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cait

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cait

  1. cait
    I have found a list of gluten-free meds through google searches, and that has been at least vaguely helpful. It's incredibly frustrating, though. I had multiple medical professionals tell me that the amount of gluten in my antidepressant wouldn't be a problem because it was so small-- just a wheat derivative in the coating. And yet, I felt so much better...
  2. cait
    I got ibuprofen from a compounding pharmacy because I needed something I could take for headaches when CCd without making things worse. Well worth it. I've always had a kind of iffy relationship with aleve, so have been avoiding it, especially after reading the warnings that it may contain gluten.
  3. cait
    I wish I knew. Maybe there's something else I'm reacting to? Maybe I eat too much sugar (chocolate is my only happy thing anymore)? Maybe the large quantity of crumbs/gluten coated children in my classroom (I teach 4 and 5 year olds)? Maybe I should have my thyroid checked? Maybe leftover stuff from having had (misdiagnosed, inadequately treated) Lyme...
  4. cait
    I so totally hear you. I hate food. I hate dealing with it. I like eating it when it's something I enjoy, but the whole process of finding something that won't make me feel crappy, but still provides some amount of nutrition and maybe even tastes decent...UGH. It's 9:30 at night and I need to eat dinner but haven't yet because yet again my whole family...
  5. cait
    In terms of vitamins, vitacost allows you to filter by multiple allergens, which is at least a starting point. Obviously you might still react to them, but I was able to find a few things that said no corn/soy/dairy/gluten that way. Sorry you're feeling so miserable. I hope you can figure something out. I wish I had more wisdom to offer.
  6. cait
    I can't eat them because they generally have other problem ingredients, but we buy vans and trader joe's waffles for my 3 year old son as a quick breakfast option during the week. Obviously, not the most discriminating palate, but they do get consumed. The 5 year old eats them sometimes too and has no complaints. Yes, you'll get better results making your...
  7. cait
    I'll have to check into that. Would be awesome if that were the case. Unfortunately, what I took was the generic, which I'm fairly sure did have corn.
  8. cait
    Argh. I was afraid that would be the answer. I don't even know if I could get a doctor to write a prescription for that. I fight through most things without taking meds, but there comes a point during my period when it's either curl up in corner and die or take something and remain mildly functional. My class of 4 and 5 year olds might freak out a bit...
  9. cait
    Are there any painkillers that are free of both gluten and corn? My corn allergic friend can take advil geltabs, so I bought some of those, only to find that they contain gluten. Grr. I'm not as sensitive to corn as I am to gluten, so I have taken things that I know are gluten-free, but not free of corn when I absolutely can't stand it anymore. However...
  10. cait
    My kids accepted the change to annie's gluten-free mac and cheese, and they're pretty picky about some things, so I'd take that as a good sign. Of course, now none of us can have dairy...
  11. cait
    When you get to a point where you can handle making something, the King Arthur gluten-free mixes are good. You can make a loaf, then slice and freeze so you can have it on hand. It's not the same as gluten bread, but it's pretty good in my opinion. I also like Namaste bread mix. They're easier than making your own, and they come out reliably well.
  12. cait

    ARCHIVED Rotation Diet

    cait replied to cait's topic in Food Intolerance & Leaky Gut

    Sigh. You all make a good case for it. As soon as we figure out how to do it, I will. I won't like it though. So there! This seems to be bringing up all of the rage I didn't have about giving up gluten and other foods as I discovered additional issues. I've already had to cut out so many of the things I liked that the idea of not being able to have...
  13. cait
    I'm working with a nutritionist due to ongoing fatigue and other symptoms after removing all of my obvious triggers. I've been gluten-free since May, and removed corn, soy, and dairy after doing an elimination diet this fall. Haven't trialed oats yet since I suspect it wouldn't go well. Was vegetarian until fall, when it became clear I needed to add in...
  14. cait
    California Baby is free of a lot of stuff, including gluten. We've used it and like it a lot.
  15. cait
    I thought I was fine with Mexican coke since it doesn't have HFCS (I react to corn). Sadly, I'm not, and I don't know exactly what it is that I react to in it.
  16. cait
    Yep. I have a couple of degenerating discs that present ongoing issues. Interestingly, when I went gluten-free, my back pain lessened. Totally was not expecting that, since I knew there was a clear cause for the pain. Nevertheless, I could sleep on my stomach again, which I hadn't been able to do even after spinal injections and PT. Now it seems there...
  17. cait
    I hope you can find an answer quickly. That must be awful. I will say for me, the creeping back of symptoms seemed to be due to corn. I react similarly to corn and gluten, though not as severely to corn. But since doing a careful elimination including corn-based vitamins, I seem to be improving again. So I wonder if there's some sort of cross-reaction...
  18. cait
    Yeah, they're kind of hit or miss. Their labeling drives me nuts, because I never know what's actually safe. I no longer eat much from TJs.
  19. cait
    Is it possible that it's something from the night before? Vitamins or other meds that you take every night? Often I can tell as soon as I wake up, but there are times when I think I feel OK when I first get up, and then WHAM it kicks in after a few minutes. More often for me, though, that's a corn reaction. Is it possible that you're reacting to something...
  20. cait
    Thanks for your thoughts. We do wipe tables and sweep after they eat, but it's never terribly thorough. It's a fine line, management-wise. Time spent cleaning is time I'm not reading, singing, or otherwise working with a squirrely bunch of little guys after lunch. So there's generally a point where I have to stop the cleaning and move on to a new...
  21. cait
    I think part of the problem here is that the tests aren't totally reliable. There are cases where someone tests negative but does have intestinal damage-- just beyond the range of the scope or in spots that weren't biopsied. So you're absolutely right that both need to be studied more. I just don't think we can say with 100% certainty that everyone who...
  22. cait
    I can't figure out if this is my problem or if there's something else I'm missing. I felt great initially after eliminating gluten. Then stuff started to creep back, so I changed my antidepressant (had trace gluten-derived ingredients in the coating) and again felt better. I was still running into gluten frequently, so we made the house gluten-free, and...
  23. cait
    I just tried Namaste bread mix and am quite pleased with it. Even my 5 year old, who has not enjoyed most attempts at gluten-free bread, liked it. I bought a few other mixes by them (they're corn, soy, and dairy free, which, sadly, I need), but haven't tried them yet.
  24. cait
    I tried it a few times really wanting it to be OK, but got hit each time. Have to just make my own now.
  25. cait
    Awesome. Thank you. For now I've just dropped all my supplements to see what happens, but if it turns out that they were contributing to my issues, I'll be in the market for gluten, corn, dairy, and soy-free supplements. No problem, right? (and I know people have many more restrictions than that, and that I'm really quite lucky. just still trying...
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