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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    nora_n nailed it down. One note on the wikepedia article talks about the combining of a DQ2.5 (of which you apparently have half) and the DQ 7.5 to make a DQ2.5. That's a big celiac risk. And the DQ7 is NOT risk-free. How long have you been back on gluten? I feel for you putting yourself through all the discomfort. Two biopsies were not enough...
  2. beachbirdie
    Not if you get it from my doctor's lab. It's why I asked for clarification. She has been frustrated because she cannot get them to do the DGP. She's now going to be sending her celiac testing outside the local health conglomerate collective monopoly errr....system, even though people will likely have to drive 25 miles to get the tests.
  3. beachbirdie
    I Don't Want to Miss a Thing -- Aerosmith
  4. beachbirdie
    I've been trying to learn the "system" so I went out on the web diggng up a lot of gene stuff. To my inexpert eye it looks like you might have a DQ7. Some studies are suggesting that indeed DQ7 MIGHT be implicated in a small percentage of celiac cases, about 2% of them. Hopefully one of the scientifically literate members will see your question and offer...
  5. beachbirdie
    Agreed! You're right, that diagnosis from 9 years ago does not go away! A doc that would tell a diagnosed celiac to go eat gluten needs to be dumped (after whipping).
  6. beachbirdie
    Oh yes! When I saw you post about her, I meant to comment. I read "Rebecca" and "My Cousin Rachel" and absolutely loved duMaurier but that was a lot of years ago! I think my daughter (English major...she's guiding my reading list, LOL) read "House on the Strand" and liked it. I'll probably re-read "Rebecca" soon, I've been thinking about it for a while...
  7. beachbirdie
    My entire family of chocolate addicts is going to love this one! Yummm!
  8. beachbirdie
    You caught a very good point, squirmingitch. The IgA is AT the cutoff point, not BELOW it. To me, that is significant. I posted some stuff on another of the OP's threads, but didn't catch the IgA. Yep, the total IgA would answer a lot.
  9. beachbirdie
    I do hope that the new doctor is a little more intuitive and a little more curious than the one you've been working with! It is definitely unpleasant to be going through all this. It is expensive, and it is a huge hassle. On the other hand, getting health improvements is worth it! It is extremely important to get that total serum IgA. Finding out...
  10. beachbirdie
    O yummm! Thanks for sharing! I'm going to try this one on my donut-loving gluten-eating husband. I cannot convince him that there are LOTS of yummy gluten-free things out there that he can love even though we've fed him lots of them!
  11. beachbirdie
    Well, you can probably safely assume gluten intolerance at this point. Gluten is obviously making you feel sick. It's hard to say "celiac" for sure, because the IgG antibodies are less specific than the IgA ones, and without the EMA or TtG being positive, there is a chance your IgG elevation could be from another condition (see paragraph below). Still...
  12. beachbirdie
    Well, first of all, since they do not appear to have done a total serum IgA, none of the IgA results mean a thing. If your total IgA is insufficient, ALL your IgA tests will most likely be low. Second, your body is making antibodies against gluten. Your body does not like gluten. Your doc is a twit who should have done further testing. Especially considering...
  13. beachbirdie
    Sea Cruise -- Frankie Ford
  14. beachbirdie
    How generous of Chef Mike to share this recipe! Thanks for sharing it.
  15. beachbirdie
    This has been an awesome thread! So many great ideas! Thanks for trying them and reporting back, squirmingitch! It's great to know you got what you needed. Aren't the folks on this forum just the best?!?!?!?
  16. beachbirdie
    Blue Velvet -- Bobby Vinton
  17. beachbirdie
    Enjoyed seeing all your interests! I'm catching up on some "oldies" from TV: Dick van Dyke Show, Quantum Leap, and Magnum PI. I have a long list of books waiting. Currently reading "Bleak House" by Charles Dickens. My first-ever Dickens book besides "A Christmas Carol". I'm loving it. I thought Dickens would be totally stuffy and serious, but he...
  18. beachbirdie
    Have you been tested for any other autoimmune conditions? Not to make you nervous, but the TtG can be elevated by some other conditions such as diabetes, thyroiditis, liver conditions. One of the really common companions to celiac is autoimmune thyroiditis. Welcome to the forum!
  19. beachbirdie
    They shouldn't be checking only for your T4. They should be looking at your free T3.
  20. beachbirdie
    Ferritin (iron storage) and Vitamin D. Low normal B12.
  21. beachbirdie
    I second the yes vote. You do not say how much gluten you were eating. It needs to be a lot, I've heard around the equivalent of 4 slices of bread a day. If I may suggest, why not contact your doctor's office and get copies of the reports for the endoscopy (you may need to get some of it separately from pathologist) and your bloodwork. If you post...
  22. beachbirdie
    My pharmacist told me to take my probiotics three to four hours apart from antibiotics.
  23. beachbirdie
    Enjoy Life makes a couple of cereals I like, Open Original Shared Link. Corn free, casein free, lactose free. The flax one reminds me a little of Grape Nuts, though not as hard to chew.
  24. beachbirdie
    I am normal IgA, and was negative on all but one test. I was positive for TtG IgG. I don't see any IgG versions in your list.
  25. beachbirdie
    What a great story! I am sorry the meeting did not turn out to be where it was supposed to, I hope you'll share the "rest of the story" at some point! And you did get to meet another celiac with life story similar to yours. Divine appointment?
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