of other things, as well as mobility. So for the mobility, they basically stick a sensor up there with a balloon, fill up the baloon with...
  11. julie5914
    I have apparently started reacting to apple juice, which I couldn't figure out. There are no grains in apple juice. But I had some organic apple juice Friday morning and it made me more nauseated than I have felt in years. I had to leave work. Strange.
  12. julie5914
    I have had this problem since childhood every summer and moisterizing does not help. My parents took me to the doc for it when I was younger and they had no idea what was causing it. I have been gluten-free since mid June and am still having some trouble with it this summer, although it seems to be a little better now that you mention it. It can be kinda...
  13. julie5914
    I like Carrie's suggestion a lot - sometimes talking to doctors is like talking to spouses - you might already have an idea in your head, but you have to make it seem like it's their idea! I did that when I was having migraines - I needed medicine bad and I didn't want to waste any time, so I looked up the terms most used to describe the symptoms and used...
  14. julie5914
    Yeah, from your additional info, it sounds like you do have a decent doctor. It sucks that sometimes you have to wait so long for biopsy. And it seems so much longer with pain and discomfort (whether its you or your child). Check about the insurance to see if it's worth it though. Endoscopy will cost you some percentage, and most insurances "cover" gluten...
  15. julie5914
    Like many, I was diagnosed with IBS at first too. But what was great was when I went to see my gastro's NP Tuesday and she had the same thoughts many of us do. So many people have been thinking they have "nervous stomachs" or "IBS" or "spastic colon" for so long with no help (she listed them all with a sarcastic voice) and this disease is finally starting...
  16. julie5914
    I am 25, and they not require biopsy for me. Blood work was strongly positive and enough. Course they waited a month to tell me that while I thought I was waiting for endoscopy, but oh well. I am happy to be gluten-free now. Maybe you can find a source for your doc to convince them to give your daughter diagnosis without the trouble of biopsy...
  17. julie5914
    What is connective tissue disease? I have stiff muscles more than usual lately and a leg injury I got last Fall from running that won't go away, but I don't think I have anything...
  18. julie5914
    Is your doctor treating you for the blood in the stools - that is not typically a symptom of celiac. What else have they tested you for? You may very well have celiac, but other things need to be ruled out too. Blood in stools can be very serious. Is this a gastroenterologist you are seeing? If not, consider asking for a referral to one. I noticed a big difference...
  19. julie5914
    Print out some info on celiac if you can from a site like this one or another trusted site to bring to your doctor's visit. They may be one of those that still thinks it's really rare or doesn't know much about it.
  20. julie5914
    Right, it's when you know you need to go, but you can't. So it doesn't matter how often. Somedays I go 3 and 4 times, but I don't consider it diarherra. In fact, because I used to be constipated before going gluten-free, I consider those good days!
  21. julie5914
    Yeah, I thought I was getting depressed because I had gained some weight, but once I went gluten free about a month ago, I started feeling much better, both digestively and emotionally. I am less anxious and less depressed, even though I do still feel a little depressed in the morning when I can't fit in my jeans! I have much more energy too, both because...
  22. julie5914
    I know that casein intolerance is linked to celiac, but I don't know to what extent. I have definitely felt better gluten free, but sometimes I react to yogurt (don't seem to have trouble with milk). Most of all, I don't want to be doing all this gluten-free work for nothing and have damage from casein. I know that I am not lactose interolernt from a breath...
  23. julie5914
    What about a gene test? Can't those be done if you are not on gluten? I haven't had one, but that is the gist I got.
  24. julie5914
    Please stay on gluten until you are tested! I don't want you to have to deal with false results. Even a week or two gluten-free will skew your results if the gastro wants to do blood tests and perhaps endoscopy. Colonoscopy cannot be used to test for celiac - endoscopy can. Colonoscopy can just rule out other things like Chronn's.
  25. julie5914
    This is funny - corn and nuts I believe have the same effect on everyone. My sister and I had the most hilarious conversation once about how come corn comes out whole when you are absolutely sure you chewed it when you ate it!
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