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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    I am so sorry that you are receiving that type of abuse from your family. It is unwarranted, mean-spirited, and downright scary that they would consider that endangering your health is funny. I have been very lucky that my family has been highly supportive -- even my in-laws. My house, of course, is completely gluten-free -- no BROW anywhere to be found...
  2. tiredofdoctors
    If you have antigliadin antibodies and antiperkinje cells, not only do they cause destruction of the perkinje cells in the cerebellum of your brain, but they can also cause destruction of the perkinje cells in your retinas -- causing a whole host of problems. (I have double vision in the left eye, have started going color blind and night blind at 43). Amazing...
  3. tiredofdoctors
    Great paper! Thanks for taking up for us "non-celiacs" (as the medical world calls us) and enlightening more folks outside of the Celiac world to Gluten Ataxia! . . . . Lynne
  4. tiredofdoctors
    I'm German and English on paternal side, {English & Irish} and German on maternal side.
  5. tiredofdoctors
    I do the smoothie thing, too, but since I'm not casein intolerant mine are made a little differently. Also, some of the soy milks contain gluten, so you have to be really careful. I use a large carton of plain yogurt, add a powdered combination of Milk & Egg protein (in a large can at the store), ground flax seed, any kind of fruit that I want, then...
  6. tiredofdoctors
    Splenda made me REALLY sick. I checked the ingredients -- maltodextrin is one of them -- but it is supposed to be safe if it is made in the US. At any rate, once I stopped using it, and switched to Turbinado sugar (raw sugar -- it seems I don't need to use nearly as much as processed), I got MUCH better.
  7. tiredofdoctors
    Hi Sheila -- I think "flukey" is a word, too! I was lucky to have a really great GI doc. I had had elevated antigliadin antibodies, so the neuro doc felt it was celiac. The GI doc said, do you want to just rule this out completely? I said "yes", so he said let's do the bloodwork today, and the endoscope (I also had some other problems) and colonoscopy...
  8. tiredofdoctors
    Hi Sheila -- I'm in the healthcare field, as well. I'm surprised that with a high urine glucose that your blood glucose was only 96. Do you have access to the blood test that tests previous extended blood glucose? Do you have excessive thirst, etc.? Did you have any ketones in your urine? Have you ever had episodes of hypoglycemia? BTW: Being in the...
  9. tiredofdoctors
    I have been diagnosed with "Gluten Ataxia" but I have confirmed Non Celiac -- both by blood tests and by biopsy. I have now been diagnosed with MS -- although the neurologists are playing a tug of war with this one. What I do know is this -- because I have had elevated anti-gliadin antibodies, I will be gluten-free for life. I have been for 12 weeks now...
  10. tiredofdoctors
    Thanks for the info -- that site is pretty interesting. Lynne
  11. tiredofdoctors
    I'm 43, and was finally diagnosed with ADHD at age 39. Sure explains a lot of those report cards. I thought neighborly meant that I was a good neighbor -- I didn't know that it meant I couldn't stay in my seat or keep my mouth shut Self-medicated at 31 when I started college -- 2 pots of coffee per day. I take Concerta now -- what I've found is that...
  12. tiredofdoctors
    I'm so sorry that you're not getting the support you deserve in trying to investigate and define what is happening with regard to your health. I have been very lucky that my husband, kids, and in-laws have been very supportive with regard to my diagnosis of gluten intolerance and subsequent ataxia. My sister still wants to believe that it is "conversion...
  13. tiredofdoctors
    Having had multiple canines, I find that the talent of being able to train them is a gift from God and extremely rare! Certainly NOT run of the mill, but yet, doesn't that make her VERY special??!! Also, a financial wizard in the family is a great gift! I think it's true -- each child has different talents (and different quirks ), and you need to love...
  14. tiredofdoctors
    Dear Claire, I hate to say it because it sounds unreal that I'm stating this about you NOT having celiac disease, but I am so sorry. I was hoping that this whole thing would have been gluten intolerance --- period --- and you could be assured that no further progression would happen as long as you were gluten-free. I can't imagine what you're feeling...
  15. tiredofdoctors
    Hey guys -- the good news with the gazebo thing is that it is already decorated -- really nicely! (These people have kind of weird standards -- it's O.K. to have a pond that is really grose -- but the gazebo has to be extraordinary -- winter is lavishly Christmas-y, and spring/summer is professionally landscaped) I think I may have a Santa & Pets Day...
  16. tiredofdoctors
    Hi Claire -- can't find the post "Ironic" -- does it take awhile for them to appear? I am really interested in your findings. I hope you got some answers. Correct that -- I hope you got some definitive answers and not any vague information that can happen. My opthmalogist says that pathologists' national flower is "hedge". Will keep looking . . . talk...
  17. tiredofdoctors
    Love the changes to your party name! I kept thinking, "What is a stitch and jerk party"? . . . .Will take a digital picture of poor little destiny -- who is staying under the electric blanket in order to keep from shivering continuously -- to show you how pitiful she really looks. She still isn't happy with me! Jen -- how did you start your cookie exchange...
  18. tiredofdoctors
    Hey Claire -- I hope you received my response to your questions -- I feel really awful about my answer, because I didn't understand that you guys COMBINED PT/OT. I thought you meant that it was the same argument that we have here. I I have offended you, I am really sorry. I re-read my response, and it was my misreading the article. (One of the dangers...
  19. tiredofdoctors
    Jen -- thanks for the link -- I'm sending it to my friend, hopefully getting some airtime (other than the bird flu -- hot topic here)! Talk to you soon . . . Lynne
  20. tiredofdoctors
    I have found that my ADHD meds are much more effective now that I've been gluten-free (or semi-gluten free, considering my meds and my make-up contained gluten) My concentration is much better, my voice modulation is CERTAINLY better, and my memory seems to be better as well. Looking forward to when gluten is entirely out of my life to see what happens...
  21. tiredofdoctors
    When you find out for sure, I'll write, too . . . Lynne
  22. tiredofdoctors
    From what my endocrinologist told me, PCOS is typically a result of hyperinsulinemia -- the excess insulin affects particular organs, the ovaries being a biggie. I have PCOS -- have had it for years. The bigger picture, however, is that hyperinsulinemia is the precursor to Type II Diabetes -- it indicates that your body's cells are becoming resistant to...
  23. tiredofdoctors
    Okay, I feel somewhat better I was thinking -- does your ROOF cave in each year from the weight?!? I will say, however, that our "big snow" of '95 presented as 24" in a 5 day period! With regard to my evil twin -- I take ritalin to keep her mouth shut! Unfortunately, I learned at 39 that I've had ADHD my whole life. It SURE explains those report cards...
  24. tiredofdoctors
    I really like this idea! I like the emphasis on Gluten-Free awareness -- I am VERY sympathetic to celiacs, but I am only gluten intolerant -- I have gluten ataxia. (Did I just say ONLY gluten intolerant?????) At any rate, I think that it's important to have Celiac awareness month, because it is a much larger problem than most people think (or don't think...
  25. tiredofdoctors
    Hi Shirley -- 8 FEET OF SNOW????? Our city shut down for an entire week one year when we had 24 inches of snow. Seriously. I live in Louisville, KY -- we may get one good snowfall of about 2-3 inches, but that's it. The problem with getting "black ice" is that we will get sleet and/or freezing rain, then the ground is already so cold that it immediately...
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