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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    Isn't it amazing that the big corporations usually get a way out, and your basic "Joe Schmoe" would go to jaile for something like 30 years for a lie that big?
  2. tiredofdoctors
    We got a flexible spending account this year just because we spend so dang much money on my doctor's visits and tests! -- Not to mention the $160 / month co-pay for my meds . . . . Lynne
  3. tiredofdoctors
    Jillian -- go get 'em girl!!!!! Thanks for the support! . . Lynne
  4. tiredofdoctors
    How disappointing.
  5. tiredofdoctors
    You're right. We are talking about french fries. But we are also talking about a food which, according to what McDonald's formerly published, was safe for me to eat. But it wasn't, and I wonder how many perkinje cells in my cerebellum were destroyed, how much of my peripheral nervous system was destroyed, and how much of my retinas were destroyed -- all...
  6. tiredofdoctors
    Vincent -- I agree whole-heartedly. You are absolutely right on target. I had to call each pharmaceutical company for the medications I take -- the pharmacy wouldn't take responsibility for that -- in order to find out if my meds were gluten-free. GENERIC SYNTHROID produced by the company that was supplying it contains gluten. The medicine I was taking...
  7. tiredofdoctors
    Yeah, if my cerebellum only looked so beautiful! It has continued to degrade . . . you can see where it looks like it's "fanning out" due to the parts that have died off. Just hoping my brain can re-route some of those signals so I can get out of this #$%@'ed chair!
  8. tiredofdoctors
    Well, got my reply from one of the Pantene - here's their response -- and mine: Response (RightNow Administrator) - 02/08/2006 08:21 AM Thanks for writing, Lynne. Our consumers mean a great deal to us, and we're sorry you were unhappy with the response you received when you contacted us. Our goal is to provide excellent service to all consumers...
  9. tiredofdoctors
    Richard, I wrote the last portion of my response without knowing your circumstances. I cannot imagine, in the most horrible depths of my thoughts, what losing a child is like, and particularly in the way in which you lost your daughter. I meant no hurt to you and no disrespect. Had I known what you had faced, I would not have written that. You have...
  10. tiredofdoctors
    First off, I don't think we're planning a class-action lawsuit, and neither are we are we "counting our money or planning to bankrupt McDonalds". I don't, however, think that it should be O.K. with ANYONE that when you go to a fast food restaurant you're taking a big chance with either your health or the health of your children. I think that McDonalds has...
  11. tiredofdoctors
    so then, what will make the gluten stop destroying my brain? Do I have Brain Stones????? Just thought about what I said -- hope my kids aren't reading this, because their first response would be -- "of course, we've always thought you had rocks in your head!"
  12. tiredofdoctors
    This thread is becoming like road kill for me -- don't want to look for fear of what I'll see next, but can't NOT look. To all of you who have In-and-Out burgers, you have now idea how extremely envious I am right now. I can remember that on trips to California, I would order a regular burger and the guy I was dating would say "she wants a double double...
  13. tiredofdoctors
    My in-laws (my husband's brother and his wife) live near Franklin. They have a farm -- it is so cool. They're very environmentally conscious, so they grow grass-fed cattle, with NO growth hormone, no unnecessary antibiotics, and grow goats for goat milk. My sister-in-law doesn't even like the thought of putting dye on easter eggs, so she buys chickens...
  14. tiredofdoctors
    This is by far the best response I have gotten -- it was back in October -- but I must say that Neutrogena is extremely consumer-friendly: Thank you for contacting Neutrogena. First of all, please accept our apologies for not answering your question to our website feedback before now. We have been experiencing technological difficulty with our website...
  15. tiredofdoctors
    Typically, in VERY SMALL PRINT, at the bottom of a product are the words "a subsidiary of . . . . " That's how I often know. I can tell you that Max Factor, Oil of Olay & Pantene are subsidiaries -- that's what I know so far. Will keep the thing going -- I'm on a mission!
  16. tiredofdoctors
    Thanks for the heads up, Patti -- I am really starting to believe that this is DH. When I do pop them, I have sores for about two weeks -- makes you really want to leave them alone, becaue you know that you're just going to look worse! . .. . Lynne
  17. tiredofdoctors
    I have gluten intolerance, but I have "autoimmune cerebellar disease" or they also call it "gluten ataxia". Instead of having celiac symptoms, the antigliadin antibodies cross-react with anti-perkinje cell antibodies which I also produce -- working to destroy the perkinje cells. Unfortunately, they don't regenerate, and they're in the cerebellum of my brain...
  18. tiredofdoctors
    My GI doc said that the intestinal villi looked "beautiful -- healthy, pink and plump", so he only took four biopsy sites. I found out in 7 days the results of the biopsy. . . Lynne
  19. tiredofdoctors
    Smart idea --read her label Makes sense to me!
  20. tiredofdoctors
    There's another thread about this doctor under the "Doctor" category -- I strongly recommend that you read it! I think this guy is a snake oil salesman. . . . Lynne
  21. tiredofdoctors
    Oh Boy, this one is great -- and I'm furious. So, they got a little different response: -------------------------------------------------------------------------------- From: "P&G Consumer Relations" <pg@custhelp.com> Reply-To: "P&G Consumer Relations" <pg@custhelp.com> To: bodyworxinc@hotmail.com Subject: Thanks for contacting...
  22. tiredofdoctors
    Got another "blanket" reply, and sent the same response as in the previous one, except I changed the "shampoo" part to "what if a person uses your foundation or lipstick and it contains gluten?". Here's another CMA: Subject --------------------------------------------------------------- Max Factor US website Contact Message Discussion Thread ...
  23. tiredofdoctors
    Well, got my first reply -- again, it's a game of CMA, but I did include my response to them. I think I'm just going to copy it and use it as my pat answer to all these companies! -------------------------------------------------------------------------------- From: "caringforyou@custhelp.com" <caringforyou@custhelp.com> Reply-To: "caringforyou...
  24. tiredofdoctors
    My neurologist has a registered dietician in his office, but I'm too scared to make an appointment now -- what you guys have experienced is TERRIBLE. . . . Lynne
  25. tiredofdoctors
    I'm sure that at least 3 doctors I've seen were Veterinarian rejects. . . . Lynne
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