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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Be VERY careful. Prednisone almost put me in the hospital. How is that supposed to help, if you don't mind me asking? If you feel odd in any way (read the long list of side effects on webmd) CALL THE DOCTOR IMMEDIATELY AND DO NOT LET THEM PUT YOU OFF!!!! With a celiac/systemic issue you are at greater risk on corticosteroids.
  2. pricklypear1971
    Do you have DH? If so don't forget the iodine thing going into surgery!!!'
  3. pricklypear1971
    I can't over emphasize the iodine thing. Try it for a few weeks. You'd be surprised-go through vitamins, all processed foods, etc. Ditch the sea salt, dairy, seafood, iodized salt.... It works. If you try it for a week and no progress it isn't the iodine. Low iodine isn't forever, just till they heal.
  4. pricklypear1971
    And reflux IS a GI symptom. I understand sensitive stomach issues. You may need IV vitamins/minerals for a while. Seriously.
  5. pricklypear1971
    You need to stop eating out at the questionable places AND get back to see a doctor. Just because you font have an immediate and obvious reaction at the questionable places doesn't mean it isn't getting to you. Give it a break, at least for a few weeks, and see if it helps. Also, are you taking digestive enzymes with food? That will help break it down...
  6. pricklypear1971
    Yes, Dapsone but it's pretty evil stuff so you may reconsider. I think the corticosteroids kept the rash knocked down a bit (didn't have as weepy blisters as I did off it) but it never went away while using it. Got off them, the rash blew up (be prepared and do it on a Friday) but when it went down it went down further and healed like never before. Dermatologists...
  7. pricklypear1971
    Any processed food I buy is zero salt, so I don't hit iodine. That means I eat lots of unsalted food since salting it with safe salt isn't always an option. Noticed I am now super-sensitive about how salty my food is. Had to eat at Chipotle today...long story. Wow it tasted salty! Noticed salt-free chips tasted good without salt. And I think my DH flared...
  8. pricklypear1971
    You need ice packs, pronto! And I know you don't want to hear this but corticosteroids actually stopped my DH from healing (best as I could tell). Everyone is different.
  9. pricklypear1971
    He may very well have other intolerances. Most common is casein. It also takes a while to heal from gluten. Don't split hairs over the diagnosis. If he's better without gluten he's better - don't argue with success. I'd try taking him off milk next since it's the most common.
  10. pricklypear1971
    TPO is a specific test for an antibody that shows your thyroid is being attacked by an autoimmune disease. Not all hypothyroidism is caused by Hashimotos. Sorry, should have said TSH not T3 - although there are t3 tests (see about.com).
  11. pricklypear1971
    The thyroid test for Hashis is TPO. It is NOT standard. What were your results for t3? Most normal ranges are .5-5.5. Good thyroid docs say optimal is around the 1's. Visit about.com thyroid section for good, free advice and how to arm yourself before going to the doc. It may be worth it to go to a Naturapath, who will have pity and order the tests...
  12. pricklypear1971
    Maybe. That's why they tell you to use egg whites. Some cage-free eggs intentionally have some nutrients boosted through feed. I bought a carton of egg whites and that's what I'm using for a while.
  13. pricklypear1971
    Thanks for the tip. I think I've been to that site. I actually used apple cider on my pits this am-and it does kill b.o. Don't know if it will last-burned a tad on my DH but I can dilute it next time.
  14. pricklypear1971
    Trader Joe's gluten-free hot dogs, gluten-free buns, carrot/broccoli/apple salad, salt-free potato chips (got to watch that DH), grapes, and Talenti raspberry gelato for dessert. The low-iodine thing is killing me.
  15. pricklypear1971
    Funny you mention it... I read about it in connection with Hashis but the description didn't sound like me. I see incomplete descriptions of celiac/gluten problems everywhere. It boggles my mind. I can't understand how something that effects 1 in 133 people is not routinely screened for. Especially in vulnerable populations. Having Hashis puts me at...
  16. pricklypear1971
    You can be gluten intolerant and still be sick as heck, not to mention it can be involved with other chronic diseases. The Enterolab test can check for DQ1 gene which is related to intolerance. In short, it's hard to prove gluten intolerance other than by gluten withdrawal and challenge. And yes, it can take a while to heal.
  17. pricklypear1971
    Depends. I was a raging lunatic for a week. Had to give up milk Thursday (lower iodine for DH) and that is driving me nuts. Gluten was easy in comparison.
  18. pricklypear1971
    Yes, but I'm pretty sure doctors could SEE back then. You still see mentions of how DH can look different, bit never described in this detail. I think it's a great reference for those who think their DH must look a certain way. I noticed mine looks different - over time and by location. Some docs will be more concerned with a look rather than...
  19. pricklypear1971
    I'm Hashis, pending celiac/gluten/DH diagnosis. What works: a gluten-free diet, thyroid meds(t3/t4), multivitamins, probiotics, and digestive enzymes with each meal, and for me a low-iodine diet to get rid of the DH. Yes, regular light exercise. Helps regulate hormones, etc.
  20. pricklypear1971
    How are you doing your family a favor by getting glutened at home? I understand your thinking (I thought the same) til I realized a sick mom is no good for anyone, I let them get their fixes somewhere else that doesn't involve me. I take that night of no cooking and relax. And yes, after you are gluten-free people say you become more sensitive. Just...
  21. pricklypear1971
    Sounds like your Dad's house would be great - freedom to cook since they aren't.
  22. pricklypear1971
    Get yourself a crock pot (YOURS) and cook YOUR food in it. Buy a toaster oven (you can bake in it). BUY a loaf of gluten-free bread. Fight to get healthy enough to move out. Sometimes you've got to pick your battles, and right now you must CHOOSE TO SAVE YOUR LIFE. You can't change your family but you can survive them. Maybe later y'all can repair...
  23. pricklypear1971
    Well, I haven't gutted my cosmetics yet but have worked in some of the others. Shampoo - JR Ligget's Lotion - Vanicream Body wash - Dove (but I don't like it, has a scent) Face wash - superfine sugar and brown rice flour. SERIOUSLY. face lotions/potions - Devita I use natural cosmetics but dont think they contain wheat. Had to ditch my henna color...
  24. pricklypear1971
    Also add a good multivitamin. Gluten and Hashi people are low on lots of things and a multi helps. Vitamin/ mineral supplements help balance things out. Make sure you get mild exercise 3x a week, too.
  25. pricklypear1971
    Was the stir fry homemade and msg-preservative free? I ask because most premade ones have nasty nasty stuff in them and you may have a problem with that, too.
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