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domesticactivist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by domesticactivist

  1. domesticactivist
    I know this is old but I'd love to know more about the Tourette's. My 11 year old daughter has it. Yesterday she developed a new motor tic that actually hurts her (usually they are just annoying). We were hoping that the gluten free diet might help with tics. She took this as a sign that it's not working. She just started the gluten free diet about a week...
  2. domesticactivist
    Check medicines and supplements, too
  3. domesticactivist
    I think the test is right. The biopsy shows damage that has already occurred. Also, she could have damage in areas that did not get sampled. The fact that your dr said to go gluten-free is a vote of confidence for him. It is important that he listen to you, though. Perhaps she has other intolerances and an elimination diet would help. But first... We...
  4. domesticactivist
    We were hoping the gluten-free diet would cure our son's anxiety but now it seems that may be something else, maybe nightshades.
  5. domesticactivist
    Our son's anxiety hasn't gone away yet, but it is now intermittent. We're thinking it may be nightshades rather than gluten that influences his anxiety. We have not tested it yet.
  6. domesticactivist
    For those of you with the rib pain, I hope you will get screened for cancer. I know this sounds weird but I lost a dear friend because her rib pain was misdiagnosed for well over a year. She was seeing a regular dr, physical therapists, pain specialists, etc and had been through breast cancer years before and still they missed it until she switched to kaiser...
  7. domesticactivist
    Thanks. She does know about gluten-free baking but has spent years perfecting wheat breads. The dad is even worse about food... She'll make a feast from scratch and he'll run to taco bell. Despite health problems, he even still smokes (the wife quit!) I love so many things about them but this is a huge blind spot. I think any kind of change is highly threatening...
  8. domesticactivist
    My son very obviously needs to be corn free but we're finding it really difficult. Hidden corn is everywhere. Last week he came back from his dad's all reactive from who knows what, and he had the stuffy nose the whole time he was here. Then he went back and it cleared up... until today, when his dad took him out to a restaurant with gluten free options....
  9. domesticactivist
    Yeah. The thing is she already knows all about it. Maybe it's just going to take a while. I wish their dr would decide the girl needs testing! Our family is one of those who have gone totally gluten-free for one member. Actually, my ex has, too, so that's 2 households for 1 kid. We've got a different set of priorities on some things, I guess.
  10. domesticactivist
    How is her blood pressure? Too low? Has she been getting protein regularly? I've always tended to pass out easily - blood sugar spikes and crashes are often the culprit.
  11. domesticactivist
    I have a very close friend who knows all about celiac (her mom has it) and who has health problems and believes it is gluten (she did atkins before and felt her best ever) but still insists on baking bread all the time. She also has a son with ADHD issues who has some weird gi stuff, and a tween daughter who has always had an extreme skin rash all over her...
  12. domesticactivist
    I considered it but decided to go with Kimball since they return more information and the kids' insurance will pay since the tax ID they bill with is Labcorp's. My insurance won't pay so I'm leaning toward enterolab and getting the stool sample tests for myself through them as well (package deal for lower cost)
  13. domesticactivist
    We spend far less than most people with a mainstream diet, and we eat organic for the most part, but we do extra work to make it happen. We are involved in a buying club where people coordinate farm direct buys of high quality whole foods and host drops at their homes. We also cook from scratch and avoid prepackaged foods. We have a big freezer and freeze...
  14. domesticactivist
    It's a long shot but I have seen episodes where they had segments that didn't involve crashes or explosions. The tight jeans come to mind. I imagine they could incinerate stuff for this one. That could be fun. The thread I started has well over 1000 views and three checks for ratings. Which is way more than most threads. That plus a troll test indicate controversy...
  15. domesticactivist
    It seems to me that you are doing the right thing by deciding to be gluten free around her for now. I think the support group is a great idea, too. Whether you stay there or not is really up to her and up to what kind of group it is. If it is for Celiacs only then you'll need to leave, but it's more likely that friends and loved ones are welcome. It might...
  16. domesticactivist
    This probably goes without saying, but avoiding caffiene, even small amounts in decaf coffee, may help.
  17. domesticactivist
    I started a thread because my son wants to see gluten destruction on mythbusters Here is a link that has this community's commentary And here is the link Open Original Shared Link
  18. domesticactivist
    I think a lot of people don't want to believe smaller amounts could cause reactions because of their own denial. If they admit someone else reacts to a small amount they might have to consider that those small amounts are harming them silently and consider making a change. Or if they were not diagnosed until they were on death's door, they might not want...
  19. domesticactivist
    I don't have the answers for you but I wanted to tell you that rice flour products (a staple of gluten-free packaged products) constipate me horribly and might be worth avoiding. I'd also get a new dr right away.
  20. domesticactivist
    I was thinking of you and your little guy but didn't get a chance to respond. It sounds like it went really well! I'm happy for you and I'm sure your son will get to enjoy many parties from here on out!
  21. domesticactivist
    Hi, I just got through reading the entirety of both of my children's medical charts in preparation for our dr visit this Tuesday. Wow, there was even stuff in there I'd forgotten about. Anyway, I recorded all the heights and weights and plotted them on the growth charts I got from About.com My 10 year old son has historically been (and still is) just...
  22. domesticactivist
    I don't know about what you are going through, but I wanted to chime in that my son experiences sensations like you described in his leg below his surgery site. The main nerve was not severed, but was moved. The surgeon said sometimes it takes months or years, but it does often heal and regain normal levels of sensitivity. Is there a chance you could be experiencing...
  23. domesticactivist
    I love it
  24. domesticactivist
    I doubt it was the oven or pan since it was scrubbed Pyrex and we've been ok with things baked in it before. We've replaced all our potholders and utensils that weren't stainless steel, cleaned out drawers, etc. I think testing the nuts, arrowroot, and spices makes sense but I don't want to subject the kid to that! Maybe I should order those test strips....
  25. domesticactivist
    You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!
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