AVR1962
-
Posts
1,018 -
Joined
-
Last visited
-
Days Won
4
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by AVR1962
-
ARCHIVED How To Read A Lyme Disease Panel
AVR1962 replied to Marilyn R's topic in Related Issues & Disorders
Can't help with the lab results but let us know if you find out anything. I was just tested for Lyme disease last week, second test in a year. -
ARCHIVED Need To Vent About How Others Are Treating Me!
AVR1962 replied to Victoria6102's topic in Coping with Celiac Disease
I am sorry this happened to you. It sounds like alot of immaturity on your friends' part. Don't take this personally, realize what they did is their issues. I think it is very hard to undersatnd unless someone walks in your shoes. I too have had all kinds of weird comments from family but wonderful support from my friends but we are all 50ish and do think... -
ARCHIVED Almost A Year On Diet And No Results
AVR1962 replied to eazyeazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This could possibly help address the issue Open Original Shared Link -
ARCHIVED Almost A Year On Diet And No Results
AVR1962 replied to eazyeazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hang in there! I am 2 weeks shy of a year on a gluten-free diet myself. I have had all kinds of crazy things to deal with in this last year and have been to the doc too many times trying to figure out if there is anything else wrong. Besides a bulged disc in my back they have found really nothing to speak of. I can't make sense of it either. I would assume... -
Did you go on any meds or use any vits to help with the tingling and flinching? I see a nuerologist next week.
-
Awesome and congratulations!!! I too am coming up on one year, next month. You say your nerves have a bit more to go in your post. Can you explain that? Are you having nueropathy issues not linked to anything else and what have you done for it? The reason I ask is I want to make sure my nueropathy is not due to something else and I have docs rather puzzled...
-
This was the doc in ER and he was guessing pretty much. I have an appt this week with my doc. I know they did somekind of scan or something many years ago when I was having trouble with migraines and concluded that indeed was the issue. This is much different. Yesterday my eyes were so blurry, probably the worst yet. My balance is off but not in the same...
-
Thank you for that tip, I will try it.
-
That sounds an aweful lot like what I am experiencing. Can I cry now? When does it stop! Have you found anything that has been able to relieve it successfully? I have a feeling this was brought on by stress. I have had migraines in the past but nothing like what I am experiencing now.
-
Skylark, I hope you don't mind me asking more questions as I am trying to figure this out for myself. You mentioned the aura last 20 minutes before the onset of the migraine and that makes me feel that maybe what I am experiencing might be different. What happened to me this weekend is I woke up each morning with the shakes, shaky so bad inside that I...
-
Okay, had a trip to ER today and doc thinks I may be having trouble with migraine aura. I have had regular migraines in the past so I do know what those feel like but this is not the same so just wondering if anyone here has had them, if you could please share with me what happens to you. I would appreciate. Perhaps I can make the connection. What have you...
-
ARCHIVED Super Sensitive And Lactose Intolerant.....lots Of Questions
AVR1962 replied to USF1970's topic in Super Sensitive People
Some of the lactose feel cheese foods are not too bad. Also, the aged cheeses have little to no lactose in them because of the aging process and that's what I would eat. I found it much easier to give up gluten than it was to give up dairy and I found milk substitutes not so good.....many have additives I would react to. I do take a lactose enzyme and I find... -
ARCHIVED Neurological Problems
AVR1962 replied to cmoore's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Clayton, I had ataxia which made me feel off-balanced every day all day for 9 months. If I would crouch down to go yard work I fell over many times. If I bent over slightly I had to catch myself form falling. When I would get out of bed my body wanted to track left and I had to force myself to go right. I ran my shoulders into door jams because of depth perception... -
ARCHIVED Ugh, Prenatal Vitamins!
AVR1962 replied to glutenfreejd's topic in Related Issues & Disorders
Congratulations! I had a real hard time with my prenatal vits with my first 2 pg. I think it was the morning sickness that was causing such issues. I would take my vit at night after dinner instead of mornings and it did help. Also, if you are having real are issues I found putting just a little bit on my stomach before I got out of bed helped me. I would... -
ARCHIVED Raynaud's Symptoms Feel Worse Since Starting gluten-free Diet
AVR1962 replied to Mrs. M.'s topic in Related Issues & Disorders
I've tried to figure this out myself. I went on a gluten-free diet 11 moths ago ad this witer was the worst for me as far as Reyaud's. I have always bee able to mananage it but this year my feet turned weird colors and quite honestly it did not feel like I was getting the proper circulation. Doc check my pulse in my legs several time. I would soak my feet... -
My system is pretty sensative so I normally go on or off something gradually. Are you taking in any anti-oxidants (D, E, A, B, beta-caratine) to help with your liver function? I recall you feeling like your liver was congested. I was reading yesterday about the important functions of anti-oxidants for our liver and found it very interesting. I had recently...
-
ARCHIVED Question For Those In Europe
AVR1962 replied to GlutenFreeAustinite's topic in Introduce Yourself / Share Stuff
I live in Germany and know a lady from Australia that lives here that was telling me something like this too. I really didn't pay attention at the time as I figured all gluten was bad. I'll be seeing her this week, I'll try to remember to ask her. -
ARCHIVED Other Food Intolerances
AVR1962 replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here's the crazy thing that I have noticed is that I have had all kinds of reactions to all kinds of foods. For awhile I could not eat tomatoes, for awhile my stomach was sensative to meat, there for the longest time I could not eat any gums like xanthan, even raisins at one point bothered me.....why? I don't know but I went with it and as my system repaired... -
Could very well be celiac from what you have described. Do yourself a real big favor and ask to be tested, tell them you want this for your peace of mind. Warning however, tests are not real accurate unfortunately so people who get a negative think they don't have celiac when they actually do and they do not get better. You could do a trial run for yourself...
-
I was stumped too as my symptoms were not so much digestive initially. I was having some visual issues, very tired and then I became off balance. I could tip over if I were leaning to water a plant. Not spining in my head but more of an inability to keep myself steady. I would trip on my toes, my coordination was way off from normal. I did decide to go off...
-
Good to hear your success, if gives me hope. Feeling better today!!
-
Caroline, I take Solary brand calcium citrate 1000 mg (4 tabs daily), split (2+2) before breakfast and before dinner. Now brand magnesium citrate 500 mg (3 tabs daily) split after each meal. Sundown brand potassium 595 mg twice a day. Are you having flinching/muscle stiffness issues? I also take a manganese.
-
UPDATE: Prolapsed (bulging) disc was found by German doc today. I was guven a injectable steroid, injected pain blocker, acupunture, laser treatment and an IV with B & C vits. Next week I go back for a epidural steroid injection. Can you beleive? This doc nailed it in about a minute. I have been dealing with base doc for a year now. They searched for...
-
I find this very helpful as my vit levels might also not be low but I definately am having nuero issues. Have you ever tried a larger amount of B12? I take an actual nerve B complex and a long as I am on it I do fine, been taking it since Aug. If I go off, I am miserable. I just started back on the full dose Monday and while my feet and hands are no lobger...
-
I used BioSil drops and zinc.