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Katrala

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Katrala

  1. Katrala
    I'm not aware of whether or not celiac can cause (or have any affect on) Crohn's. However, if she's been diagnosed with Crohn's, why do you think she has Celiac? Is there something else going on? My GI thought I may have Crohn's (a colonoscopy came up negative) before I was diagnosed with Celiac, so my knowledge is a year old based only on internet readings...
  2. Katrala
    While wheat contains gluten, it isn't the only source. You also need to avoid barley, rye, and oats (unless gluten-free and even then it's not really recommended at first.) I read somewhere on this forum someone referencing the recovery from celiac being more like "slowly turning off a tap" than an immediate wake-up-the-next-day fully cured.
  3. Katrala
    Were you blood-tested for celiac?
  4. Katrala
    What area of the country (if in US) do you live in? There may be a good doctor someone can suggest.
  5. Katrala
    No big deal - I was kidding around. I see your view here. While I agree that the symptoms of both NCGI and Celiac can range from "no big deal" to debilitating, it's the symptoms that I feel are on that spectrum, not the disorders themselves. Oh, I agree that Celiac is an intolerance to gluten. There are different types...
  6. Katrala
    If you are referring to my comments, I never mentioned either people with celiac or without celiac. An anecdotal symptom is that *some* people experience an increased sensitivity to gluten after going gluten-free. The increased sensitivity to gluten is different than the internal damage that is happening with celiac disease. I'm a teacher. If...
  7. Katrala
    My only reason for mentioning PM is because this is off-topic from the original poster's comments. I have always used the terms Asperger's and HFA interchangeably. Those Aspies (and parents of, as I typically interact more with children than adults) that I've dealt with are not opposed to calling themselves autistic, but to having the Asperger's label...
  8. Katrala
    No, I'm not joking. It's not uncommon for some people to experience a heightened sensitivity to gluten the longer they are on the gluten-free diet. I'm not correcting a person with Asperger's regarding anything, unless you're referring to the spelling of Asperger's Syndrome. I have no idea what you're talking about.
  9. Katrala
    The line is most definitely blurred, but to not distinguish Asperger's has serious implications in education, among other factors. To avoid getting too off topic, I'd be happy to discuss this via private message. Both my father and my son have Asperger's.
  10. Katrala
    Can you get ahold of the biopsy? Find out the doctor's standards for diagnosis? Or the pathologist's?
  11. Katrala
    I'd only cut out dairy and/or soy if you are not feeling well gluten-free. Even then, I'd only cut out one at a time to try and identify which, if any, the culprit is. On a different, the celiac / NCGI gluten-free diet doesn't really "splurge."
  12. Katrala
    Before diagnosis every Friday night was pizza night (usually Bi-Lo special frozen pizza / whatever was on sale) and it didn't take long to find a decent recipe to mimic this. The few pizza places locally that offer gluten-free have no concept of CC. Both of my kids (who are not gluten-free) eat homemade gluten-free pizza with me every Friday night...
  13. Katrala
    How was your aunt diagnosed with Crohn's disease? Was it via colonoscopy?
  14. Katrala
    I disagree. I do believe that following a gluten-free diet can cause a sensitivity to gluten. And while your analogy is like comparing apple and oranges in many respects (and for the record, it is Asperger's Syndrome, not disease - and note the correct spelling - every effort at making it sound less like like a sandwich made of rear ends is a plus,...
  15. Katrala
    Whew. Go back and read what I've written. It's like you want to disagree with me so badly that you aren't even really reading (i.e. the "blunt" comment.) Just because gluten is a problem for me doesn't mean that it's a problem for someone else. I'd hate for my friend to spend months hoping to recover by going gluten-free when there could be something...
  16. Katrala
    Yes, I'm blunt. Negative blood. Negative biopsy. Times two. She's a fool for not looking at other causes. Gluten is not the root cause of all problems. She could have something very serious (non-gluten) going on that she is ignoring because she's convinced she has celiac. She refuses other testing because she's so certain (testing, btw, that...
  17. Katrala
    Are your symptoms typically immediate or delayed? If delayed - was there anything new you ate at Thanksgiving that you typically don't eat? Any different brands, etc?
  18. Katrala
    Sure, but it doesn't mean they have celiac. Gluten intolerance / sensitivity and celiac disease are different things. Not saying that the person isn't/wasn't gluten-sensitive, but to have both blood tests and biopsy tell you that you don't have celiac and you insist that you do is just a bit silly. This person actually went to ANOTHER doctor and had...
  19. Katrala
    Yelling and screaming only makes us feel better - it doesn't go far with the medical community. If someone has a positive blood test and a negative biopsy, they need to dig further within that information to find out more regarding the biopsy (standards of the doc to diagnose celiac, areas where biopsy were taken, etc.) If a person feels the biopsy was...
  20. Katrala
    Maybe something as simple as eating way too much on Thanksgiving and stomachache being coincidental? Any chance any of your leftovers could have gone bad? Was the turkey sitting out for a long time before it was refrigerated as leftovers?
  21. Katrala
    Be careful of Wal-Mart brands. Wal-Mart has done a better job at labeling their products, but they still sometimes have gluten in products that most other brands don't (canned vegetables, for example.)
  22. Katrala
    @ Booghead - do you concern yourself with CC, etc? How long have you been gluten-free?
  23. Katrala
    Celiac will only ruin your life if you allow it to do so. My symptoms were almost identical to yours. Yes, the whole thing really sucks. You'll go through a grief-like process and then you'll be better. And then the grief will sneak up on you from time to time and then you'll get over it. At first buying gluten-free processed foods seems the way...
  24. Katrala
    1. Look for "gluten-free" label ("a naturally gluten-free food" doesn't always mean the product is gluten-free; three cheers for Wal-Mart brand, which likes to screw up "naturally gluten-free foods" by adding "may contain wheat" disclaimers.) If it is certified gluten-free, stick it in your buggy and move on to the next aisle. 2. Look for wheat listed...
  25. Katrala
    I'm with you. I know there are people who appreciate these things, but it annoys me to have dietary needs lumped in with dietary choices. I don't have a problem with anyone who wants to eat Vegan, Organic, etc. - that is their personal choice - but I don't want to be grouped in the same category.
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