Emme999
Advanced Members-
Posts
451 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Emme999
-
ARCHIVED Those Crazy Villi...
Emme999 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I spoke with the pathologist/doctor today who viewed my endoscopy biopsies. She was *really* nice and even showed them to me under a microscope. It was really cool. The only un-cool part was that I couldn't see any villi! I said, "Where are they??" She just kind of grinned and said, "Exactly." Then she showed me a textbook picture of what they are supposed... -
ARCHIVED Gluten Destoryed At High Temps?
Emme999 replied to jenvan's topic in Gluten-Free Restaurants
I have no idea. I did, however, find this page about the chemical makeup of gluten. If I knew anything about the scientific business, I might even be able to interpret the following: When glutenin was heated above 50°C there was a dramatic increase in viscosity and G’ (Schofield et al., 1983), which led to network formation by protein-protein ag... -
ARCHIVED Restaurant Card Converted To .doc
Emme999 replied to VydorScope's topic in Gluten-Free Restaurants
These are so cool! I so wish that I knew all of these languages... I wonder if any of the cards say anything different.. like, "I have Celiac Disease and cannot have anything containing wheat, rye, or barley. I also believe that Buddha was my father and that I carry the power of the force within my smallest toe. It is absolutely essential that I... -
ARCHIVED Ehh-low Libido
Emme999 replied to Magdeliscious's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay, here's the vitamin workup on Reliv Classic: Vitamin A (10% as Beta Carotene) 5000 IU 100% Vitamin C 480 mg 800% Vitamin D 400 IU 100% Vitamin E 60 IU 200% Thiamin (vitamin B-1) 3.0 mg 200% Riboflavin (vitamin B-2) 4.25 mg 250% Niacin 20 mg 100% Vitamin B-6 4.0 mg 200% Folic Acid 400 mcg 100% Vitamin B-12 18 mcg 300% Biotin ... -
ARCHIVED Classico Creamy Alfredo Sauce
Emme999 replied to Jnkmnky's topic in Gluten-Free Foods, Products, Shopping & Medications
I love Classico sauces They were my favorites before! I was thrilled when I found that site. Thanks for posting for everyone who hasn't seen it yet! - Michelle -
ARCHIVED Tissue Transglutaminase (ttg)
Emme999 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, my dad was finally tested for celiac disease - which I *really* thought he had, because of his many problems that seem to correlate. But - his tTG score was only 3. So.. this led me to wonder what mine was! My score was 23.4 - does anyone know about the "normal" range? My dad's doctor said normal range was anything below 19, but then my doctor... -
ARCHIVED On Line Shopping
Emme999 replied to Jnkmnky's topic in Gluten-Free Foods, Products, Shopping & Medications
Good question!! I have one to add: Where do you get the best value on gluten-free products? (Read: where is stuff the cheapest??) I'm thinking of ordering some "staples" and would like some input on where to shop. Thanks - Michelle -
ARCHIVED Grill Contamination
Emme999 replied to Emme999's topic in Gluten-Free Recipes & Cooking Tips
celiac3270 - Who is Anne Lee? Reliable source? This is interesting.. it appears that no one has been glutened by a contaminated grill.. hmm... does this mean that I can eat chicken at Rumbi's island grill? (Where they grill steak that's marinated with wheat soy sauce?) I've eaten this a couple of times and not gotten sick - but since I don't have... -
Jen - pay attention Weaned off - slow, 4 weeks. Bad. Very bad.
-
Hey, I am wondering about the whole "grill contamination" thing. Does it really happen? Wouldn't the gluten burn off or something? I'm really irritated by this thought because my family has a barbeque where they have previously used many marinades & such which contain gluten. I hate not being able to eat grilled chicken & steak & various...
-
Jennifer, I took Effexor for 3 1/2 years, so I'm pretty familiar with it! When I first started taking it I was exhausted all of the time - I mean, *really* sleepy. I could sleep all damn day and still be tired. It was effective against the depression but - like I said to my doctor - "This kind of sucks. Before I slept all of the time because I was...
-
ARCHIVED Blood Tests For Vitamins
Emme999 replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm Well, my test results came back and everything was within normal range. I don't understand. If all of my vitamin levels are normal - why do I have osteoporosis? Why aren't my bones getting enough calcium? What's up with that? I have an appointment with an endocrinologist in August (supposedly the best in the state - took 4... -
ARCHIVED Gfcf Cheese Substitute Recommendations Wanted
Emme999 replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
Warning!! I tried these and they are pure nasty. Blech! Nothing like real cheese. Gross. Bad. Yuck. (etc.) Maybe you will like them but don't get your hopes up! - Michelle -
ARCHIVED Toaster Envelopes
Emme999 replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
Those are so freakin' cool!! Thanks for posting them Jen!! And thanks to everyone else for the idea that they would be good for traveling - I hadn't even thought about that! Neat! - Michelle -
Hello there I am going to a benefit dinner on Sunday night at one of the fine restaurants here in SLC and since the ticket was $100+/plate, I wanted to make sure that there would be something that I could eat! So, I went in today to talk to the manager and tried to give him a mini-lesson in gluten-free dining. I took the lists (from celiac.com) of...
-
Have you had your iron levels tested? RLS is commonly associated with iron deficiency - which also affects a lot of people with celiac disease. Be sure to have this checked if you haven't done so already. Another suggestion I have is to consider magnesium supplementation. Magnesium prevents muscle spasms and it also helpful/necessary to get adequate...
-
ARCHIVED Gastroenterology Journal - April 2005
Emme999 replied to Emme999's topic in Related Issues & Disorders
Thanks for the thanks But I am just thrilled to have such a great doctor who is so unbelievably caring & considerate. She told me that I'm her first celiac patient and I think she is actually kind of fascinated by it. But - more than anything - she is just incredibly nice! She called me a couple of weeks ago to tell me about some test results and... -
ARCHIVED See's Candies
Emme999 replied to gf4life's topic in Gluten-Free Foods, Products, Shopping & Medications
If you want to be truly decadent, try the tropical source chocolate bars & chocolate chips. I think they are new - but it may be that I've just never seen them before! Anyway, I picked up a bag of their semi-sweet chocolate chips a week or two ago and almost reached ... I mean, they were really good The thing that drew me to the bag was that on... -
ARCHIVED Best Cake Ever
Emme999 replied to Jnkmnky's topic in Gluten-Free Foods, Products, Shopping & Medications
Yum!! That sounds so good! I wish there was one in Utah too! (I feel so cheated! ) -
ARCHIVED Oats
Emme999 replied to Emme999's topic in Gluten-Free Foods, Products, Shopping & Medications
I was very unimpressed by this dietician. Not only by her oats comment - but also by her lack of understanding of the common complications associated with celiac disease. She brought samples of foods for us to try - all of them containing dairy. I told her that I'm unable to eat dairy because of allergies & intolerance. From what I've read - this... -
I actually sent Taco Bell email to find out if any of their stuff is gluten-free. Someone called me a couple of days later to tell me that only two menu items don't contain wheat: Pintos & cheese, and Bean Tostadas - but they also mentioned that they use the same frying stuff for everything and that their is a "risk" of cross-contamination. I...
-
So anyway, last night I went to this "Celiac Basics - Reading Labels" class at Wild Oats where a dietician from a local hospital was providing the lecture. At one point she was talking about Oats and suggested that after 6 months gluten-free, I try adding them to my diet. I was floored. *Never* have I heard anyone suggesting that someone with celiac...
-
YIKES!! One of these days I'm going to learn to fake anaphylactic shock just to get these guys Maybe we should all learn!! Here is a list of symptoms: What are the symptoms? Symptoms of anaphylactic shock include: • feeling faint • rapid pulse • difficulty breathing, including wheezing • nausea and vomiting • st...
-
Amen!
-
Whoa Carrie! I think they should know but I don't think we need to scare the poor bastards I think your first line is great ("I am limited to the places I can eat out because I have celiac disease...") but then -until you know them better- I think you should lay off on the cancer/osteoporosis/infertility stuff. That's pretty hard core! Plus, why provide...