plumbago
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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I used to eat their pancake (mix) a lot, but no longer do. I had no reaction when I did. Maybe you're reacting to one of the ingredients / additives - like xanum gum, maybe? -
gluten-free Bread
plumbago replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
It's getting ridiculous. Sad to say, Canyon is my favorite commercial brand, but due to its increased cost lately, I'm buying Udi's (about a dollar less). -
Quick question: What was the result of the biopsy they did for h pylori?
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Thanks @DeannaM. No, it hasn't happened to me, and if it's a complication of celiac disease, I haven't heard it expressed much on these boards. However, if you are vomiting regularly, that could be a big contributor to electrolyte abnormalities including low sodium. I'm not sure what level your sodium was, how severe was the hyponatremia, but it sounds like...
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Can I ask again what diagnosis you left with when you were discharged from the hospital?
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Me in your shoes, @WhatsTheDealiac, I would definitely retest. I quickly looked up the test you took and see it measures blood from a finger stick. I just don't know anything about those tests. So again, me? I'd retest at a lab with peripheral blood. I'd also get a biopsy of your rash, and I'd try to find a celiac specialist near me and try to meet with him...
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I'm not sure about that @DeannaM. What diagnosis did they give you in the hospital? How low was your sodium? Is your kidney function ok?
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Tramadol, if I recall correctly, is a synthetic opioid, or "opioid-like," (at any rate it's a schedule 4 controlled substance and an analgesic) so it will help with pain and slowing digestion. Lomotil may be over the counter. I have no personal experience with it, but working in healthcare, I know lots of doctors prescribe it for things like chronic diarrhea...
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The medications you mention are mostly opioids and synthetic opioids and likely help because one, they are potent pain relievers for sure, and two, they slow many of the body's processes like digestion. They are, as you no doubt know, also highly addictive and present issues of their own. Has your doctor mentioned any other medication (like lomotil) that...
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Suffering Without a Diagnosis
plumbago replied to Jacqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hopefully others will respond, Jacqueen - and welcome to the forum. In my own case, it was a fairly straightforward diagnosis of Celiac, roughly 10 years ago, and ever since, I eat the vast majority of my meals/snacks at home and am generally extremely careful about "outside food," most especially since the pandemic, as I don't eat inside restaurants hardly... -
I would agree with you on the first part. On the second part, you could think about this: have home gluten free, but son can eat gluten outside the home. Seems like the best of both worlds to me! Nowadays, there's just as much (unhealthy) processed gluten-free food, almost, as gluten-containing food/snacks.
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I am also interested in more detail of the cross reactivity test, ie, blood test? Thanks.
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I think most everyone when faced with a diagnosis of a chronic disease definitely wants it to be super crystal clear, and one thing you'll see on this forum is the agony of doubt when it's not. You're not alone - smiley face. Not that we should be comparing, but I was older than you at diagnosis, and here are my results: Ttg-IgA 81 (limit was ...
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Test Results
plumbago replied to vjacinto's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@vjacintoit probably does. Question - when you say What are the letters that come before IgA? -
Yikes is right. While I don't totally agree with the NP's decision, it probably won't hurt to wait. Speculating aloud, I wonder if she just wanted to do everything to ensure that the EGD happens and worried that a normal blood test could lead to thoughts of cancellation. If you really want tests before the EGD, you can always order them yourself and pay out...
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Might as well get more / as many Celiac blood tests as possible: tTG-IgA; tTG-IgG; DGP-IgG; DGP-IgA; Total IgA; EMA IgA. Common vitamin tests for celiac disease patients are B12 and Vitamin D. Sure, you can ask about the number of biopsies. You can also ask how many of these procedures they do or if it is commonly done in their offices, just to...
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I would keep at it with the company - complemented by some research online, using terms like gluten free psychiatry, etc. If you have to, write a letter to someone at quality control at Lupin.
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I test a lot. And before I purchased and ordered my own blood tests - which anyone can do, for a price (I believe we've covered this in this thread) - my doctor would test me. My primary care doctor thought I should be taking B12 even though I was in the normal range. She thought I was low normal and wanted me on it. So really, from all I've been able to...
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My own experience-- I always verify I am low in a vitamin or mineral before taking supplements.
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Personally, I would not skip the blood tests. I followed the traditional diagnostic route of blood tests then biopsy and I'm glad I did because all doubt was removed. If you skip the labwork and the biopsies show no villi blunting then there will be some doubt and the path will not be so clear. Whereas if you do the blood tests and they show positive...
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It's really not that complicated, people do it all the time. I do it all the time. You can go to my Quest and order labs or you can go to LabCorp on demand and order labs, or one of the three other sites offered to you so far. People do this all the time; it's not complicated. You just have to pay yourself. https://www.ondemand.labcorp.com/
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Using the suggestions posted thus far, look on some sites and plug in the tests recommended to get prices. Offhand, two sites I know of are Ulta Labs and Request a Test. You may also be able to search directly on Lab Corp and Quest. Plumbago
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I see what you're asking: you've stopped eating gluten for a total of three days, does that mean the clock starts at 0 now and you have to eat gluten for 6 more weeks. That's a good question. Honestly, I don't know, I'm sorry.
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You need to be eating gluten for more than a few days before the tests. As the person replying to you after me said, the amount of time is actually 6-8 weeks for a blood test, not 2 weeks. And yes, go ahead and start eating gluten now. As for the tests, this is a good site to check out: https://celiac.org/about-celiac-disease/screening-and-diagnosis...
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Hi there, Your derm problems, yes, could be DH (dermatitis herpetiformus), or something else - we'll likely need more information. Passing hard stools can cause tears in the thin lining of the anus, not fun, and I'm sorry to hear that. As for testing, you say you'd pay out of pocket for a colo EGD, but why not start with blood tests which will be far...
