
julie5914
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by julie5914
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I have the same issue and also have 3 kids and work. I got my thyroid checked, and the TSH was a little out of range. Thyroid issues are tied to celiac. Mine is under-active/hypo, which makes it hard to lose weight. I have not gone to the doc yet but will in a few weeks and hope to get some medicine. Take the labs first thing in the morning while fasting...
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ARCHIVED Neg Genetic Test But Reacting?
julie5914 replied to julie5914's topic in Parents, Friends and Loved Ones of Celiacs
Right, you should definitely withhold it for the first 6 months. The study I read said to introduce it at 6 months while still breastfeeding - that this is better than withholding it longer. Important to note that this is in the case of preventing sensitivity and allergy. If baby has the celiac gene, it doesn't matter; there is no preventing that. -
ARCHIVED Neg Genetic Test But Reacting?
julie5914 posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi all, I need some advice. I was avoiding giving my 1 yr old son gluten and dairy at first because I am sensitive to both (have celiac + a dairy reaction of some kind). However, I read several studies that said that introducing gluten while still breastfeeding can actually make it better, so I ordered a genetic test, thinking that would give me a definitive... -
ARCHIVED Anyone Else Have It Band Trouble?
julie5914 replied to julie5914's topic in Sports and Fitness
Yes, Iliotibial band syndrome is what it started out as, but I think it is piriformis syndrome now because of the nerve involvement. It's tough to describe. When it's bad, I get deep pain in left butt and outside of left upper leg. It doesn't make me yell, but I want to quit walking. It's starting affecting my back too, esp. when out walking around and shopping... -
I've had trouble for 2 years, been through physical therapy, quit running, quit exercising altogether for several months, and I still have trouble with my left leg. Sometimes I have nerve trouble in that leg as well. An MRI has ruled out back problems and anything torn (it was a normal MRI). I'm stumped as to why this is still bothering me and wondering...
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I have it and I don't know why - My MRI came back ok! It's been bothering me in conjunction with IT band trouble for years now. I'm trying pysical therapy again so that I might have a shot at running again!
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ARCHIVED Let's Talk Turkey
julie5914 replied to julie5914's topic in Gluten-Free Foods, Products, Shopping & Medications
Cool - thanks - I also just found this post, which covers quite a bit. Open Original Shared Link -
ARCHIVED Let's Talk Turkey
julie5914 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Which brands of turkey are gluten and casein free (don't inject the bird with butter or broth/other stuff containing gluten)? -
ARCHIVED Muscle And Joint Pain
julie5914 replied to Budew's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm being lazy and not reading your other replies, but I hope by now someone else has mentioned this. It sounds like a rheumatic problem, such as connective tissue disease. Have you had an ANA test? On another note, I read yesterday that fish oil supplements are suppsoed to help with inflammation. I am going to start trying them soon. -
ARCHIVED Headaches In Celiac Patients
julie5914 replied to jebus's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get terrible headaches as well. I think they may be classified as migraines, but they connect to tension in my neck and shoulders. They seem to worsen with cold weather and other things that would change the size of my bloos vessels like wine or caffeine. I too hoped they would go away with the gluten-free diet, but it has been over a year, and I still... -
ARCHIVED Pins And Needles
julie5914 replied to covsooze's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get this, most recently in my left leg. I had a nerve test which showed no damage. My doctor also ran an ANA test for things like schleroderma and the rheumatic diseases to see if this was the cause (he already had diagnosed Reynaud's a while back). I actually think for me it is my muscles tightening over nerves and perhaps a slipped disk in my back. -
ARCHIVED How Long?
julie5914 replied to bonnieboo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In a couple of weeks I felt better, and then I felt bad for several weeks, but in a different way. I guess I was adjusting. I started feeling completely better after about 6 months or so. -
ARCHIVED Very Shakey, Almost Low Blood Sugar Feeling...
julie5914 replied to a topic in Coping with Celiac Disease
I get this feeling when glutened, but I also get this feeling after standing up in one place for more than 30 minutes or having to walk around a lot. It's a vaso vagal reflex. The trick for me is to keep loaded up on water and sports drink. -
ARCHIVED Fuming...mil Doesn't 'get It'!
julie5914 replied to anerissara's topic in Coping with Celiac Disease
Wow, I get frustrated with my in-laws sometimes with eating out because I get the feeling they feel it is a nuisance and that I am just being picky. However, they would never give me something with gluten on purpose, and they definitely try their best when feeding me, which I appreciate very much. I agree with the earlier post that your mil has control... -
ARCHIVED Before Going gluten-free Was Anyone Else Always Hungry?
julie5914 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had eating disorders as a teen - would basically binge eat. Later, the damage got so bad that I actually never wanted to eat - got full and in pain quickly. If you tested positive, you have celiac and definitely need to be on the diet - it can lead to stomach cancer. Your problems could be something else, but you still need to be on that diet! -
ARCHIVED Any One From Greenville Sc ?
julie5914 replied to Lois23's topic in Introduce Yourself / Share Stuff
Lois, there's a support group meeting at the new Whole Foods this Thursday - 8/31/06 at 6:30. -
Celiac Support group meeting at the new Whole Foods in Greenville (I think it's on Woodruff Rd, but check their Web site). 6:30, Thursday August 31st. Registration is required, so call ahead - my mom said there is still space - there will be goodies!
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ARCHIVED Gfcf Birth Control Pill?
julie5914 replied to julie5914's topic in Related Issues & Disorders
I am just trying to track down what is causing symptoms - can't find it in food... Maybe I should try the patch just for kicks since it sounds like the milk is on all most pills. -
I think my body reacts to casein the same way it does to gluten. Ever since I went back on the pill I started getting headaches and muscle inflammation again - so I started taking them 3 months at a time thinking it was hormonal migraines and I could stop them if I kept a constant flow of hormones. Instead I was giving it a constant flow of casein, and...
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ARCHIVED What Post Diagnosis Tests Should Be Done Yearly?
julie5914 replied to sparkles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was wondering the same - I have my one year anniv. on the diet checkup on the 16th and am not sure what the point is. I have symptoms some still and would like to know for sure that I am healing, but I don't necessarily want an endoscopy. Last blood test was 6 months ago and was still pretty high even though I'm very strict. Sometimes they look at you like... -
ARCHIVED Gluten In Beauty/body Products
julie5914 replied to Yenni's topic in Gluten-Free Foods, Products, Shopping & Medications
I use Garnier Fructis - smells great. I used to use Herbal Essences, but they are a no go - all contain wheat I think. Yeah, I mean, I just stay away from it altogether. I don't do anything with gluten that I wouldn't do with arsenic. A little bit every day will kill ya. -
1st question - I am looking for some Gluten-free Casein-free chocolate. Any recommendations? If it says chocolate in the list of ingredients, doesn't that mean it has milk? 2nd question - I think I am casein intolerant but it may just be lactose. I went to buy some lactose enzyme pills to test, but the Kroger brand (grocery store brand) said that it contained...
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Hi guys, My mom has diabetes T1, and I have celiac. She has had a celiac blood test, but she was told it was negative (it was really more inconclusive). She's always had these itchy spots esp. on her shins and hands and forearms which she attributed to wheat a long time ago because they were less itchy when she avoided it. She would still have some every...
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ARCHIVED Weird Symptoms After 4 Months Gluten Free...
julie5914 replied to mesmerize's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I love the DOs with the more holistic approach. Glad you have one. I felt that way 4 months out and only felt better after I cut out dairy. Just something the try if the doc comes up empty-handed.