-
Posts
3,514 -
Joined
-
Last visited
-
Days Won
34
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
-
ARCHIVED Guests Who Ask For My Food
pricklypear1971 replied to Finally-45's topic in Coping with Celiac Disease
Funny and true! -
ARCHIVED Flu Shot Poll
pricklypear1971 replied to Gemini's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, I never got them till I started getting sick all the time. Got on thyroid meds and stopped getting sick. That said, the one year I did get it, I got pneumonia. I'm sure it wasn't the cause but it didn't stop whatever flu got me that lead to the pneumonia. Anyway, I react to so many things I just don't do it. I've read re: hypothyroid patients... -
ARCHIVED A Tattoo To Symbolize The New Me
pricklypear1971 replied to Rebecca92's topic in Coping with Celiac Disease
My Mom would take offense to that! Her seahorse is still pretty! -
ARCHIVED A Tattoo To Symbolize The New Me
pricklypear1971 replied to Rebecca92's topic in Coping with Celiac Disease
I think tats are beautiful; however, you may want to be aware they are considered autoimmune triggers. On the other hand, if you're Celiac you've already been "triggered". -
ARCHIVED Burning Sensation
pricklypear1971 replied to glutentheintolerant's topic in Coping with Celiac Disease
Well, sometimes if your system moves quickly D can be pretty acidic. Aside from that, there could be several explanations. Spicy food, etc. You may have hemorrhoids... -
ARCHIVED Appointment With Gp
pricklypear1971 replied to glutentheintolerant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep. Every day. I've heard Celiac is dx more in Europe by gluten withdrawal and challenge. Perhaps ask? I don't know if Enterolab takes orders from outside the US. It isn't expensive. -
ARCHIVED My Eyes!
pricklypear1971 replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
Weird, huh? I've used that lotion for years. -
ARCHIVED Why Do Some Docs Refuse Celiac Testing?
pricklypear1971 replied to Nen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree a lot of Celiac goes undiagnosed or misdiagnosed. I see a lot of posters here who have a doc run a test (not even a panel), it's neg, then no other tests - malabsorption, biopsy, genetic. These people later go gluten-free and see results. I have a friend with Sjogren's and she and all her kids are suspect - doc ran "a test", which is negative.... -
ARCHIVED Appointment With Gp
pricklypear1971 replied to glutentheintolerant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well. I think it's 4 slices of bread for 3 months for best shot at antibody blood work. If you want info on how your intestines are doing, consider Enterolab. They do antibody, gene, and fat measurements from stool samples to determine those things (DNA is swab). No doctor needed. -
ARCHIVED Guests Who Ask For My Food
pricklypear1971 replied to Finally-45's topic in Coping with Celiac Disease
Hide your stuff or learn how to cook. -
ARCHIVED Appointment With Gp
pricklypear1971 replied to glutentheintolerant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like you're going in well prepared. I'd toss in genetic testing since you are already gluten-free. The most common vitamin deficiencies seem to be b vitamins, calcium, magnesium, vitamin d. Be prepared for pushback and state very clearly you want this testing. If doctor thinks otherwise, day ok test for that too. BUT I WANT THIS TESTING. -
ARCHIVED My Eyes!
pricklypear1971 replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok. Didn't use Devita at all yesterday. Used MyChelle last night and no "punched in the eyes" feeling/look this morning. Still aren't perfect, but better. Didn't get the drops yesterday...ran out of time. I'll get them today. -
ARCHIVED Acid Reflux?
pricklypear1971 replied to shadowicewolf's topic in Coping with Celiac Disease
I had it BAD. I had to drink 16 oz. Water upon waking, some crackers. No acidic foods early in the day. Mild breakfast - whatever soaks up acid for you. I had to drnk 8+ oz. of water every few hours and snack on mild foods. No spicy, acidic foods unless eaten with lots of other things. And I had to learn visualization - mind over body. I'd... -
ARCHIVED Why 3 Weeks Dizzy After Gluten?
pricklypear1971 replied to AVR1962's topic in Coping with Celiac Disease
Bea, thanks for all of the info. I spent a good portion of yesterday with D- from the liquid B complex. I know it was that - each time I took it my stomach got worse and worse. Anyway, I'll try chewable again (I have some but wanted liquid since it was supposed to absorb better). It helps me tremendously with SLEEP. I had a restless night - with it I sleep... -
ARCHIVED Gluten Free 9 Months Still Sick
pricklypear1971 replied to jesimae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So is the pylori to see if you have the bacteria to cause stomach ulcers? -
ARCHIVED Went To Derm Today And Got Biopsy
pricklypear1971 replied to Flasaltwater's topic in Dermatitis Herpetiformis
I doubt it with one sample. DH is a specific test. I don't know if it's compatible with the other. Call again and ask. -
ARCHIVED Went To Derm Today And Got Biopsy
pricklypear1971 replied to Flasaltwater's topic in Dermatitis Herpetiformis
Well, the link is to info about Prurigo. A differential is a suggested alternative diagnosis. -
ARCHIVED Your Major Indicator
pricklypear1971 replied to WifeMamaRN2be's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
DH. I had "lingering" thyroid symptoms - which turned out to be gluten- bit no one would have recognized it. No one recognized the DH, either. Just figured that was the obvious choice when gluten-free helped. -
ARCHIVED Why Do Some Docs Refuse Celiac Testing?
pricklypear1971 replied to Nen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ironically, insurers would be ahead by testing (blood). If Celiac is caught, the treatment is non-prescriptive. Great for them. Also, prevents visits in the future for other conditions that require rx (ok, lots of stuff associated with Celiac but gluten-free solves a lot). Now, pharma wants you to sick with something they gave an rx for. And pharma is... -
ARCHIVED Why Do Some Docs Refuse Celiac Testing?
pricklypear1971 replied to Nen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
True dat. -
ARCHIVED Why Do Some Docs Refuse Celiac Testing?
pricklypear1971 replied to Nen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
On the flip side, if they'd run the numbers on those who go undiagnosed and have 50+ visits or procedures or bloodwork or rx for wrong diagnoses I bet they'd be ahead by ordering testing, especially for at-risk populations. But humans, especially the U. S., don't think that way. Corporations definitely don't. -
ARCHIVED My Eyes!
pricklypear1971 replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, ragweed is in AZ. Hmm. It's been rainy here. I'm surprised my allergies are bad since my allergies always do better when it rains and gets rid of the dust. Our native ragweed, triangle bursage, blooms in the spring. -
ARCHIVED My Eyes!
pricklypear1971 replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks. I'm in az and I don't think ragweed is bad here but I'll check. Used to live in TX and it was BAD there. I am on a very strong antihistamine (was supposed to help my DH but didn't), so I guess I already have an antihistamine in my system. Hmm? I'll try some eye drops and switch to the MyChelle and see. This just feels worse than other times... -
ARCHIVED My Eyes!
pricklypear1971 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
My eyes have been hurting, and I assumed I just need new glasses. Well, I'm sure I need new glasses, but.., This morning I woke up and felt like both of them, especially the left one, had been punched. I've been using Devita skin care on my face. They are "gluten sensitive" - which means the gluten has been separated from the wheat product, and they... -
ARCHIVED Went To Derm Today And Got Biopsy
pricklypear1971 replied to Flasaltwater's topic in Dermatitis Herpetiformis
See link. Open Original Shared Link One differential is DH.