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AzizaRivers

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AzizaRivers

  1. AzizaRivers
    Assuming it's not (environmental) allergies, chances are you're being glutened by something. Could it be CC (from your pots and pans, from other food in your home)? Have you recently started buying a new packaged food that you hadn't had before since going gluten free, that might not be as gluten-free as it says it is? It COULD be another intolerance or...
  2. AzizaRivers
    I wasn't diagnosed until after middle school but I used to have a celiac friend when I was that age (7th grade) who had a doctor's note (can be done with a 504) that she was to take a different class during the term in which she was assigned to cooking. This is tricky. You want him to be able to participate and learn, but sometimes it just isn't safe....
  3. AzizaRivers
    Personally, I can't stand the ease of anything with bean flour in it, which I why I don't use most of Bob's mixes. I'm almost sure that was the source of your problem. I don't use sorghum very often, but the times I have used it, I didn't notice anything in particular about the flavor of it. Cider vinegar helps things rise, in my experience, which could...
  4. AzizaRivers
    Compare it to a peanut allergy. That's the only way to get certain people to take it seriously because it's something they're familiar with. "It doesn't matter whether or not he swallows anything, a minuscule amount of contact to his mouth will cause a serious reaction. It's similar to the sensitivity of someone with a peanut allergy, he cannot put anything...
  5. AzizaRivers
    I've had it. Didn't have any problems with it (their ice cream makes me very sick for some reason, but not the milk). My only complaint is that it just tasted like water, thick white water. I had the plain flavor, and I believe it was unsweetened. Perhaps that's normal for coconut milk, I have no idea. But I was expecting a lovely mild coconut flavor, and...
  6. AzizaRivers
    I can see that you're at your wit's end about this. I don't have any advice--frustration with my university's lack of knowledge or accommodation was one of the reasons I resorted to living at home after the first 2 years. I just wanted to say that I've been there, and it sucks. It's hard to go too far away because then you've got travel costs during breaks...
  7. AzizaRivers
    What you are doing is very dangerous. Sometimes, people who have been gluten free for a long time begin to eat gluten again and have no visible symptoms. It's called a "honeymoon period" by many of us around here, and it's deceiving. Additionally, some people don't have any visible symptoms at all. I know girl in her 20s who was diagnosed as a baby because...
  8. AzizaRivers
    I'm sorry you're having a hard time. Super-sensitivity seems increasingly common. A few questions: do the people you live with, family, roommates, etc. understand the risk of contamination for you? It's helpful if others understand how careful you need to be. Are you using things like wooden spoons and cutting boards, old skillets, cookie sheets? Those can...
  9. AzizaRivers
    Someone who is celiac or gluten-intolerant should NEVER cheat. Never. Never ever. You should be aware that each time you cheat you're doing physical damage to your intestinal lining and raising your risk of developing serious complications later in life, including a few types of cancers. Your family should understand this too, and as the above posters...
  10. AzizaRivers
    Chinese herbal medicine successfully uses the tongue to diagnose a lot of potential conditions of the body, based on the color, coating, etc. Not everything, obviously. But you're certainly right about the tongue often being an indicator of certain things happening in your body. I wouldn't be surprised if your occasional yellow tongue is a symptom of CC...
  11. AzizaRivers
    I vote "Celiac Disease - severe reaction to wheat, rye, barley traces." Or something similar. Would that fit? Hmm. Having it as an allergy might be confusing because people often expect that a food allergy severe enough to warrant a medical bracelet would require an epipen, which I'm guessing your son doesn't have, or if he does it's for a different allergy...
  12. AzizaRivers
    Do you mean that the chlorophyll tablet had gluten somewhere in it? If your rash was DH, there's not much to do but wait for it to go away. For the burn, try lavender oil. It's one of the few essential oils that's safe to apply directly to your skin and works wonders on burns.
  13. AzizaRivers

    thanks for answering my problem....i just wanted to let you know i didnt have any corn today and havent had any pains...:) unbelieveable.

    thanks again :)))

  14. AzizaRivers
    Keep in mind that it can be difficult to test for intolerances (vs. allergies which might be diagnosed by skin or blood tests). Your problems with nightshades are more likely intolerances, as would be corn if that turns out to be an issue too (I'm assuming your corn bread was definitely gluten-free and did not have any wheat in it?). Corn was difficult for...
  15. AzizaRivers
    I'd say so for sure. And if they refuse, you need a new doctor. The above poster had the right idea by bringing it up as a search for other possible causes of your symptoms, since they really should want to do that if they haven't found anything from your blood tests. My blood test was negative also, and like you I hadn't eaten much of anything--in my case...
  16. AzizaRivers
    Hi Jordan. First of all...I'm sorry you're feeling so sick. It really sucks, I know. Many people experience a kind of "gluten withdrawal." I think this is especially common in people who were asymptomatic like yourself. If that's what it is, you just need to stick to the diet and it will go away. Also, new celiacs are often lactose intolerant because...
  17. AzizaRivers
    Jarrow Formulas makes an allergen-free probiotic. They're well-trusted and high-quality. Fairly common so shouldn't be hard to find. Open Original Shared Link
  18. AzizaRivers
    You're probably familiar with the debate on the gluten-free status of oats. 1. They are very often grown with and processed with wheat products, making them usually cross-contaminated unless they are certified gluten-free. 2. The protein in oats is very similar to gluten, so many celiacs are not able to tolerate even certified gluten-free ones (including...
  19. AzizaRivers
    So my partner and I really love making jam and canning things, and because of all of the wineberries in our yard and fields, we've found ourselves with 10 jars of jam (and it's not even peach or blackberry season yet!). He has it on toast or bagels every morning, and I really want to have some but I've only had a little so far because I don't have bread or...
  20. AzizaRivers
    I second the above, as well as agreeing that it would be a good idea to be tested for thyroid issues and anemia (as well as having them rub a full blood panel while they're at it to check for other vitamin deficiencies common--but not guaranteed--in celiacs). If your celiac tests are negative and other possible causes come back normal, since you're willing...
  21. AzizaRivers
    Yup, that's likely a glutening. I doubt it was the vanilla--I've never heard of vanilla extract with a gluten ingredient. It was probably unsafe kitchen tools (a scratched pan with gluten baked in, a wooden spoon, etc.) or possibly someone had been using flour or something in the kitchen in the hours or days before and it wasn't cleaned up all the way.
  22. AzizaRivers
    Yup, it happens. Welcome to the world of celiac.
  23. AzizaRivers
    For several years before I was diagnosed, I had a constant yeast infection that could not be cured by anything, prescription or homeopathic, no matter what I did. I suspect I had intestinal candida that was preventing me from curing it. The week I went gluten-free, it disappeared. I had a weird diagnosis, so whenever I doubt it I just remind myself of that...
  24. AzizaRivers
    My menstrual symptoms, which had been just bad cramps, got worse and worse and suddenly were causing me to vomit predictably on my first day. That went on for a year, and by that time the one day had begun to spread to the first four days, and then before I knew it I was sick every day, period or not, and couldn't keep any food down. The mornings were worst...
  25. AzizaRivers
    Wipe it down with soap and water. 409 and vinegar and stuff aren't really necessary as you can't "kill" gluten, you just have to do a good job wiping it away. You can hit it with 409 but if you haven't done a good job wiping it's still there. Just wipe stuff down often. Avoid having it around in the first place as much as possible.
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