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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    That's fabulous.
  2. pricklypear1971
    You can do whatever you want . gluten-free peeps generally have great skin, too, so that's something to keep in mind. I hear that quite a bit not just about me but about other gluten-free peeps. Which is great, considering all the grey hair thanks to Hashis. I've got to find some henna mix without indigo, and soon. I've purposely gone grey...
  3. pricklypear1971
    My hubs travels all the time, too. You should hear the stories about eating Italian in Boston... He loves beer, too but has drastically cut it since he sees a correlation between beer+beer belly+ankle swelling when he flies. He gets big doses of gluten, too, on a regular basis but I am starting to notice when he complains about his stomach it is...
  4. pricklypear1971
    What Skylark said....generally stuff is spread out. So, unless you know you can get what you need within a few blocks don't bet on walking it. Just call the hotel and ask, and request a fridge in your room so you can keep stuff cold. I don't think there's a public transport system there that will get you where you need to go (grocery stores) in a timely...
  5. pricklypear1971
    Yes, we've talked about Chebe and I like it but it still isn't what I'm looking for in a pizza crust. Against the Grain probably is what I'm looking for. I've had their baguettes but the health food store doesn't carry their pizza crust, but maybe they'll order it for me.
  6. pricklypear1971
    My husband could use a good strict gluten-free trial for a month. As we've gotten older his iron stomach is less iron. And now he can't handle fatty foods. Which incidentally, usually are accompanied by gluten. Sound familiar?? This started when I went gluten-free...so he's gluten light. Hint hint. Oh, and he has at least half a gene because our...
  7. pricklypear1971
    That's a common issue at most In-n-Outs, btw. You have to ask. And they grill them (usually) on a grill that has grilled buns. It's easier some days just to skip the grilled onions but they do make a protein style burger better... If you ask them they will clean the grill, and they will tell you it takes a few minutes longer; however, that's a small...
  8. pricklypear1971
    You made me giggle. Before I was treating my Hashis I would have strangled you (but regretted it later) for that post. Happily, now, I just giggle at myself. And yes, it is a TPO Antibody test and you must ask for it - it isn't standard. Also ask for TSH and free t3/t4. Perhaps TRAb? And yes, Hashis can make you a tad moody. You may...
  9. pricklypear1971
    Not bad. You may like The Tossers, too.
  10. pricklypear1971
    I eat Rosarita vegetarian and so far they are ok for me. I think someone here posted they had contacted them and their products were ok, but can't be sure. You may search it and see.
  11. pricklypear1971
    If your biopsy (which from what I've seen tends to be conservative when reported) says Celiac then yes, I'd say you're Celiac. Sorry you have such duds for doctors. Yes, you should go gluten-free and consider yourself Celiac and on the autoimmune spectrum. The University of Chicago Celiac Center Open Original Shared Link has some excellent handouts...
  12. pricklypear1971
    And Etta James just passed . Talk about a great live show... Don't forget Billie Holliday. Irma Thomas. She's still kicking! My playlists kick out a schizophrenic mix between hubby's Alice in Chains, my son's Shinedown, and my JJ Grey & Mofro. And then there's Willie and Jamie Johnson. And Don Williams.
  13. pricklypear1971
    No, not cookies. That would take effort to bake . You'll get there. Sometimes it's overwhelming. Just breathe deep AND DON'T BUY THE STUFF! That's what I learned - I can't moderate myself with ice cream or desserts so I don't buy them. I don't eat it unless I'm out to dinner (which is rare). Oh, last night I made frosting for my son's "dessert"...
  14. pricklypear1971
    I'm sorry. I can understand, to a point. I mean I've done gluten-free, and extreme li for two weeks-and I'd be lying if I said I didn't cheat on the df thing during li. But you're dealing with alot more food restrictions than most, alot of life changes, alot of redefining moments...and it sucks. It really and truly sucks. I can say that you will...
  15. pricklypear1971
    Very good question. I've been looking for information on inflammation and other ai diseases....funny enough I don't find it about Celiac but about RA, Lupus, Sjogren's, even MS. I don't really have good reading suggestions yet, I'm just getting started. Hopefully others will chime in.
  16. pricklypear1971
    I saw this on No Reservations/Anthony Bourdain. I may give it a whirl. Open Original Shared Link
  17. pricklypear1971
    Thanks! Now can you solve my pizza crust problem??
  18. pricklypear1971
    You've done a great job so far! Are you rewriting or copying? The medical lingo makes my eyes cross. Sometimes I read a sentence and have to look up every word.
  19. pricklypear1971
    Doesn't that drive you nuts? That's ok, the first time I heard gluten-free would make a biopsy negative I didn't believe it because everything I remembered reading didn't mention it. But if you read enough, you start to find it. You don't see it mentioned a lot, but I'm noticing it more now. Maybe I'm finding better reading material?
  20. pricklypear1971
    In one of those links you'll find a doctor saying the antibodies can stay in your skin up to 10 years. Yeah. TEN YEARS. I almost choked. And the IgA, which is what they test for may not be all that is causing the DH. One of those studies details other antibodies present in DH Celiacs, in the skin, that are thought to be what differentiates us...
  21. pricklypear1971
    You need to see a dermatologist to get a biopsy for DH. Be warned, if you are using steroids for the rash it can invalidate the testing. Also, dapsone can be prescribed for Linear IgA Disease and I believe a few others. But if it works it's a very good indicator.
  22. pricklypear1971
    I'm not sure yet. I'm in the desert so summer is a "slow" time of year unless you plant a native summer crop. I have limited space so I'm restricted to pots for now (even worse in summer here). But I am going to try something. I am thinking of some herbs on the patio since I have summer shade at this house (unlike our other house - full sun all day on...
  23. pricklypear1971
    I was asked to add this additional info about having a rash and having a gluten issue. These are my personal observations based on my readings and experience. 1) If your rash responds to gluten, it is a gluten-related rash. 2) You can try to biopsy it, but a negative result does not mean it isn't DH or a gluten related rash. 3) Most gluten rashes have...
  24. pricklypear1971
    Actually, that's not it. More to do with the iodine question and changing too many things at once. I don't think I'm terribly sensitive to the type of med, luckily. They are all equally bad or good (Armour was good, then the reformulation was bad). Plus, that whole natural thyroid shortage thing made me have a different med every two months... so, we are...
  25. pricklypear1971
    I'll second NatureThroid. Great stuff. Don't ask why I'm not on it right now... long story.
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