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Emme999

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Everything posted by Emme999

  1. I spoke with the pathologist/doctor today who viewed my endoscopy biopsies. She was *really* nice and even showed them to me under a microscope. It was really cool. The only un-cool part was that I couldn't see any villi! I said, "Where are they??" She just kind of grinned and said, "Exactly." Then she showed me a textbook picture of what they are supposed...
  2. I have no idea. I did, however, find this page about the chemical makeup of gluten. If I knew anything about the scientific business, I might even be able to interpret the following: When glutenin was heated above 50°C there was a dramatic increase in viscosity and G’ (Schofield et al., 1983), which led to network formation by protein-protein ag...
  3. These are so cool! I so wish that I knew all of these languages... I wonder if any of the cards say anything different.. like, "I have Celiac Disease and cannot have anything containing wheat, rye, or barley. I also believe that Buddha was my father and that I carry the power of the force within my smallest toe. It is absolutely essential that I...
  4. Okay, here's the vitamin workup on Reliv Classic: Vitamin A (10% as Beta Carotene) 5000 IU 100% Vitamin C 480 mg 800% Vitamin D 400 IU 100% Vitamin E 60 IU 200% Thiamin (vitamin B-1) 3.0 mg 200% Riboflavin (vitamin B-2) 4.25 mg 250% Niacin 20 mg 100% Vitamin B-6 4.0 mg 200% Folic Acid 400 mcg 100% Vitamin B-12 18 mcg 300% Biotin ...
  5. I love Classico sauces They were my favorites before! I was thrilled when I found that site. Thanks for posting for everyone who hasn't seen it yet! - Michelle
  6. Well, my dad was finally tested for celiac disease - which I *really* thought he had, because of his many problems that seem to correlate. But - his tTG score was only 3. So.. this led me to wonder what mine was! My score was 23.4 - does anyone know about the "normal" range? My dad's doctor said normal range was anything below 19, but then my doctor...
  7. Good question!! I have one to add: Where do you get the best value on gluten-free products? (Read: where is stuff the cheapest??) I'm thinking of ordering some "staples" and would like some input on where to shop. Thanks - Michelle
  8. celiac3270 - Who is Anne Lee? Reliable source? This is interesting.. it appears that no one has been glutened by a contaminated grill.. hmm... does this mean that I can eat chicken at Rumbi's island grill? (Where they grill steak that's marinated with wheat soy sauce?) I've eaten this a couple of times and not gotten sick - but since I don't have...
  9. Jen - pay attention Weaned off - slow, 4 weeks. Bad. Very bad.
  10. Hey, I am wondering about the whole "grill contamination" thing. Does it really happen? Wouldn't the gluten burn off or something? I'm really irritated by this thought because my family has a barbeque where they have previously used many marinades & such which contain gluten. I hate not being able to eat grilled chicken & steak & various...
  11. Jennifer, I took Effexor for 3 1/2 years, so I'm pretty familiar with it! When I first started taking it I was exhausted all of the time - I mean, *really* sleepy. I could sleep all damn day and still be tired. It was effective against the depression but - like I said to my doctor - "This kind of sucks. Before I slept all of the time because I was...
  12. Hmmm Well, my test results came back and everything was within normal range. I don't understand. If all of my vitamin levels are normal - why do I have osteoporosis? Why aren't my bones getting enough calcium? What's up with that? I have an appointment with an endocrinologist in August (supposedly the best in the state - took 4...
  13. Warning!! I tried these and they are pure nasty. Blech! Nothing like real cheese. Gross. Bad. Yuck. (etc.) Maybe you will like them but don't get your hopes up! - Michelle
  14. Those are so freakin' cool!! Thanks for posting them Jen!! And thanks to everyone else for the idea that they would be good for traveling - I hadn't even thought about that! Neat! - Michelle
  15. Hello there I am going to a benefit dinner on Sunday night at one of the fine restaurants here in SLC and since the ticket was $100+/plate, I wanted to make sure that there would be something that I could eat! So, I went in today to talk to the manager and tried to give him a mini-lesson in gluten-free dining. I took the lists (from celiac.com) of...
  16. Have you had your iron levels tested? RLS is commonly associated with iron deficiency - which also affects a lot of people with celiac disease. Be sure to have this checked if you haven't done so already. Another suggestion I have is to consider magnesium supplementation. Magnesium prevents muscle spasms and it also helpful/necessary to get adequate...
  17. Thanks for the thanks But I am just thrilled to have such a great doctor who is so unbelievably caring & considerate. She told me that I'm her first celiac patient and I think she is actually kind of fascinated by it. But - more than anything - she is just incredibly nice! She called me a couple of weeks ago to tell me about some test results and...
  18. If you want to be truly decadent, try the tropical source chocolate bars & chocolate chips. I think they are new - but it may be that I've just never seen them before! Anyway, I picked up a bag of their semi-sweet chocolate chips a week or two ago and almost reached ... I mean, they were really good The thing that drew me to the bag was that on...
  19. Yum!! That sounds so good! I wish there was one in Utah too! (I feel so cheated! )
  20. I was very unimpressed by this dietician. Not only by her oats comment - but also by her lack of understanding of the common complications associated with celiac disease. She brought samples of foods for us to try - all of them containing dairy. I told her that I'm unable to eat dairy because of allergies & intolerance. From what I've read - this...
  21. I actually sent Taco Bell email to find out if any of their stuff is gluten-free. Someone called me a couple of days later to tell me that only two menu items don't contain wheat: Pintos & cheese, and Bean Tostadas - but they also mentioned that they use the same frying stuff for everything and that their is a "risk" of cross-contamination. I...
  22. So anyway, last night I went to this "Celiac Basics - Reading Labels" class at Wild Oats where a dietician from a local hospital was providing the lecture. At one point she was talking about Oats and suggested that after 6 months gluten-free, I try adding them to my diet. I was floored. *Never* have I heard anyone suggesting that someone with celiac...
  23. YIKES!! One of these days I'm going to learn to fake anaphylactic shock just to get these guys Maybe we should all learn!! Here is a list of symptoms: What are the symptoms? Symptoms of anaphylactic shock include: • feeling faint • rapid pulse • difficulty breathing, including wheezing • nausea and vomiting • st...
  24. Amen!
  25. Emme999

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    Whoa Carrie! I think they should know but I don't think we need to scare the poor bastards I think your first line is great ("I am limited to the places I can eat out because I have celiac disease...") but then -until you know them better- I think you should lay off on the cancer/osteoporosis/infertility stuff. That's pretty hard core! Plus, why provide...
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