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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by AVR1962
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Give it all time for your body to heal. The first year is the big year for healing. You may be able to add back some things after that first year but when the system gets so broke down we have to have that healing time. I too was not able to eat dairy, oats or any gums the first year. I now can have dairy and oats but do avoid cow's milk even still after...
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ARCHIVED Need Support And Motivation
AVR1962 replied to aleshae16's topic in Coping with Celiac Disease
Keep with the diet. I was actually diagnosed but my daughters were not and all have gone with a gluten-free diet. If they have any gluten they will feel ill so they know not to eat it or pay the price. Your body is telling you something and no one else has to be on-board with it and you do not need a diagnosis. If it makes you feel better to be on a gluten... -
ARCHIVED One Year In With Celiac 8-Yo Daughter. Feeling So Sad.
AVR1962 replied to ViennaGirl's topic in Coping with Celiac Disease
It will common place with time and you will not give much thought to it. There is a huge population having trouble with wheat right now and the diet is gaining more and more acceptance because of it. Restaurants, airlines, grocery stores are even accommodating which says alot in my opinion. -
To all of the newbies, stick with the diet strickly, it is worth it! I have been gluten-free now for 2 1/2 years. If you read my bio you know I was suffering bad when I first come to this site. It's hard for me to believe now how much pain and how stressed my system was. It took me a good 2 years of recovery, the first year being the hardest. Now I am back...
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ARCHIVED Traveling For The Holidays.
AVR1962 replied to Googles's topic in Traveling with Celiac Disease
My biggest concern in a home that was gluten-free would be the pots and pans, the pasta strainer, the toaster and the cutting boards. Can you stuff some of those into your luggage? Annette -
ARCHIVED Just Diagnosed. Kind Of In Denial About It.
AVR1962 replied to Laudahwiz's topic in Coping with Celiac Disease
I too was in denial and actually avoided the gluten-free diet for a while because I didn't think it applied to me, I have no idea now even why. Your mom must have seen something in order for her to push for this test. You are saying you didn't feel symptoms but I am wondering what your mom picked up on. No, you do not have to go as far as a biopsy...... -
ARCHIVED Post Diagnosis - Not Feeling Great
AVR1962 replied to gilligan's topic in Coping with Celiac Disease
It takes awhile. Make sure your diet and kitchen is clean, eat well and in time you will see the difference, have patience. Annette -
Just wanted to pop in here, especially for the newbies wondering if they will ever get better, and say it is nice to have my life back! When I look back to that first year when my body was so badly broken it's like looking back at someone else's life. For those who are struggling, keep working for your health, it will all come together. For me- no more...
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ARCHIVED Do People With Celiac Absorb Sugar?
AVR1962 replied to 1desperateladysaved's topic in Coping with Celiac Disease
I did not read the other replies, however I had trouble with sugars. I went thru this time (about a year after being off gluten) when my body was terribly sensative to sugar, even natural sugar. I would get dizzy, break out in sweat clear down to my ankles (and I do not sweat), I would be sick to my stomach and felt like I could pass out. I went thru testing... -
ARCHIVED Anyone With An Unsupportive Spouse / Family Members / Friends?
AVR1962 replied to Menqet's topic in Coping with Celiac Disease
There's a variety of things that can cause ringing in the ears and not everyone is the same. Mine finally went away when I went off all grains and sugar. I currently allow a little grain and a little sugar but I have to be very careful or the ringing comes back. It is not always easy not getting support especially from a spouse. When I was first diagnosed... -
ARCHIVED Thinking Whether To Go Grain Free?
AVR1962 replied to adambryant's topic in Coping with Celiac Disease
After over a year off wheat I was still having trouble with inflammation....it was like my body was on fire and I never knew what was going to happen next....it was like my body was still being attacked by something.....so I went completely grain and sugar free. It made a huge huge difference for me. I found when I was completely grain free though I would... -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
Skittles, nettle tea is made from the weed/plant, nettle. Have you ever heard of stringing nettle? It is a tall green plant that grows wild at least in Europe, not sure where all it grows. There are some teas that come mixed but I actually like the one that is nothing but nettles. After my first week of more of daily nettle tea I backed off to 1-2 cups... -
ARCHIVED Looking For A Good Pie Crust Recipe
AVR1962 replied to AVR1962's topic in Gluten-Free Recipes & Cooking Tips
Thanks! -
ARCHIVED Looking For A Good Pie Crust Recipe
AVR1962 posted a topic in Gluten-Free Recipes & Cooking Tips
If anyone has a good pie crust recipe they would like to share, I am looking for one, thanks! Annette -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last... -
Jebby, that is great! Here is a link to some more info on natural remedies for nueropathy Open Original Shared Link
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Wow, amazing to have any doc actually tell you this. I have had issues with neuropathy for 2 years now, had all kinds of tests done, have done lots of reading. Make sure you are taking a very good B complex as the B vits feed the nerves. B12 is very hard to get into the body so we have to take it in greater quantities but a complex has it in the proper purportions...
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I used BioSil drops and zinc tablets.
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ARCHIVED Pins & Needles Pain In Feet, Spasms In Legs
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
I bought a 3 disc set of DVDs for BEGINNERS, lol! I knew my back was too stiff to even touch my toes and I sure did not want to make a fool out of myself in a class. I am actually very amazed the difference this has made for me and I highly suggest it for anyone dealing with back pain. My husband, retired Air Force, has been doing it with me along with my... -
ARCHIVED How Do You Deal With The Anger Of Accidental Glutening?
AVR1962 replied to AandGsmomma's topic in Coping with Celiac Disease
I so get it! I too would see people eating gluten and not understand why it was effecting me and not them, ugh! But you know once you get used to the diet, get used to asking waiters and waitresses all the needed questions the diet becomes part of your evry day life and that resentment kind of goes away. We learn there are so many more foods to eat, much... -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues. -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
AWESOME!!!!! -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
Trying to follow the thread best I could. It's good to hear some of you all have had good results. I ran out of my initial box I bought from the US and found a couple diffrent types here in Germany. Neither were as strong or as effective. My husband noticed the same, his cramps in the arches of his feet came back. So I have more from the US on order. Glad... -
ARCHIVED Found Something For Inflammation
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
YAY!!!!!! My daughter also has trouble with inflammation especially from corn. Recently she ate something with corn, started feeling the inflammation, drank the nettle tea and it went away!!! -
ARCHIVED Pins & Needles Pain In Feet, Spasms In Legs
AVR1962 replied to AVR1962's topic in Coping with Celiac Disease
UPDATE: Well, I think I FINALLY have an answer to my pins and needles pain that I have had for the past 2 years!!! It was my back as my last doc suggested. I have been doing yoga every day and am loving it! I have not taken my L--carnitine for the pain for over 2 weeks and have only an occasion lil twing now in one foot only!!!! Also, I am connecting sugar...