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pricklypear1971

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Latest Celiac Disease News & Research:

Everything posted by pricklypear1971

  1. pricklypear1971
    I would also (and this is the slightly paranoid person I am) tell someone at work, home, your "in case of emergency" person that you suspect a wheat allergy. It may come in handy if you accidentally get into something.
  2. pricklypear1971
    I don't know if I'm reading the labels correctly, but are some of the neocate formulas lower in iodine than others? It would be worth comparing - since it may be necessary to try lowering iodine. If any are low-ish and within his age/needs range it may be worth a whirl. I'd try gluten-free for a while first then try li (if possible) if you think you're...
  3. pricklypear1971
    I've found most people can't tell. I've also found most people don't know what a homemade cake tastes like, anyway - so a gluten-free homemade cake is still an upgrade. . It looks yumm-o.
  4. pricklypear1971
    How much will you pay me to hear "you have Celiac Disease"? Oh shoot, I'll say it for free. You have Celiac Disease. A military doctor told you so (which is a minor miracle in itself). Just because they lost the form doesn't make it less true; plus, you have the DH dx, still. A DH dx is a Celiac dx. You do need to visit a doctor, to get vitamin...
  5. pricklypear1971
    Hey, are any of y'all on Pinterest? I find a lot of gluten-free recipes and ideas there. If you want an invite pm me (faster than the waiting list).
  6. pricklypear1971
    Greek style stuffed tomatoes and bell peppers with a spinach saut
  7. pricklypear1971
    It's really weird what can set you off.... I pigged out on gluten-free Halloween candy last year. Was great, til it wasn't. You'll find your crutch and addiction. Mine was Talenti gelato. OMG. I should buy stock....
  8. pricklypear1971
    You need to get a copy of all your labs. Plus the retest.
  9. pricklypear1971
    Nah, I'll pass on that. Although I did find a cocktail recipe using beet juice and vodka....hmmm..... Got beets???
  10. pricklypear1971
    Not yet.... I think I have a few shooting up in my yard. I'll have to toss them in my spinach tonight. .
  11. pricklypear1971
    I think several people have had problems. They say they are safe except the seasonal and shaped. I assume shared lines? Open Original Shared Link It may just be too processed a food - especially if you're at the beginning of gluten-free. I like them but I don't eat them now. Just too much "junk" in them for me to process. I may be ok with one bit no...
  12. pricklypear1971
    The middle of a DH attack is not a time to think. Goodness. Sorry!
  13. pricklypear1971
    No, that wasn't what I'm getting at (though there may be a link, I really don't know what other class it's in). I was just posting something about chronic urticaria (which DH seems to have a lot in common with as far as activation) and sals. I think you just have a problem with quinoa. Plain and simple. Btw MSG and other sals gave me neuro symptoms...
  14. pricklypear1971
    I was looking up quinoa/sals (because I was curious) and found this... Chemical Similarities Salicylates are very similar in chemical structure to nitrates /nitrites, benzoates, oxalates and sulphates/sulphites, and are a major component of many food colourings and flavourings. I also experience similar reactions to foods containing even traces of these...
  15. pricklypear1971
    I think Skylark and I posted at the same time . Do what she says.
  16. pricklypear1971
    The itchy skin and watery eyes sound like more of an allergic reaction. It may be worthwhile to be tested for wheat allergy in a medical setting. If you really think this may be your issue, I advise steering very clear of wheat until you get it figured out. Mild allergies can ramp up without warning and you don't want to be in that situation. Have you...
  17. pricklypear1971
    Oh, another thing-if it is DH keep it moisturized. It is very important to "baby" the skin so it will heal. I apply Vanicream several times a day to healing scabs. I even put a band-aid on a spot in my finger because it touches so many things and is easily irritated.
  18. pricklypear1971
    I agree. Ironically, the best "clue" or convincing thing you can do (other than documenting a positive response to gluten-free) is to get the rest of your family tested for Celiac. If one or more of you come up positive it will be a huge red flag for his doctors. And, as he gets older and starts solids he'll need gluten-free food, and if you start going...
  19. pricklypear1971
    I hope more knowledgeable people will pipe in... Did they scope him?
  20. pricklypear1971
    Well, take some iron (I'm assuming you're talking about iron) and make them retest it in 6 months.
  21. pricklypear1971
    Well, I'm happy if you're happy . I dont remember, did you have vitamin deficiency panels run? That maybe the only thing to look at, if it wasn't already. Im glad you're excited and I wish you much luck,
  22. pricklypear1971
    I'm sorry you're feeling so down. There's no reason to avoid sauces and spices if they are gluten-free. Most spices - pure spices - are gluten-free. Spice BLENDS may contain gluten. Read the label. Sauces don't always contain gluten - if you make it at home or withgf ingredients it will be gluten-free. If you are eating out, yes, unless you know...
  23. pricklypear1971
    Make your own soap and water wipes. One baggy - soap and water on paper towels. Second baggy - water only on paper towels. It's the soap part that gets the gluten off. No need to over complicate it.
  24. pricklypear1971
    Stop eating quinoa. There are quite a few people who have problems with it. Luckily it isn't a commonly used food so it should be easy to avoid.
  25. pricklypear1971
    Unfortunately there is no "normal". There's typical, which unfortunately has been taken as "only" by many doctors. Also, unfortunately, once you go gluten-free (and if it is the source of the problem) you will not be able to reliably test him without reintroducing gluten. I know this is incredibly difficult; however, you are going to make yourself nuts...
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